| Every day management of Ledderhosen |
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01/26/2011 17:15
loonsong 
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01/26/2011 17:15
loonsong
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Re: Every day management of Ledderhosen
Cyclist:
Hi Loonsong
The connection between RLS and our condition was made on this website by others that have both in one or two threads I have read. I'm not sure about how this stands up scientifically, but who would know when no-one (except the patients suffering the condition) seems to know much about it 
I'm sure I will get the cream - do you mean the verapamil cream? However the pain in the nodules isn't the worst for me, it's more the nerve pain that bothers me at the end of the day. I will definitely use the cream if the nodules get worse, however I'm living in hope that the RT will stop the progression and reduce the symptoms
Di
Hi Di,
Have you tried Nuerontin for the nerve pain? Yes the verapamil cream some call it a gel It numbs my pain.
Loonsong
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01/27/2011 07:54
Cyclist 
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01/27/2011 07:54
Cyclist
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Re: Every day management of Ledderhosen
Hi Loonsong
I haven't tried any medication for the nerve pain as yet, because the pain improved on it's own. Also, I'm actually still working through possible self-inflicted causes.
I've experimented with when various physical activities start to affect the nodules and also to stop stretching my tendons and so far several days without horrible nerve pain!! 
I've been wondering about your flare-ups - how did you know it was a 'flare-up' and not 'normal' progression? I suppose because it settled down eventually? How would you define a flare-up?
Regards
Di
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01/27/2011 16:41
loonsong
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01/27/2011 16:41
loonsong
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Re: Every day management of Ledderhosen
Cyclist:
Hi Loonsong
I haven't tried any medication for the nerve pain as yet, because the pain improved on it's own. Also, I'm actually still working through possible self-inflicted causes.
I've experimented with when various physical activities start to affect the nodules and also to stop stretching my tendons and so far several days without horrible nerve pain!!
I've been wondering about your flare-ups - how did you know it was a 'flare-up' and not 'normal' progression? I suppose because it settled down eventually? How would you define a flare-up?
Regards
Di
Hi Di,
Flare up: my whole tendon across my instep cramped and stuck out about 1/2 and inch with bad pain suddenly (on both feet) with the nodules protruding. When the cramps subsided the nodules had enlarged and new ones had emerged.
There was nothing gradual about this it was all quite sudden and due to wrong orothotics and one time trying to go without my othotics and wear a flexible shoe for an hour and half for Qi Gong and T'ai Ji. I learned my lesson.
Having fibro may make my feet more sensitive.
Loonsong
Edited 01/27/11 18:48
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01/28/2011 01:13
Cyclist
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01/28/2011 01:13
Cyclist
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Re: Every day management of Ledderhosen
Hi Loonsong
Eeek  . I'm glad you now know how to avoid these flare-ups and I hope you don't get anymore
All the best
Di
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01/29/2011 12:16
wilsongolfnot registered
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01/29/2011 12:16
wilsongolfnot registered
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Re: Every day management of Ledderhosen
Hi
I learned my lesson also the HARD WAY.
My osteopath recommended that I stand in mountain pose (yoga) without my socks and shoes (with orthodics) for 5 minutes a day. It felt wonderful. I increased the time to 8-10 minutes.
HOWEVER i then decided to go shoeless and sockless during a yoga session. I knew enough based on her recommendation that I not do downward dog. I felt WONDERFUL until the next day when the metatarsal area on left foot and all 5 toes flared up.
Motto: Only you alone know what is good for your body. "Listen to your body!".
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01/29/2011 17:00
loonsong
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01/29/2011 17:00
loonsong
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Re: Every day management of Ledderhosen
@wilsongolf:
Hi
I learned my lesson also the HARD WAY.
My osteopath recommended that I stand in mountain pose (yoga) without my socks and shoes (with orthodics) for 5 minutes a day. It felt wonderful. I increased the time to 8-10 minutes.
HOWEVER i then decided to go shoeless and sockless during a yoga session. I knew enough based on her recommendation that I not do downward dog. I felt WONDERFUL until the next day when the metatarsal area on left foot and all 5 toes flared up.
Motto: Only you alone know what is good for your body. "Listen to your body!".
Hi Wilsongolf,
Trial and error :) What is the purpose of standing on orthotics without at least socks to keep them in place? What harm can socks do? I think I would topple off mine because they are thick I can't picture this..... I love to do the standing warrior pose and the side angle pose.
I am very in tune to my body sometimes I wish I wasn't so sensitive, but I can usually tell before things get too bad and ward things off.
Loonsong
Edited 01/29/11 19:02
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01/30/2011 02:49
Cyclist
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01/30/2011 02:49
Cyclist
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Re: Every day management of Ledderhosen
@wilsongolf:
Hi
I learned my lesson also the HARD WAY.
