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Another Ledderhose Essen Radiation Expierence
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05/28/08 18:56
Franky 
05/28/08 18:56
Franky 
Another Ledderhose Essen Radiation Expierence

I have Dupuytren and Ledderhose both.

I went to Prof. Seegenschmiedt too (I just had to wait two weeks for an appointment). He decided to give me two treatments of 5x3 Gy (one in November 2007 and one in February 2008) to my right hand and right foot. The treatments had a significant positive effect both on my hand and foot (and the most important for me: I can walk again without any pain).

I would like to thank Wolfgang and the others for this crucial webpage.
My donation (http://www.dupuytren-online.info/donations.html) certainly does not cover everything this website provided to me!

I hope the work of Prof. Seegenschmiedt will be a source of inspiration for our Dutch specialists (and that one day, we will have listed a radiation clinic in the Netherlands too).




05/28/08 20:31
pixi 
05/28/08 20:31
pixi 
Re: Another Ledderhose Essen Radiation Expierence

Great to hear it, Franky. Do you have any signs of the condition on your left hand and foot? I have it mostly on the right side as well (only a small nodule on left foot) and was wondering how much they would treat during radiation. Also, do you have knuckle pads and if so did the doctor have anything to say about radiation on these?

05/28/08 22:53
Franky 
05/28/08 22:53
Franky 
Re: Another Ledderhose Essen Radiation Expierence

I have signs on my left hand and left foot too. Prof. Seegenschmiedt showed it to me, but he prefered to treat only the serious symptons on the right side (gives a good insight in the effect too). And yes, I have knuckle pads too but they it were not treated (I am not sure if radiation would help for that).

05/29/08 00:47
pixi 
05/29/08 00:47
pixi 
Re: Another Ledderhose Essen Radiation Expierence

Thanks. I am also going for a consultation soon so will report back. Have you decided to just live with the knuckle pads? I have one that started in Jan of last year, and I'd really like to see it gone!

05/29/08 07:41
Franky 
05/29/08 07:41
Franky 
Re: Another Ledderhose Essen Radiation Expierence

Yes, I have them for a number of years and I just accept them. They don not give any difficulties to me.

05/29/08 19:05
RodneyMurray 
05/29/08 19:05
RodneyMurray 
Re: Another Ledderhose Essen Radiation Expierence

Hi:
I'm new to this forum!

I too am a sufferer of both Dupuytren & Ledderhose on both hands and feet. I have had over 20+ surgeries, over many years, to have the nodules removed and of course they keep coming back.
The surgeon has now, 9 months after removing the latest batch of lumps on my feet, refused to go back in anymore on the feet saying he is destroying the pads.
The lumps are back with a vengence!
The lumps are at the met head area and shortly after walking any distance they turn into painful hot marbles.
I've tried the orthodic route to no avail.
What has helped a little, is the use of rocker bottom shoes (best are MBT's).
Question of the day for me to any that read this! Is there any modern technology that can help alleviate/improve this?

Regards
Rod Murray

05/29/08 19:26
Franky 
05/29/08 19:26
Franky 
Re: Another Ledderhose Essen Radiation Expierence

I understood that it is not impossible to give radiation treament after surgeries.
I understood that there should be no more open wounds.
Possibly you could contact Prof. Seegenschmiedt for further information.

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