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Women with Dupuytren's
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05/18/2022 23:15
Prof.Seegenschmiedt 
05/18/2022 23:15
Prof.Seegenschmiedt 

Re: Women with Dupuytren's are not really different from men with Dupuytrens

Dear Debbie GG

My strong advice for you would be . "BE PATIENT with you, your hands and your life ...."

WEDDINGS and DUPUYTREN DISEASE(DD) or Ledderhose Disease (LD) are not related to each other ar not a good reason to rush into an insufficient prepared treatment of one of the most pretious body parts - YOUR OWN HANDS,

You could already know, to have DD or LD does not mean that you have to treat it, when you know the diagnosis from a medical specialist; DD and LD can be dormant and without anY disabilities or impairment of quality of life for many years

TO TREAT or NOT TO TREAT that is the true question - and anxiety or nervosity are wrong advisors


TAKE THE & 6 POINT SCALE AS BASIS for YOUR PERSONAL evaluation and further long-term assessment:


N = NODULES
--< within 3 - 6 months nodules are larger, harder or increased in numbers

C = CORDS
--< within 3 - 6 months Cords are larger, harder or increased in numbers

A = ANGULATION
--< within 3 - 6 months flexion deformity has increased for 1 - 4 fingers

S = SYMPTOMS
--< within 3 - 6 months Symptoms (like itching, burning sensations) have increased

P = PAIN
--< within 3 - 6 months PAIN ZONE AND AREAS are larger, harder or increased in numbers

F = FUNCTION
--< within 3 - 6 months FINGERS AND HAND FUNCTION HAVE WORSEND
DEFINED WITH SPECIFIC HAND TESTS

IF 3 or MORE CRITERIA HAVE CHANGED OVER A PERIOD OF 3 - 6 MONTHS RADIOTHERAPY IS INDICATED.



If you need assistance with your DD or LD diagnosis and definition of your specific disease status, we could
arrange a SPECIAL MEDICAL VIDEO CONSULTATION via ZOOM or another provider.

For this purpose please contact me and send a brief summary of "your case" WITH ADRESS & TELEPHONE
for personal identification . I will send you our forms and graphs to define your personal disease status and
arrange the planned consultation. PLEASE DO NOT SEND MASSIVE DATA OR PHOTOS

CONTACT E-MAIL: prof.seegenschmiedt@gmail.com


in deutsch:


Mein dringender Rat für Sie wäre . "GEDULDIG sein mit dir, deinen Händen und deinem Leben ..."

HOCHZEITEN und DUPUYTREN-KRANKHEIT (DD) oder Ledderhose-Krankheit (LD) stehen in keinem Zusammenhang und sind kein guter Grund, sich in eine unzureichend vorbereitete Behandlung eines der wertvollsten Körperteile zu stürzen - IHRE EIGENEN HÄNDE,

DD oder LD zu haben bedeutet nicht, dass Sie diese behandeln lassen müssen bereite wenn Sie die Diagnose eines Facharztes kennen; DD und LD können viele Jahre inaktiv und ohne Behinderungen oder Beeinträchtigung der Lebensqualität sein.

BEHANDELN oder NICHT BEHANDELN, das ist die eigentliche Frage – und Angst oder Nervosität sind falsche Ratgeber dabei.

NEHMEN SIE DIE & [b]6-PUNKTE-SKALA ALS BASIS für IHRE PERSÖNLICHE Bewertung[/b] und die darauf folgende weitere Langzeitbeurteilung:

N = KNOTEN
--< innerhalb von 3 - 6 Monaten sind die Knötchen größer, härter oder zahlenmäßig vermehrt

C = CORDS / STRÄNGE
--< innerhalb von 3 - 6 Monaten Stränge sind größer, härter oder haben zahlenmäßig zugenommen

A = ANGULATION / WINKELDEFIZIT
--< innerhalb 3 - 6 Monaten hat die Flexionsdeformität an 1 - 4 Fingern zugenommen

S = SYMPTOME
--< innerhalb von 3 - 6 Monaten haben die Symptome (wie Juckreiz, Brennen) zugenommen

P = SCHMERZ
--< innerhalb von 3 - 6 Monaten sind die SCHMERZEN stärker bzw. die SCHMERZZONEN UND -BEREICHE
größer, härter oder zahlenmäßig vermehrt

