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Xiaflex treatment and St. Petersburg Fl doctors
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11/22/18 04:09
Evesawicki 
11/22/18 04:09
Evesawicki 
Re: Xiaflex treatment and St. Petersburg Fl doctors

An update almost a year later on a Xiaflex injection:
After having the Xiaflex injection almost a year ago, my right pinky finger continues to be perfectly mobile and flat. Truly a medical miracle.
My middle finger in my left hand is developing a significant cord. Watching it carefully, but hoping nothing needs treatment. But if it does, I'd do Xiaflex again in a heartbeat.
I will say the right doctor can make the difference.

Edited 11/22/18 04:18

11/23/18 07:30
Cherrise 
11/23/18 07:30
Cherrise 
Re: Xiaflex treatment and St. Petersburg Fl doctors

Great update. So glad to hear your doing well! Can you use your hand without any restrictions.
I had xiaflex 7 years ago on pinky and fourth finger and palm area. Three fingers were curled up into a fist after surgery for some reason set DD off . I have difficulty with fine motor skills & pinky cannot close tight . I also have arthritis OA in my fingers. Compared to the fist before treatment with xiaflex I am very happy with the outcome all these years later.

Xiaflex injection was painful a lot of swelling brusing up to arm pit and glands swollen for two weeks. In retrospect DD is under control now. There was a few months last year after hip replacement surgery gripping Walker while all my body weight was on my palms ... was causing the nodes in my palms to enlarge and become painful. But they seem to have gone down and don't bother any longer.

do you use any type of splint ? I sleep with a Fixxglove every night because the surgeon said it would help keep the fingers from curving at night and DD could become active anytime. At that time 7 years ago no one in the western part of the US was familiar with Rt. I may try that the next time the nodes become active in my palm.

I hope you contine on the non active DD journey ! Good luck and happy holidays.

12/06/18 14:50
rockinroller 
12/06/18 14:50
rockinroller 
Re: Xiaflex treatment update

Sorry for the late response. I rarely get on this site. It's been 8 months since my RH ring finger and palm area below was treated with Xiaflex, and 5 months since the same hand's little finger was treated separately. In general, I am pleased with the current state of my condition, as I can effectively use those fingers again, and the biggest improvement has been being able to slide my fingers into a glove as we enter the cold season in Michigan. The ring finger looks and functions totally normally. The little finger is stiff, however, and I cannot close it completely, to the point where the tip hits the palm, unless I spend several minutes clamping it toward that direction with my other hand's fingers. And it's quite painful when I try. Frankly, I'd much rather have that little finger erect and unable to be closed completely, than to be inwardly bent and unable to be opened, if given the choice. I think the DD caused those cords that are associated with the disease to ravage my little finger so intensely that the surgeon was limited in what he could break down and correct via Xiaflex. And surgery was definitely out, due to the same issue, and fear of cutting critical tendons or worse--nerves--in an effort to untangle that mess. All in all, I am glad I made the decision to have the Xiaflex injections and procedure in general.

I started wearing a custom made splint that the OT did for me after the procedures, installing it just before bedtime and removing it in the morning. However it was so disruptive to my already-challenged sleep patterns that I stopped using it about 2 months ago. There's been no change in my fingers in terms of their stature, and I think there's sufficient studies you can research that shows that wearing a splint has not been proven to deter DD from reoccurring.

I now have a large cord forming on the the palm of the other hand, with signs of a tributary cord beginning to head toward that little finger. I will keep monitoring that growth, and if it's clear that the cord is going to head up the little finger I will probably submit to another Xiaflex session with my doctor. And this time I will make those arrangements before the little finger starts bending inward very much. Maybe that will make the outcome more positive.

Good luck and Merry Christmas to you as well!

12/07/18 05:00
Stefan_K. 
12/07/18 05:00
Stefan_K. 

Re: Xiaflex treatment and St. Petersburg Fl doctors

Thanks for sharing, rickinroller.

Have you considered radiotherapy for that LH pinky.?

Happy Holidays to you, too.

Stef

[56, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]

12/07/18 17:42
GeoffGo4It 
12/07/18 17:42
GeoffGo4It 
Re: Xiaflex treatment and St. Petersburg Fl doctors

I have had traditional surgery, Xiaflex and now Needle aponeurotomy with lypo injection. Traditional surgery took the longest of heal, Xiaflex was exstemely painful and only lasted a year to two. My left hand, pinkie, ring and middle had all curled to 90 degrees and the thumb was coming in. Dr. Roger Khouri of the Maimi Hand Institute perforded Needle aponeurotomy with lypo injection on first my right hand, then my left 5 months later. No scaring, no real pain and now less than 2 1/2 months later, I can put those gloves on easily. Not completely flat, but almost. I would highly recommend Dr. Khouri and Needle aponeurotomy with lypo. I know that my left hand would not have been fixed in one shot by any other method. BTW never again would I have Xiaflex.

07/07/22 21:28
JudyC 
07/07/22 21:28
JudyC 
Re: Xiaflex treatment and St. Petersburg Fl doctors

Can you share the doctors information and do you know of any pain doctors in Florida that would help with the pain I’m at stage 3 radiation and injections are not take or making any difference anymore I need to see someone for th pain thank you

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significant   worse--nerves--in   go-the-distance   Aponeurotomy   dupuytren-online   injections   treatment   inadvertently   Coincidentally   already-challenged   swelling   surgery   Xiaflex   painful   doctors   Petersburg   completely   manipulation   injection   fingers