| 2 years after RT update on my severe LD |
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12/19/2013 14:51
Bleu 
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12/19/2013 14:51
Bleu
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Re: 2 years after RT update on my severe LD
Christl:
What about Cryosurgery? There is talk about that. Have you two considered that? I know it is also a temporary fix, seems everything is, but it could reduce the pain and make walking possible again, so I read. There is a Dr. Spilken in NJ who does that. He was also at the Dupuytren convention in Miami couple of years ago.
I am planning on doing this. I spoke with Dr. Spilken yesterday. A little background on me. I"m 46 and have Ledderhose on my left foot - surgery (BIG MISTAKE)! Long healing process and it came back with a vengance! I researched the options and decided on RT at OU with Dr. Herman in 2011. It worked until this September when new nodules started growing. I went back for a second round just recently but my foot is still bothering me. Haven't seen much shrinkage yet but hoping it just needs more time. While I was at OU, we discovered nodules on my other foot which are just starting and I"m asymptomatic right now. Dr. Herman would not treat the new nodules on my other foot because of this.
Dr. Spilken spent a lot of time with me over the phone and has patients from around the country see him for treatment. He informed me someone from Dallas is there this week for the cryosurgery procedure. If you watch his video, it is informative.
https://www.youtube.com/watch?v=5fqC-xS8WhM
Dr. Spilken said her would try and break down the scar tissue on my bad foot. 80% success rate. Sometimes multiple procedures are needed. He is also going to treat my "new" foot. One on a Tuesday and the other foot on a Thursday. I will be traveling from the mid-west to get this done. Recovery is basically one day of elevation, bandage stays on 24 hours and you're mobile after a day. 3-5 days of not pounding the foot. He said it takes 2-3 months to evaluate the success. Complications include numbness and infection.
I hope this will work and once I have the procedure, I will keep you all updated on how it went and the results afterwards.
Best to you all! Merry Christmas and Happy Holidays to all!
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12/22/2013 20:30
Christl 
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12/22/2013 20:30
Christl
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Re: 2 years after RT update on my severe LD
Best of luck with your procedure Bleu. Just read about another member of this forum who went to Dr. Spilken for Cryo, seems she is very happy with the outcome.
Merry Christmas and all the best in 2014 to you and all the members here on this forum. Frohe Weihnachten und einen Guten Rutsch ins Neue Jahr to you Wolfgang.
Christl
Edited 12/22/13 22:30
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