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How many are we?
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07/31/2007 15:37
helmet 
07/31/2007 15:37
helmet 
How many are we?

HI!

I´m a 31 years old woman from Sweden. I´ve got LD since 2001. My Granthmother that past away last year got a nodule 2004 and now my mother got one 2007.

I´ve removed one nodule with surgery 2001, and now I have 4 or 5 ( stopt looking at the foot).

My doctors doesn´t know anything and doesn´t belive there is a problem. They says its a rare condition, but i seems to me that thera are a lot of people with LD.

How many are we? and where do you live? Please tell me how old you are and where you com from, I need to know so I can stop feeling so lonly here in sweden :)

/Kajsa

08/02/2007 09:31
newman 
08/02/2007 09:31
newman 

Re: How many are we?

Hi Australia Calling, Firstly go and get another opinion . I went and sought the opinion of 4 Specialists before I felt at ease, after all its you they are going to work on.

08/16/2007 15:29
Issleib 
08/16/2007 15:29
Issleib 
Re: How many are we?

I have LD and so does my Father. The medical literature says about 5-10% of people with Dupuytren's have LD. But that number may be higher since people like my Father who are asymptomatic don't bring ti up

04/12/2008 17:12
Debra 
04/12/2008 17:12
Debra 
Re: How many are we?

Hi,
I am a 34-year-old female from Wisconsin, USA. I developed lumps on my feet as a teenager, somewhere between 12 and 16 years of age? It's hard to remember the exact time frame. (One foot about two years after the other?) My father has them on his feet too, but they aren't as large and defined. He's a little more flat-footed than I am (...my arches are high), so I wonder if that is part of the reason for this. (He also has Dupuytrens in both hands & has had multiple hand surgeries since the early 90s.) I have never considered surgeries on my feet because my lumps aren't causing me trouble. The area of the lumps have grown over the years to be a little over an inch long along my tendon & about 1/2 to 3/4 inch wide & 1/2 deep. I'm not sure how that compares to other people's....I need to go back & read all of the other topics on this forum, since I am new to the website/forum!

Debra

05/07/2008 02:33
Pamella

not registered

05/07/2008 02:33
Pamella

not registered

Re: How many are we?

Hello
I don't know if I'm responding on the right board. I don't have LD...yet. I have DC in the left hand. I am a 51 year old female from Wisconsin.
Hello to you all. And a special hello to you in Sweden, you are not alone. Computers are wonderful for this very reason.
Loving those emoticons,
Pam

05/07/2008 07:45
Ian55 
05/07/2008 07:45
Ian55 
Re: How many are we?

Hello Debra,
I have the same situation ,2 lumps on the left and one on the right and I have had one on each foot since my early twenties (am now 55). I spoke to a radiologist who is currently treating my hand for DC and his opinion was that they should be left alone as long as you feel no discomfort. Should they get worse and you need to do something then radiotherapy seems to be the way to go. If you need any convincing touch base with Barry Newman (above) who I had great pleasure meeting ,he is a pillar of strength and has been thru it all.

05/07/2008 19:04
pixi 
05/07/2008 19:04
pixi 
Re: How many are we?

Hi Debra,
I'm new to the forum as well and amazed at how many other young women have this. I'm 33 and noticed the first lump on my left foot four years ago. I also have two smaller ones very close to each other on the right foot. They haven't changed much in size. A knuckle pad started last year and was finally diagnosed as DC.
Coincidentally all these symptoms started just after I moved from the US to the UK. The hand surgeon says it may have triggered the condition. Like you I've decided not to operate the feet but am considering removing the knuckle pad. Not sure yet about radiotherapy. It scares me.

05/08/2008 17:42
Linda B

not registered

05/08/2008 17:42
Linda B

not registered

Re: How many are we?

Hi there Sweden


There are alot of us.. Thank God for these forums..
I do not have it in my feet yet but..both hands..I have been to Dr. Eaton and love him..Did n.a. in 2004..Time for it again..No traditional surgery for me..
Ian55..please tell us about you radiation..I am in California..U.S.A. Mine developed , my dups..when I WAS about 58.....both my paternal cousins I have found out have it also...
also my next door neighbor....

05/08/2008 19:36
Ian55 
05/08/2008 19:36
Ian55 
Re: How many are we?

Hi Linda,
About my radiotherapy:
It takes only 2 minutes per area/nodule and is completly painless, I have 2 nodules between my thumb and forefinger with what seems to be the beginning of a chord between them so I get 2 bursts.The surrounding area that is not getting radiated is protected by a lead plate.
I just had the first session 2 weeks ago and I am doing the 2 visits at 2 monthly intervals over 8 months routine
which seems to be preferred down here in Munich as opposed to the 2 visit 5 day schedule that Prof. Seegenschmidt does up in Essen. So far I have had a tiny amount of dry skin which disappears when continually using hand cream and the nodules have got a little more sensitive, will keep the forum posted on how it goes.

06/30/2008 13:54
4shot

not registered

06/30/2008 13:54
4shot

not registered

Re: How many are we?

I am 25 years old from Alabama, USA. I have had DC since the age of 17. I have been thru 6 surgeries. The last being in January of this year. I finally had my small finger on my right hand removed. It was just easier to get rid of it after all the pain that it has caused. Not it actually feels free-er! This week, I am having surgery on my left foot where I have Ledderhose. This has been there for a bit over a year now and I work on my feet all day. I finally went to the doctor and he suggested that I remove it. Because I am no stranger to surgery, I said ok. To me, its just easier and I know it will have a better success rate. My grandmother has DC in her hand and my mom also has them in her hands and feet. She has been getting shots in her feet for the last few months and they DO NOT WORK.

Hope that helps spread the info a bit.

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