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Complications of Ledderhose?
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11/10/08 18:23
debrr 
11/10/08 18:23
debrr 
Complications of Ledderhose?

Does anyone know what complications can arise form Ledderhose disease when you don't do anything about it? Thanks!

11/10/08 18:40
Wolfgang

not registered

11/10/08 18:40
Wolfgang

not registered

Re: Complications of Ledderhose?

You might (not sure but might) experience increasing difficulties when walking, pain, and cramping. The nodules can get very big and, if the press on a nerve, they can become painful as well. Early treatment with radiotherapy can slow down or halt progression. Surgery might cause quick recurrence.

Wolfgang

11/11/08 07:11
newman 
11/11/08 07:11
newman 

Re: Complications of Ledderhose?

Hi Australia Calling.
My suggestion is don't wait.My mother had a saying:- "He who hesitates is lost". I have had radiotherapy on both feet and the results have been very promising. I had a cord and a nodule in the left arch and a cord in the right arch, which was detected during my initial examination. In between my first and second treatment a large lump developed on the ball of my right foot, making it difficult to walk. It is now 12 months since the initial treatment . I had the second treatment in May 08 on the right foot. (30 Gy.)
My left foot is back to normal and the right is such that the lump has softened and reduced in size. I now have no problem with walking.I can expect the results to continue to improve in the months ahead.
I have had Ledderhose for 8 yr approx in the left arch. The right foot developed after surgery in June 07 which triggered nodules in the hands as well as the right arch.Previously I wore orthodics to help with walking but since Sept.08 they are not necessaary. Hope this helps.

11/12/08 18:59
debrr 
11/12/08 18:59
debrr 
Re: Complications of Ledderhose?

Thanks! This helps a lot! Unfortunately, I have all ready waited a long time and now need to address it. I now have one in L arch and large one in R arch. It really, really helps when someone posts their experiences here. I am scared to have any more surgeries and am frightened at the prospect of finding a doctor who is not super aggressive with this.
I would like to start out with the least invasive method....(transdermal verapamil) and then go up from there.
The large one on my R arch seems to be causing my toes to curl a little. Is this even possible? I know walking has become more difficult and shoes require careful thought.
Thanks for all you input here!

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