F = FUNKTION
--< innerhalb von 3 - 6 Monaten FINGER- UND HANDFUNKTION HABEN SICH VERSCHLECHTERT
DEFINIERT MIT SPEZIFISCHEN HANDTESTS

WENN SICH 3 ODER MEHR KRITERIEN ÜBER EINEN ZEITRAUM VON 3 BIS 6 MONATEN VERÄNDERT HABEN, IST EINE STRAHLENTHERAPIE INDIVIDUELL sinnvoll:


Wenn Sie Unterstützung bei Ihrer DD- oder LD-Diagnose und der Definition Ihres spezifischen Krankheitsstatus benötigen, könnten wir das tun
vereinbaren Sie eine SPEZIELLE MEDIZINISCHE VIDEOKONSULTATION über ZOOM oder einen anderen Anbieter.

Hierzu kontaktieren Sie mich bitte und senden eine kurze Zusammenfassung „Ihres Falles“ MIT ADRESSE & TELEFON
zur persönlichen Identifizierung. Ich sende Ihnen unsere Formulare und Diagramme zu, um Ihren persönlichen Krankheitsstatus zu definieren und zu definieren
das geplante Beratungsgespräch vereinbaren. BITTE KEINE MASSIVE DATEN ODER FOTOS SENDEN

MVZ RUHRRADIOLOGIE – RUE 191 GmbH
Rüttenscheider Strasse 191, 45131 Essen ( Germany)
Telefon: +49 (0) 201 799 86 90 // Fax: +49 (0) 201 779 86 999 // https://ruhrradiologie-essen.de/essen-rue191/
E-mail: praxis@ruhrradiologie-essen.de
Tel: +49.201.7998690 / Fax: +49.201.773429
info@ruhrra

KONTAKT E-MAIL: prof.seegenschmiedt@gmail.com

Edited 05/19/22 13:41

05/20/2022 18:05
DebbieGG 
05/20/2022 18:05
DebbieGG 
Re: Women with Dupuytren's

Thank you so much for offering to consult on my case. I still have a few weeks until my doctor appointment and after that I will need to assess my options. Right now the lumps don't hurt or itch and don't seem to have changed since the last one appeared a few weeks ago. The "new" one seems harder but the "old" one seems softer and flatter but maybe that's just the way this disease goes- no rhyme or reason.

07/19/2022 09:50
Rebecca 
07/19/2022 09:50
Rebecca 

Re: Women with Dupuytren's

Rebecca :)
Diagnosed at 19/Female/Family History of Dupuytren

I was diagnosed just after I started puberty in my late teens.

02/16/2024 12:44
cvilleroby 
02/16/2024 12:44
cvilleroby 
Re: Women with Dupuytren's

Is this page still active? Is Prof Seegenschmiedt still practicing? I could do with some help.

I am female, 64, in the US. Growth started with small painful nodules in the right foot at age 63, a few years after beginning bioidentical hormone therapy, which I started about 7 years after menopause. I also spent very long hours in the garden for several years during the pandemic. I also gained 20 pounds which must have a bad effect on development. There is new nodule growth in the right foot and now pain in the left which I believe is the beginning of a new growth. No family history.

I have had 3 rounds of injections with Hyaluronidase in the last 6 months from a podiatrist and have applied verapamil cream to my right foot for about a year. Pain has not decreased and there is now chord development in the right foot.

I understand the long-term downsides of RT, but I am an incredibly active person and life as I know it has come to a dead halt because of the pain of simply walking, even though I cut out holes in the inserts of my shoes. It is devastating. I have to weigh the chances of a future cancer with a steep decline of the quality of life during my remaining active years.

Thoughts?

Edited 02/16/2024 13:08

02/16/2024 16:07
wach 

Administrator

02/16/2024 16:07
wach 

Administrator

Re: Women with Dupuytren's

Prof. Seegenschmiedt ist still practicing. He is also offering video vconsulting which might be a good start. I believe hus address prof.seegenschmiedt@gmail.com is still working.

Wolfgang

02/16/2024 16:14
spanishbuddha 

Administrator

02/16/2024 16:14
spanishbuddha 

Administrator

Re: Women with Dupuytren's

He posted here last year with new contact details and office hours
https://www.dupuytren-online.info/Forum_...53463816.html#5

His photo is shown on the website https://mvz-orthovolt.de/

Many US people now get treated with RT in the US and some insurances are accepted. More on DART or looks at their list
https://docs.google.com/spreadsheets/u/0...LPV6sksVp1rl2Rs

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