Hi Anastasia,
I wouldn’t have RT if you are trying to get pregnant. I was insanely careful about every decision I made during that time in my life. Maybe the injections will help prevent contracture. That said, studies (from six years ago) showed that targeted RT doesn’t seem to have a negative effect on your health. I was not willing to go the route of injections, numerous surgeries, long recoveries and possibly losing the use of my hand. I have absolutely no regrets about my treatment. I read numerous articles and studies done in Europe, and that convinced me the U.S. was really NOT up to speed on this disease. I feel fortunate that I found a doctor here at home, and that my treatment was covered by insurance. My radiologist used the German RT protocol.
I hope that everything goes well for you...especially having little ones!
Best wishes,
Lori

I have the disease and it started as soon as I had a hysterectomy and went into menopause.i had a frozen shoulder that did clear up. I’ve dont the needle apathy. As well as the medicine that breaks down the collagen. Which did help for one. But that was extremely painful. I now have in both hands uggggg and have surgery next month fingers crossed it helps somewhat. I find tho I do get a chill in my arm all the time tho and now have some pain in my elbow. Not sure if it’s linked but I think it is. Will be looking into it as well.


Anyone else find this happens to them?

Vmvmvm:

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I have the disease and it started as soon as I had a hysterectomy and went into menopause.i had a frozen shoulder that did clear up. I’ve dont the needle apathy. As well as the medicine that breaks down the collagen. Which did help for one. But that was extremely painful. I now have in both hands uggggg and have surgery next month fingers crossed it helps somewhat. I find tho I do get a chill in my arm all the time tho and now have some pain in my elbow. Not sure if it’s linked but I think it is. Will be looking into it as well.


Anyone else find this happens to them?

I have just been diagnosed with DD and also have Ledderhose to both feet. It just about came around all at once about 12-18 mths ago but the lump and pulling with one hand caused me to go see the GP. I did have ultrasounds on both feet 12 mths ago with nothing diagnosed other than lumps requiring surgery to remove if they get worse. Now the recent hand ultrasound actually diagnosed DD and s revisit about my feet also diagnosed LD. It’s interesting reading in this forum and a lot can be learnt. I am in Sydney although my GP is at a loss as to what to recommend for me. As far as I am aware no one in my family has had this issue but having said that I was the only one in my family with rare VHL as well. 😟

Edited 03/09/19 09:43

Hello everyone!

I posted my story with a Dupuytren's diagnosis in a new topic titled.. "Dupuytren's vs Palmar Fibrosis"... as after four DD diagnoses, with two GP's, an ultrasound/radiologist, and an internist, I saw a hand surgeon who told me what I have is in fact palmar fibrosis. I am a 32 year old female, musician, and it appears this diagnosis of palmar fibrosis was related to starting birth control about one year ago... 4 months prior to the onset of the nodule. As I state in the story, my experience may or may not be of use to you, particularly if what you are dealing with is a true Dupuytren's contracture... but I wanted to share my story in case others might relate to my symptoms and might find that they also do not have an accurate diagnosis... or perhaps to generate more discussion of these hand disorders and their relationship to hormones.

By the sounds of it, palmar fibrosis can be treated/rehabbed. So if there are any out there that relate to my story, I hope it might help you find a better treatment plan for what you are dealing with.

https://www.dupuytren-online.info/Forum_...1553808308.html

Edited 03/28/19 22:50