My osteopath recommended that I stand in mountain pose (yoga) without my socks and shoes (with orthodics) for 5 minutes a day. It felt wonderful. I increased the time to 8-10 minutes.
HOWEVER i then decided to go shoeless and sockless during a yoga session. I knew enough based on her recommendation that I not do downward dog. I felt WONDERFUL until the next day when the metatarsal area on left foot and all 5 toes flared up.
Motto: Only you alone know what is good for your body. "Listen to your body!".
Hi @wilsongolf
How you would define the flare-up you experienced? How did it feel, look and how long did it last? What did you have to do to nurse your feet back to health?
Thanks
Di
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01/30/2011 12:37
wilsongolfnot registered
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01/30/2011 12:37
wilsongolfnot registered
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Re: Every day management of Ledderhosen
Just to clarify...
When I stand in mountain pose, I am standing in bare feet on the floor so that I can experience immediate feedback re: balance and weight distribution. I am also focusing on my breath ( inhale for 4 and exhale on 4). The result is a calming of my system, relaxing the nodules on both arches and re-alignment of my spine. Apparently walking on carpet is difficult. Since I live in Ontario, I find walking on loose snow also is difficult.
I return to the osteopath this week...I'll report back.
I was told by the chiropractor ( I will NOT see again .I will not waste my money) and the osteopath three weeks ago not to attempt to figure out what prompted the tenderness and tightening of my system's fascia. Just keep moving which is at times is easier said than done.
I also stretch and meditate every night. It is a given.
wilsongolf
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01/30/2011 16:57
loonsong
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01/30/2011 16:57
loonsong
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Re: Every day management of Ledderhosen
@wilsongolf:
Just to clarify...
When I stand in mountain pose, I am standing in bare feet on the floor so that I can experience immediate feedback re: balance and weight distribution. I am also focusing on my breath ( inhale for 4 and exhale on 4). The result is a calming of my system, relaxing the nodules on both arches and re-alignment of my spine. Apparently walking on carpet is difficult. Since I live in Ontario, I find walking on loose snow also is difficult.
I return to the osteopath this week...I'll report back.
I was told by the chiropractor ( I will NOT see again .I will not waste my money) and the osteopath three weeks ago not to attempt to figure out what prompted the tenderness and tightening of my system's fascia. Just keep moving which is at times is easier said than done.
I also stretch and meditate every night. It is a given.
wilsongolf
Hi Wilsongolf,
I practice Qi Gong and T'ai Ji the TJ every day so I understand what you mean.
When I lived 1/2 block off the beach in Bay St Lous, MS (Katrina ate my house) I used to go and walk on the beach every day. Back then I would wear my shoes far too long and the "spine" would break giving me no support at all.
The loose sand (and old shoes) was what caused the first pain in my farches (and I got my first orthotics - way before any nodules) and I had to give up walking at the waters edge or anywhere in the sand and I really missed this. Then I traded sand for hills when I made a move to the mountains (difficult with all the uneven spots in the grass and hills to climb with many rocks under foot).
My nodules showed when I was in the mountains, perhaps my feet where just being too stressed never having much of a chance to walk on flat land except indoors. They went undiagnsed for 2 years because the rheumatologist refused to look at them he said it was just fibromyalgia.
I am finally in the city in a valley where I can walk every day on flat grass or cement and I am thankful for this. Although we have had several inches of snow the last 2 winters since I have been here, the snow doesn't last too long.
Also when my condo was being built I requested hard wood floors and no carpets.
I imagine you have a good pair of boots for the snow with your orthotics in them..........?
Meditation (I actually took a course in it back in the late 60's through a Yogi but have been lax in doing it lately you have reminded me to get at it again it is so good for me
Loonsong
Edited 01/30/11 19:01
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01/30/2011 19:01
wilsongolfnot registered
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01/30/2011 19:01
wilsongolfnot registered
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Re: Every day management of Ledderhosen
Hi Loonsong-
For three weeks last December, I walked Siesta Key beach ( approx.3 miles round trip) on the hard packed sand. I could not walk on the soft sand as my planter fasc. on my left heel flared-up. Walking on the sidewalk tended to bother my hips. Most definitely, walking or biking on the flats is necessary.
Winter boots are out of the question due to the nature and severity of my feet. At one point I was wearing down a pair of running shoes ( saucony recommended by pedothist)in a month. Finally, a salesperson in Fit to Run store in Florida told me to have 2-3 pr. of shoes on the go. Wear one pair one day and the other the next. This gives the shoe time to decompress. I know when it is time to change shoes by an increase in knee or hip or outer leg pain. According to osteopath, the shoes are not the issue. I do not agree at this point.
I was also told by the osteopath not to walk on carpet. ( My husband has lost all patience at this point!) I also think the loose snow is difficult as well.
wilsongolf
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