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12/02/2018 04:22
Belladonnous 
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12/02/2018 04:22
Belladonnous
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What's next
I am 43 and was just diagnosed with Dupuytren's contracture. I have 30%contracture in pinky finger, a cluster of nodules in my palm all on my dominant rt hand. Then I have pittng on my left hand along with carpal tunnel in both hand Iam a worried to death. I am a single hairstylist, self employed. I am wondering how quickly other people's fingers completely contracted after the contracture began. I have been reading several of other people storeies I am worried This will be the end of my career.
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12/02/2018 06:42
Stefan_K. 
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12/02/2018 06:42
Stefan_K.
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Re: What's next
Belladonnous:
I am 43 and was just diagnosed with Dupuytren's contracture. I have 30%contracture in pinky finger, a cluster of nodules in my palm all on my dominant rt hand. Then I have pittng on my left hand along with carpal tunnel in both hand Iam a worried to death. I am a single hairstylist, self employed. I am wondering how quickly other people's fingers completely contracted after the contracture began. I have been reading several of other people storeies I am worried This will be the end of my career.
Hi Belladonnous, welcome to the "club" although you would obviously have preferred not to become part of it.
There is no way of predicting how Depuytrens Disease will evolve in any given individual. The age of onset in your case is quite close to the reported average, so your evolution may be average, but then again it may be slower or faster.
I myself had my right hand pinky with a similar contracture to yours straightened with a painless, easy NA procedure four years ago, and then new nodules stopped or eliminated with radiotherapy in that same hand. It hasn't moved since, including the pinky which still has the collagen cord and three nodules along it in it but which doesn't bother me. I have been wearing a comfortable night splint glove as an extra insurance against a possible new contracture (the cord again seems to want to pull on the pinky), and the only real effect DD has had on my life has been that I spend some of my time on this forum to keep up-to-date and share my experience. Unless your DD suddenly turns particularly aggressive your life is more likely not to be affected much than that it will be. Most people can "manage" the disease well. I can recommend my approach in a similar state of the disease, and to stay away from surgery. I hope that will work in your case with carpal tunnel, as surgery for carpal tunnel and other bleeding hand injuries have been reported to have triggered or accelerated DD.
You will find lots of useful information in the menu of this website and in this forum, including many success stories with minimal invasive procedures.
All the best,
Stef
[56, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]
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12/02/2018 08:01
spanishbuddha  Administrator
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12/02/2018 08:01
spanishbuddha Administrator
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Re: What's next
Hi Belladonnous
Sorry to hear your news. Since you have a contracture, and some pitting I am wondering how long you have had symptoms as this may give an indication of the rate of development so far. But Stefan is right it varies enormously from person to person. Your best options are Xiaflex or NA for the pinkie, although straightening a pinkie PIP can be difficult, conservative treatment for the carpal tunnel, either steroid or splinting, otherwise minimal invasive keyhole, and thereafter RT to hopefully slow or halt the DD. It can be difficult to find a hand surgeon who agrees with RT and doesn’t want to do a surgical procedure but this should be avoided as much as possible. Best wishes SB
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12/02/2018 23:53
Belladonnous
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12/02/2018 23:53
Belladonnous
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Re: What's next
Thank you Stefan and Spanish buddah. That gives me some hope.
I went to a hand specialist. I was very turned off by him. He only looked at one hand. He did not mention any of the treatment what so ever. He said my DD was to far advanced for injections, his advice was wait till it gets worse then he can do surgery. What type of Doctor do you see to start the treatments you mentioned?
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12/03/2018 00:51
Stefan_K.
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12/03/2018 00:51
Stefan_K.
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Re: What's next
Belladonnous:
What type of Doctor do you see to start the treatments you mentioned?
You have an example list of doctors for NA and collagenase injection in the "Treatment" menu at the top of this page. The direct link for collagenase is https://www.dupuytren-online.info/dupuyt...se_clinics.html. Who performs the procedures depends somewhat on the health system in your country. Where do you live?
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