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Your thoughts?
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07/18/2011 18:49
mrokeefe 
07/18/2011 18:49
mrokeefe 
Your thoughts?

I'm new to the forum and I'm looking for some help. I have self diagnosed Dupuytren. My father has it and has had the surgery. I have the dimple in my left hand but my right hand rind finger has the raised nodule and it is tender to the touch. I don't have any contracture and can stretch my fingers 100%. However, I'm a 38 year old dentist and I'm worried about what lies ahead and what I should do and when? Do I worry about it now? or wait until I actually have problems with it? What would you do if you had caught it early and recommend I do? Thanks for any advise.

Matt

07/18/2011 19:17
callie 
07/18/2011 19:17
callie 
Re: Your thoughts?

I would recommend just watching your hand for a while. It might not get any worse for decades. I had surgery on my left hand 10 years ago. My right hand showed the same symptoms that you have described for about 20 years and has not progressed at all during that time.

Edited 07/19/11 01:24

07/18/2011 20:56
spanishbuddha 

Administrator

07/18/2011 20:56
spanishbuddha 

Administrator

Re: Your thoughts?

I agree with callie. Monitor it - keep a log and photo record. Make a note of strange aches, tingles, cramps, spots, anything at all changing on the hand(s). If the disease appears to become active or accelerate, with new lumps then consider having radiotherapy to try and slow or stop it.

07/19/2011 04:57
wach 

Administrator

07/19/2011 04:57
wach 

Administrator

Re: Your thoughts?

The menu above, specifically "Disease" and "Treatment", may give you some background information on available treatment options.

Wolfgang

07/19/2011 15:56
mrokeefe 
07/19/2011 15:56
mrokeefe 
Re: Your thoughts?

Thanks for the quick responses. Most of me feels like I should leave it alone until I have a problem. Another part of me thinks I should nip in in the bud early. The last thing I want to do it to stir things up and have it progress quickly. I need to work for another 15-20 years. I didn't know if some of you wished you had done radiation early on?

Thanks,
Matt

07/19/2011 16:07
spanishbuddha 

Administrator

07/19/2011 16:07
spanishbuddha 

Administrator

Re: Your thoughts?

mrokeefe:
Thanks for the quick responses. Most of me feels like I should leave it alone until I have a problem. Another part of me thinks I should nip in in the bud early. The last thing I want to do it to stir things up and have it progress quickly. I need to work for another 15-20 years. I didn't know if some of you wished you had done radiation early on?

Thanks,
Matt

I've just had RT done in Germany on one hand. I had it done 4 months after realising I had Dupuytrens. I had active symptoms before and still - soreness, aches, some sharp pains, as well as the presence of, and recent growth of nodules.

There are signs of Dupuytrens in my other hand, hardness that may be nodules, and during my consultation for the RT treatment it was confirmed, but because there are no 'active' symptoms it was not treated. I'm watching it like a hawk now. If you have any signs that the disease is active then investigate having radiotherapy now. Otherwise if it is dormant, having radiotherapy is considered a risky waste of time. Maybe a hand specialist can help you with this decision.

07/19/2011 16:17
mrokeefe 
07/19/2011 16:17
mrokeefe 
Re: Your thoughts?

Thanks, I don't want see a specialist unless I have to. Just in case I need to buy some disability insurance in the future, I don't want there to be a pre-existing condition and then they will deny me. The fact that you have had treatment on one hand and are opting not to treat the other hand early in the disease process tells me that waiting is probably the best option. Along with the others on the board that seem to agree with you. Thanks Again.

Matt

07/19/2011 17:26
lori 
07/19/2011 17:26
lori 
Re: Your thoughts?

Matt,

I would take pictures of your hand, measure your nodule and document the degree of tenderness. I would update it if you notice a change so that you can keep track of changes rather than having months go by and then asking yourself, Was that there the last time? I found that by keeping a DD diary, I could document the changes in my hand and see if the changes were occuring at a stable pace or were the changes occuring more frequently. Documenting this helped me make up my mind to have RT early on. Mine progressed from a sore spot to a nodule and a cord within 6 months. Seeing that the disease appeared to be progressing at a rapid pace and not stablizing made the decision easier to have RT now rather than waiting.

Good luck with your practice.

Lori

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