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Update--6 years later!
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02/01/20 17:55
pixi 
02/01/20 17:55
pixi 
Update--6 years later!

Hi, everyone! I first found this forum back in 2005 when I started getting knuckle pads. I was 30 years old! Then came the Ledderhose...

Had surgery for one of the knuckle pads in 2012, and it came right back within a year. Never again. All that physical therapy and Vicodin for nothing.

Last time I posted, it was 2014 when I was getting married and moving to the Lehigh Valley in Pennsylvania. Well, here I am--divorced with a four year old, three more knuckle pads, and the worst case of Ledderhose my new podiatrist has ever seen.

He hesitatingly recommended Verapamil, so I searched the forum for answers. Doesn't seem very promising, so I don't think I even want to try. My feeling is that if you rub ANYTHING into your nodules for several months, you'll see improvement.

I used to freak out about having DD and LH, but I'm unfazed at this point. I know the nodules shrink over time, especially when I'm very active. But the knuckle pads DO bother me when I type, and I'm a writer. No chords, and my left thumb only slightly contracted.

Anyway, just thought I'd pop in and say hello. I've only ever met two people with this funny condition, and one of them is my mother.

Edited 02/01/20 17:56

02/01/20 20:07
spanishbuddha 

Administrator

02/01/20 20:07
spanishbuddha 

Administrator

Re: Update--6 years later!

Thanks for the update pixi. I’m not sure about Verapamil, it can have quite toxic side effects, and if you search the forum the results are unconvincing. I guess you still have RT as an option for the LD if the fibromas do become troublesome. It seems you have struck a balance so far of living and coping with DD/LD as they affect you. Since your last post the RIDD trial is looking interesting for DD and for LD many (but not all) patients claim relief for LD from the hyaluronidase injections.

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