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Has anyone had chemotherapy + RT treatment for Ledderhose?
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01/27/22 22:07
GaryCr 
01/27/22 22:07
GaryCr 
Has anyone had chemotherapy + RT treatment for Ledderhose?

Hi

I was just wondering if anyone has had chemo+RT treatment for Lederhose? Depending on my MRI's which I am waiting on through the nhs and potential biopsies, this may be the treatment option offered to me and was just looking for other peoples experiences.

I went from working full Time and studying nursing to now being limited to two days per week working and even that is a struggle between my lederhose and a bulging disc in my back. I have other conditions in my feet which I assume are due to my fibromas along with the way I stand for comfort, etc. These include degenerating bone amongst other issues.

I have no set income and not entitled to disability funding so I am unable to go private to get MRI's and treatments quicker.

I have attached images to show the extent of what one shift in work leads to with both feet 😪

Thanks

Gary

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01/27/22 22:33
spanishbuddha 

Administrator

01/27/22 22:33
spanishbuddha 

Administrator

Re: Has anyone had chemotherapy + RT treatment for Ledderhose?

GaryCr:
Hi

I was just wondering if anyone has had chemo+RT treatment for Lederhose? Depending on my MRI's which I am waiting on through the nhs and potential biopsies, this may be the treatment option offered to me and was just looking for other peoples experiences.

I went from working full Time and studying nursing to now being limited to two days per week working and even that is a struggle between my lederhose and a bulging disc in my back. I have other conditions in my feet which I assume are due to my fibromas along with the way I stand for comfort, etc. These include degenerating bone amongst other issues.

I have no set income and not entitled to disability funding so I am unable to go private to get MRI's and treatments quicker.

I have attached images to show the extent of what one shift in work leads to with both feet 😪

Thanks

Gary
Hi Gary

Sorry to hear the update on your situation. I wonder why chemo is being considered for you? Has some further diagnosis confirmed that you do not have LD with benign fibromas, and that in fact your lumps are a type of cancerous tumour, or maybe your oncologist has determined a specific chemo regime will target your fibromas? Just a bit puzzled having never heard of this before. Why not just RT as previously discussed? If the NHS is considering chemo instead of RT something does not quite add up.

Best wishes SB

01/27/22 22:40
GaryCr 
01/27/22 22:40
GaryCr 
Re: Has anyone had chemotherapy + RT treatment for Ledderhose?

Hi, thank you for your reply.

My oncologist wants results of MRI's and biopsies if my ortho consultant will agree to the biopsies to rule out anything else before starting Chemo/RT. I was shocked when chemo was mentioned and this has puzzled me too. I am just hoping that closer to the time that RT is the route we go down unless the other is necessary. This oncology consultant usually deals with benign fibromas in the neck, armpit, etc. and I think I recall them say that I was the first they have dealt with having fibromas in the feet.

Honestly I am getting to the stage of not knowing what to do or expect anymore. If I have these problems including the bulging disc which the nerve root injections only helped for a short period when I received them pre-christmas, and the radiologist stated that the injections will never be a long term fix what am I going to be like in 30 years at 60??

Gary

01/27/22 22:59
spanishbuddha 

Administrator

01/27/22 22:59
spanishbuddha 

Administrator

Re: Has anyone had chemotherapy + RT treatment for Ledderhose?

GaryCr:
Hi, thank you for your reply.

My oncologist wants results of MRI's and biopsies if my ortho consultant will agree to the biopsies to rule out anything else before starting Chemo/RT. I was shocked when chemo was mentioned and this has puzzled me too. I am just hoping that closer to the time that RT is the route we go down unless the other is necessary. This oncology consultant usually deals with benign fibromas in the neck, armpit, etc. and I think I recall them say that I was the first they have dealt with having fibromas in the feet.

Honestly I am getting to the stage of not knowing what to do or expect anymore. If I have these problems including the bulging disc which the nerve root injections only helped for a short period when I received them pre-christmas, and the radiologist stated that the injections will never be a long term fix what am I going to be like in 30 years at 60??

Gary
Ah OK. It seems like a reasonable approach if the oncologist has not encountered LD before. Do the scans and biopsies to definitively diagnose what it is. If LD is confirmed you should push for RT ahead of surgery. I'm sure you know bulging discs can be successfully treated, and if the conservative treatments are unsuccessful, then in most cases there are various surgical options depending on the site and situation that are usually successful. Tackle one at a time and try to stay positive about the outcomes. SB

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experiences   radiologist   Ledderhose   Lederhose   oncologist   treatments   successfully   unsuccessful   treatment   pre-christmas   degenerating   conservative   definitively   fibromas   consultant   injections   conditions   chemotherapy   biopsies   bulging