April Thomley,
Hey! I was just diagnosed with this illness and would like any information that anyone could give me. I am 26 years old and I have suffered with "knots" in the arches of my feet since I was 18. I keep reading that this disease is mostly male and mainly over 40. Well that doesn't make any sense to me. Almost my entire family has this; my mom, grandmother,great grandmother, great great grandmother, uncle, and my little sister is getting small ones coming up now. Until now we were completely ignorant to this disease, we knew it was an inherited illness but no one wanted to risk the dangers of surgery. We also live in a rather rural part of Alabama and I don't mean to sound negative but we had a lack of faith in the local doctors. My knots are very painful, I just had the one on my left foot removed because it was causing a lack of movement in my ankle. I had it removed a little over a month ago and so far so good. If you suffer or have suffered from this please feel free to share any information you may have. I have so much trouble working with this illness and I am curious to know if I could get disability benefits to help me support my family. If you have any knowledge in this area please share. Thank you.