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Clinics in Germany
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Flame 

Flame 
Clinics in Germany

I've had three successful operations for Dupuytrens in the past 8 years and now most of my fingers are curling again. The nodules on my feet are numerous and large. I've lived with the nodules for 30 years but my big toe is curling and changing my walk. My foot is turning inward to compensate for the height difference due to the curling toe. I assume this will effect my knee and hip and eventually my spine. I was referred to Sloan Kettering Hospital in NYC last summer to see a Dr. about removing the large tumor which is curling my big toe down. The pediotrist I first saw said the nodule (or tumor) was too massive for him to deal with. He figured that a specialist who deals with tumors was the way to go. I waited 4.5 hours at that hospital and then was told that the Dr. was running late!! It was going to be at least another hour. I asked to have the X-Rays and any other scan while I waited but was told the Dr. hadn't scheduled any scans because this was just going to be a 15 min. consultation gor $680. When I asked who to submit my bill for 5.5 hours of waiting, they thought that was humorous! I'm done with U.S. medicine. I'd like to talk to some one who has tried the German Drs. Seems they have a better line on medicine and this problem. I'm hoping that radiation therepy may be productive. My email is yachtflame@yahoo.com for any one who can help or advise.

flojo 

flojo 
Re: Clinics in Germany

My doctors were Dr. Denkler for needle aponevrotomy on my Dupuytren's hands. He is also a hand surgeon and did many surgeries on hands before he found out about and started doing NA. Send him pictures of your hands. He'll let you know if he can do NA or not. He'll email you right back.
Dr. Tripuraneni at Scripps in San Diego did the radiation therapy on my hands. It stopped the progression. He may do it on Ledderhose, too.
Both names and other clinics are listed under the procedures on the left menu.
Don't hesitate to come back on and ask more questions.

flojo 

flojo 
Re: Clinics in Germany

I forgot to mention that Dr. Denkler is in Marin County, near San Francisco.

Gweneth 

Gweneth 
Re: Clinics in Germany

I agree with Flojo, if possible check with Dr. Tripuraneni at Scripps in San Diego, CA. He treated both my hands and feet, and Dr T. has treated several other patients with Ledderhose.

Flame 

Flame 
Re: Clinics in Germany

I'm kinda done with the American Medical System. $650 for a 15 min. consultation visit? This makes me not only broke but ashamed to be involved with the American Prima donnas. I read several contributations on this board referring to the German clinics, the Dr.s there and the costs of medical attention. I would rather go to Germany, see a little culture and still have some money to put towards retirement! Can any one help with contacting the German clinics. Do they speak/read English?
Wayne

Wolfgang

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Wolfgang

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Re: Clinics in Germany

Flame, if you are considering radiotherapy you might have a look at http://www.dupuytren-online.info/radiotherapy_clinics.html. The German clinics listed there at the bottom of the page all handle English speaking patients.

Wolfgang

didi20031

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didi20031

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Re: Clinics in Germany

Flame,

I don't know what you are looking for exactly

RT:
http://www.dupuytren-online.de/strahlent...e_adressen.html

surgery:
http://www.dupuytren-online.de/dupuytren...e_adressen.html

NA:
http://www.dupuytren-online.de/nadelfasz...e_adressen.html

These are German links, but its mostly addresses, so you don't really need to speak German. My Ledderhose started a few months ago and I have not had any treatment other than orthotics (which I don't use...) yet. So I am not an expert for sure (and I hope I never will have to become one!). But what I can tell you that I live in Austria (which is next to Germany; we speak German as well) and that usually all people who have studied at a university (like medical doctors) speak English. So, check out the links and write emails to some of the clinics/doctors; I am convinced that they will provide you with the information you need in English!

And... yes, I perfectly agree with you. The American health system kind of... sucks (sorry, I don't want to offend anybody!!). You have very well trained medical staff, but treatment is far too expensive! I am happy to live in Europe for this reason!

All the best!
D.

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