| Lost password
471 users onlineYou are not loggend in.  Login
Bands
 1
 1
01/13/2012 02:08
peekaboo64 
01/13/2012 02:08
peekaboo64 
Bands

This is a weird and wild Disease in hands or feet or wherever you may have it. This is not a well known or talked about Disease. It frustrates me that even regular doctors are confused about it. Well I have a question is there a color band, a bracelet, like the for breast cancer or diabetes. Do we have any fundraisers for awareness or scooter-a-thons or anything like that ?? And if yes please forward the information to me please, and if not I wont ask why not only when and where do we begin to get it started. This disease isnt going away and its rare and one case differs from the next some of us have immense pain no matter what we have done to them and some of us they go away but come back later mad as heck. Please send me info. This is my disease: I have Plantar Fibromatosis, had surgery, steroid shots, orthotics, physical therapy,creams,oils and ointments,and radiation, I will not do surgery ever again and I am dealing with the pain through pills and 2 wonderful doctors that monitor my lovely lady lumps. I want to reach out to anyone else that has done everything and they have returned, you are not alone the disease may be rare but we are not. We are real and have real pain and real lumps please let me get involved somehow... Thanks Becky ...

 1
 1
fundraisers   everything   wonderful   information   scooter-a-thons   wherever   bracelet   ointments   frustrates   doctors   returned   Fibromatosis   orthotics   surgery   Disease   awareness   involved   confused   physical   radiation