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feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?
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05/01/21 11:18
dchandler7 
05/01/21 11:18
dchandler7 
feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

any info on this I would be grateful as i am in so much pain, my toes hav become stiff and feel like they are strating bend. i dont see any cords though, does ledderhose bend the toes like fingers in dupuytrens?

05/01/21 18:45
spanishbuddha 

Administrator

05/01/21 18:45
spanishbuddha 

Administrator

Re: feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

dchandler7:
any info on this I would be grateful as i am in so much pain, my toes hav become stiff and feel like they are strating bend. i dont see any cords though, does ledderhose bend the toes like fingers in dupuytrens?
Hi, the toes can curl due to LD, but it is unusual or rare, and there can be other reasons for toes curling. I think I would see a podiatrist who has familiarity with LD, hammer toe, mallet toe and and similar joint conditions for a diagnosis and further help. Best wishes SB

05/05/21 21:13
spanishbuddha 

Administrator

05/05/21 21:13
spanishbuddha 

Administrator

Re: feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

I just updated your guest box with a couple of texts.

05/07/21 01:22
Prof.Seegenschmiedt 
05/07/21 01:22
Prof.Seegenschmiedt 

Re: feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

dchandler7:
any info on this I would be grateful as i am in so much pain, my toes hav become stiff and feel like they are strating bend. i dont see any cords though, does ledderhose bend the toes like fingers in dupuytrens?


Dear Client / Forum Member "dchandler7":

It is important for any serious consultation to know the local status by photograph and learning much more about the history and development of your painful situation on the forefoot (one or both?).

Such a situation should be carefully examined by an experienced podiatric surgeon, specialized orthopedic physician or an experienced radiation oncologist / therapist. Useful imaging methods include ultrasound or magnetic resonance imaging.

Not knowing where you live and what other conditions you may have I would offer you to contact me under my personal E-mail address for any further (video based) consultation including the option of radiation Therapy :

prof.seegenschmiedt@gmail.com
.............................................................................................................................................................................
With gratitude for all affected patients & medical colleagues who help to advance patient care ...

Attachment
+Ledderhose - Basic Data - Form_08-2020.pdf +Ledderhose - Basic Data - Form_08-2020.pdf (1x)

Mime-Type: application/pdf, 83 kB

05/11/21 10:22
spanishbuddha 

Administrator

05/11/21 10:22
spanishbuddha 

Administrator

Re: feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

I answered your guest message via PM (also guest text). For ProfS views on second treatment, re-treatment, see here https://www.dupuytren-online.info/Forum_...48247359.html#6 and a UK doctors perspective here https://www.thedupuytrenspractice.com/20...erhose-disease/

07/22/21 01:39
Mlissabeth 
07/22/21 01:39
Mlissabeth 
Re: feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

dchandler7:
any info on this I would be grateful as i am in so much pain, my toes hav become stiff and feel like they are strating bend. i dont see any cords though, does ledderhose bend the toes like fingers in dupuytrens?
Hi there, I experience this on occasion, as well. My podiatrist just sent me for an MRI of my foot to see how deep my LD goes. We're potentially discussing surgery.
I take a calcium/magnesium/zinc supplement which actually seems to help me with and contracting or cramping I may experience.

Edited 07/22/21 01:41

09/18/21 07:30
debrr 
09/18/21 07:30
debrr 
Re: feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

dchandler7:
any info on this I would be grateful as i am in so much pain, my toes hav become stiff and feel like they are strating bend.i dont see any cords though, does ledderhose bend the toes like fingers in dupuytrens?

Hello!

I'm VERY sorry to validate that toes can bend! I can see cords though. PLEASE don't wait as long as I have to find out what is going on! I hope it is not LD but please try and find someone who can tell you as soon as you can. Good luck to you!

I am newbie again after being off the forum for many, many years. I was diagnosed with severe Dupuytren's a long time ago. I had 2 rounds of RT on both feet and 1 round on my hands for the lumps. I went to LaJolla, CA for RT. I thought all was good. The lumps are gone. I thought maybe I might die before I had to deal with all this again.

I know it is LD because I can feel the cords pulling throughout my hands and feet. All toes are bending except my big toes. Some of my toes are actually bent 90 degrees now. My hands will are not even close to being flat on a flat surface. I certainly did not know it could grow so fast! I am frightened!

In the meantime I asking for help again please. I am wondering if anyone knows if you can get Xilaflex (sp?) in your feet? I seem to be in a rapid growth phase once again in both my hands and feet. I'm being reminded daily with sharp pangs. I'm not sure what to do at this phase of my disease. I am currently in Phoenix, AZ and feel time is of the essence as my hands and feet are not functioning properly anymore. Anyone know of a good doctor I could see here? Do you think I could see the same doctor for my hands and feet? I would very much appreciate any help anyone can offer!

09/18/21 09:18
spanishbuddha 

Administrator

09/18/21 09:18
spanishbuddha 

Administrator

Re: feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

debrr:
dchandler7:
any info on this I would be grateful as i am in so much pain, my toes hav become stiff and feel like they are strating bend.i dont see any cords though, does ledderhose bend the toes like fingers in dupuytrens?

Hello!

I'm VERY sorry to validate that toes can bend! I can see cords though. PLEASE don't wait as long as I have to find out what is going on! I hope it is not LD but please try and find someone who can tell you as soon as you can. Good luck to you!

I am newbie again after being off the forum for many, many years. I was diagnosed with severe Dupuytren's a long time ago. I had 2 rounds of RT on both feet and 1 round on my hands for the lumps. I went to LaJolla, CA for RT. I thought all was good. The lumps are gone. I thought maybe I might die before I had to deal with all this again.

I know it is LD because I can feel the cords pulling throughout my hands and feet. All toes are bending except my big toes. Some of my toes are actually bent 90 degrees now. My hands will are not even close to being flat on a flat surface. I certainly did not know it could grow so fast! I am frightened!

In the meantime I asking for help again please. I am wondering if anyone knows if you can get Xilaflex (sp?) in your feet? I seem to be in a rapid growth phase once again in both my hands and feet. I'm being reminded daily with sharp pangs. I'm not sure what to do at this phase of my disease. I am currently in Phoenix, AZ and feel time is of the essence as my hands and feet are not functioning properly anymore. Anyone know of a good doctor I could see here? Do you think I could see the same doctor for my hands and feet? I would very much appreciate any help anyone can offer!
There are two podiatrists frequently mentioned on FB treating LD in Az they are Payam Sarraf at the Foot and Ankle Centre, Gilbert, and Shaun Simmons at the the Simmons Foot and Ankle clinic, Gilbert. Perhaps start there for the feet?

It sounds like further RT may be a possibility for your hand(s) on the basis that it helped once, and if enough time has elapsed a further round may be possible, although you imply your hands have contracture? At this stage the alternative would be steroid shots if there are inflamed nodules or cords, NA or Xiaflex. We list some Drs in Az here https://www.dupuytren-online.info/NA_list_North_America.html, a consultation to discuss options would be the next thing to do.
Best wishes SB

Edited 09/18/21 09:21

09/19/21 02:23
debrr 
09/19/21 02:23
debrr 
Re: feels like ledderrose is starting to bend my toe like dupuytrens. has anyone experienced this?

Dear SB,

Thank you, thank you, thank you for being the administrator of this forum for so long! (I remember you and wach from 2011, when I came on these forums) Thank you for your prompt response and dedication to these forums! You have to be a very special person to share your knowledge and be here for others for such a long time!

Best wishes always,
debrr

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