Christl:

---

Gary, sorry to read your LD is giving you trouble. Here is what I read in a previous post about a Dr . Chin, he is in Brisbane, AU:

Re: Surgeon - Dr Amanda Reilly - Brisbane Australia - Feedback & Dr Chin
Hi Steven and Jaci,

I recently had both a Fasciotomy operation on my left hand and also my left foot for Ledderhose was injected by Dr Chin some 6 weeks ago. Hand is still recovering, but is looking good, he was going to inject the hand but it was too far gone with the tissue being very fibrous, possibly after 5 NA procedure previously (and hence not a good candidate for an injection) so we decided to strip the finger ready for a future injection if required.

The injection in the foot resulted in TOTAL disappearance of 4 nodules and the larger nodule (around 15-20 mm) has shrunk considerably. It was a bit sore for 2-3 days but I could still walk on it OK. Normally the injection is done with a local anaesthetic, but as I was having a general for my hand, it was done under a general anaesthetic for me. The foot is so much easier to extend straight, walking is easier and to date no side effects. Dr Chin tells me it takes up to 8-10 weeks for the injection to fully do its job, so I am hopeful the larger nodule will shrink further. Dr Chin uses an injection already approved for treating other ailments and has been using this technique for many years with great success. As he is seeking a licensing arrangement for the treatment I feel I cannot disclose too much, but I am certain if you contact Dr Chin he will be more than happy to discuss the efficacy and effect of the treatment. I believe he has an alternative to RT, freezing and other treatments for Ledderhose that once he can get the appropriate licensing in place will become a much sort after treatment. It is also very effective on DD but I can’t comment on this aspect yet as I haven’t had this treatment. In terms of cost, the injection unfortunately isn’t covered by Medicare or I don’t believe any health fund, but compared to out of pocket expenses/gaps for other treatments I think the cost will stack up, especially if you live in Brisbane and surrounds and hence little travel.

Best of luck to you,
Christl

Gary; Shall we talk rowing or sailing. And if you adjust per capita you get an amazing outcome. Oh and you might like to check out women's shot put or golf caddies. I know we missed out on the America's Cup this year but only because we armed our opposition.

As for the RT I Dr Dilley commented to me a couple of weeks back that the jury is out on RT. His comment was that the 5 year recurrence rate seemed to be statistically the same for people that get Rt and those that don't. I didn't ask where he got the data from so don't know if it is based on real stats or just anecdotal observations.

I guess I am taking the view that when all else fails I will have surgery again but in the mean time I will continue with my NA program.

I am seeing Dr Dilley next Tuesday for my first shot at NA in Australia. If i get the opportunity I will ask where he got the RT stats from.

Seph

Found this link for you medical people out there on Dr. David Chin's method...please let me know what it says in laymen's terms.

http://patentscope.wipo.int/search/en/de...;tab=PCT+Biblio

Gary ,
Thanks for the response as for me I decided to try adipose tissue stem cell injections and unfortunately they have triggered an angry response from my feet. I have been looking at stem cell and long story how it came about but decided to try it. I had also read as much of this article as I could:
http://www.researchgate.net/publication/...ren%27s_disease

Not having an affiliation with a medical hospital I couldn't read the whole article.

I had it intravenously and also injected directly into the nodules--that I think was the mistake.. it fired them up and now I am really struggling again. I still think this is a very good possibility but the method was definitely wrong. So I am headed back to San Antonio, Dr. Davis to see what he thinks. The nodules on the balls of my feet are much more visible and defined and my feet ache and feel like they are being pulled under.

Next step???
Penny