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Does anyone know of a toronto or ontario podiatrist that has experience with this disease???
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09/25/17 22:29
dchandler7 
09/25/17 22:29
dchandler7 
Does anyone know of a toronto or ontario podiatrist that has experience with this disease???

I would be grateful for anybody who knows of a Podistrist that has experience with this disease in toronto or ontario, or even Canada.

05/18/18 03:49
greenlam 
05/18/18 03:49
greenlam 
Re: Does anyone know of a toronto or ontario podiatrist that has experience with this disease???

My chiropodist has only seen 3 cases of LD in his 30+ years of practice. He referred me to the best podiatrists in the GTA and I contacted several of them. The only treatments mentioned were Verapamil and cortisone injections. None of them know about or are willing to do enzyme injections. Collagenase is not approved for feet, only hands, and hyaluronidase is unknown to anyone I contacted.

I have since located a Buffalo podiatrist willing to do hyaluronidase injections, Dr. Breeann Wilson, who has spoken to Eddie Davis about his protocol. I have not decided to do it yet as I am having success with other modalities at the moment, but knowing she is nearby and has the equipment (ultrasound) and willingness to do the treatment is reassuring.

If you learn of any podiatrist in Canada who is knowledgable, I would be surprised but delighted to know about it. For me, the only treatment I am interested in is the Vitrase injections that Eddie Davis in Texas performs as the anecdotal evidence is pretty good.

05/18/18 05:22
Seph 
05/18/18 05:22
Seph 

Re: Does anyone know of a toronto or ontario podiatrist that has experience with this disease???

Guys; Don't forget the "do nothing" option.

Over the past 45 years with LD in both feet I have had periods where it has caused me pain but ignore it and push through does work.

I think that the growth of the lumps causes ligaments etc to be displaced and this causes pain but once this all settles down the pain goes away and you simply end up with another lump.

05/20/18 15:52
greenlam 
05/20/18 15:52
greenlam 
Re: Does anyone know of a toronto or ontario podiatrist that has experience with this disease???

Unfortunately, my lumps always cause me some degree of pain depending on how much they are flared up, just due to the fact that it is like walking on rocks and I have no padding on my feet. I think everyone's experience of this disease is different, so that may not be the case for all. I do non-medical treatments....but have been avoiding medical interventions due to the possibility of it making things worse.

05/21/18 05:12
Seph 
05/21/18 05:12
Seph 

Re: Does anyone know of a toronto or ontario podiatrist that has experience with this disease???

Hi greenlam; I don't want to give you the impression that I haven't had to deal with significant pain from time to time. My experience though is that by pushing through and not protecting my feet the pain does go away.

I have had surgery once and the lump returned in the same spot but twice the size. In my twenties the lumps in the arches of my feet would rub on the on my shoes and I would get blisters but after a time the skin became leathery and the blisters stopped.

In recent years I have had new lumps form forward of the arches. I enclose an image of my most recent troublesome problem (Apologies for the gross image of an old foot). For several months this caused significant pain due, I think, to pressure on surrounding bones. I was contemplating intervention when the pain started getting less. Now, once again, I have lumpy feet but no pain.

03/11/20 02:03
bybyboss 
03/11/20 02:03
bybyboss 
Re: Does anyone know of a toronto or ontario podiatrist that has experience with this disease???

dchandler7:
I would be grateful for anybody who knows of a Podistrist that has experience with this disease in toronto or ontario, or even Canada.


On my side both foot with large nodule no treatment yet but ''shopping'' thinking of RT or enzymes or collagenase but the point is finding a doctor who does it, I am in Lanaudiere, Joliette region in Quebec, Canada. If someone have a suggestion i'd appreciate.

Thanks

03/11/20 03:14
greenlam 
03/11/20 03:14
greenlam 
Re: Does anyone know of a toronto or ontario podiatrist that has experience with this disease???

I spent a lot of time on this and I’m pretty sure you won’t find anyone who is up-to-date on treatment such as hyaluronidase injections. They will offer you steroid injections. That’s it. If you want something different you’ll have to pay out-of-pocket to go to the United States. If I’m wrong about this I’d love to hear who you find! Maybe things have changed since the last time I looked. Best to you. I talked to two of the top podiatrist in Toronto area, referred by my chiropodist - he knows who is good. No luck.

05/05/20 03:59
Prof.Seegenschmiedt 
05/05/20 03:59
Prof.Seegenschmiedt 

Re: Does anyone know of a toronto or ontario podiatrist that has experience with this disease???

dchandler7:
I would be grateful for anybody who knows of a Podistrist that has experience with this disease in toronto or ontario, or even Canada.

Dear "dchandler7"

I have treated for several years quite a few patients especially with Ledderhose Dsease (primary advanced or even relapsed after previous foot surgery) with all stages / stage N - IV from CANADA due to lack of sufficiently experienced RT centers and trained RT doctors there with radiation therapy (RT) in our RT center in GERMANY.

However, due to the actual CORONA PANDEMIA and the related travel restrictions (probably until the end of May 2020) I can only offer you a SPECIAL MEDICAL VIDEO CONSULTATION of about 30 - 60 minutes length which will help you to evaluate the different treatment options including adiation therapy (RT) and the actual disease stage.

In case of interest - please contact me with full name, address, details of your disease and evtl. photographs of the affected hand palms - use the internet mailing address: prof.seegenschmiedt@gmail.com

With gratitude for all affected patients & medical colleagues who help to advance patient care,

Prof. Dr. med. M. Heinrich Seegenschmiedt, Radiologie am Stern, Bertoldstrasse 1 - 3, 45130 Essen
https://www.radiologie-am-stern.de/ueber-uns/


With gratitude for all affected patients & medical colleagues who help to advance patient care ...

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chiropodist   interventions   seegenschmiedt   hyaluronidase   knowledgable   experience   Unfortunately   podiatrist   toronto   injections   radiologie-am-stern   treatment   contemplating   restrictions   disease   dchandler7   ontario   out-of-pocket   intervention   Bertoldstrasse