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Footless in Florida....
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07/22/21 02:17
Mlissabeth 
07/22/21 02:17
Mlissabeth 
Footless in Florida....

Hi there. I am Melissa. I'm 36 years old and developed my first plantar fibroma when I was 13. From the age of 13 to 33, I had a solitary PF which I believed was a Ganglion cyst. After a stressful period of time in my life, I developed lumps on the knuckles of my right hand as well as 2 more fibromas in my right foot. I was having intermittent right wrist and ankle pain and finally decided to see a podiatrist. She diagnosed me with LD. We have since started a regimen of injections. My fibromas break down well enough with the injections, however they've started growing rapidly it feels like. At 1 point, I think I had up to 6 fibromas. My disease has spread to my left foot as well but this is minor. My doctor still classifies my case of LD as mild.
I have recently started experiencing some "pulling" sensations in the second and third toes of my right foot. Subsequently, 3 weeks ago my left foot seems to have gone completely numb except for the inner mid foot. I go tomorrow to potentially discuss surgery.

Is anyone else able to feel it when the fibromas grow? I don't know if I'm just very sensitive or maybe it's that I'm constantly on my feet, but as soon as new ones grow, I know about it.

07/22/21 08:05
spanishbuddha 

Administrator

07/22/21 08:05
spanishbuddha 

Administrator

Re: Footless in Florida....

Hi Melissa. It's not clear what injections you have been having to hold things back? Steroid, Collagenase or a hyaluronidase mix as treated by Dr Davis in Texas? The other option that might be good for you to consider to hold things in check is RT. There are several places in Florida treating DD/LD with RT. Surgery is usually best left as a last option. Best wishes

07/22/21 12:46
Mlissabeth 
07/22/21 12:46
Mlissabeth 
Re: Footless in Florida....

I have only had the steroid injections. Do you happen to know the RT locations in Florida? That would definitely be worth checking into.

07/22/21 13:07
spanishbuddha 

Administrator

07/22/21 13:07
spanishbuddha 

Administrator

Re: Footless in Florida....

We list a couple on the website https://www.dupuytren-online.info/radiotherapy_clinics.html

The ackerman centre gets mentioned in a thread https://www.dupuytren-online.info/Forum_...1542654785.html

Theres also mention of a Dr. Lawrence Hochman of Florida Cancer Affiliates providing radiotherapy and Dr Alex Burnett at the Advent Health Daytona Beach Cancer Center.

There are others listed on the FB DART group see here https://docs.google.com/spreadsheets/u/0...LPV6sksVp1rl2Rs

08/29/21 14:52
Prof.Seegenschmiedt 
08/29/21 14:52
Prof.Seegenschmiedt 

WITHOUT RT CONSULTATION and Footless in Florida....

Mlissabeth:
I have only had the steroid injections. Do you happen to know the RT locations in Florida? That would definitely be worth checking into.

If you are interested in a VIDEO CONSULTATION you should structure your data somewhat

(1) PHOTOGRAPH or SKETCH from both FOOT SOLES with marked changes (see EXAMPLE)
(2) COMPLETE HISTORY and ANSWERS to the BASIC LEDDERHOSE DOCUMENTATION FORM (see attached form)
(3) CLEAR DEFINITION since WHEN and to WHAT EXTENT you have developed

--> NODULES (number & size)

--> CORDS (number & size)

--> SYMPTOMS incl. PAIN

--> FUNCTIONAL CHANGES (Limp or disturbed walking)

--- > PROGRESSION of at least 2 of the above FACTORS

My E-mail address is: prof.seegenschmiedt@gmail.com

Edited 08/29/21 15:02

Attachment
LEDDEEHOSE-TREATMENT DOCUMENTATION & PLANNING - Example_MHS(c)2021.jpg LEDDEEHOSE-TREATMENT DOCUMENTATION & PLANNING - Example_MHS(c)2021.jpg (3x)

Mime-Type: image/jpeg, 111 kB

+Ledderhose - Basic Data - Form_08-2020.pdf +Ledderhose - Basic Data - Form_08-2020.pdf (2x)

Mime-Type: application/pdf, 83 kB

08/30/21 02:47
floridagal 
08/30/21 02:47
floridagal 
Re: Footless in Florida....

https://www.facebook.com/groups/1652149925085536

https://www.facebook.com/groups/1462124944043779

https://www.facebook.com/groups/1622748151282109

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