I've been following this and other forums for years and while many people have a lot of pain and discomfort from Ledderhose I have yet to read a post from someone completely immobilized by it. I don't doubt it could happen but most people seem to keep getting by with increasing sophisticated custom insoles, massage sandals etc. That, and possibly cryosurgery, is what I'd do if my Ledderhose became more of a problem.

There is a school of thought that says stay off your feet because it makes Ledderhose worse. Personally, I don't buy that theory. I was very impressed by a post from one guy who said his solution was simply to keep walking, running, and using his feet heavily until - as he put it - the disease simply lost its capacity to hurt him (or similar words). Maybe the nerves actually became desensitized, or maybe his brain adapted, but he felt he'd beaten it. Of course it all depends on how your individual nerves are affected.

I first noticed a significant lump in my arch at least 10 years ago. It has grown somewhat but causes me no difficulty as I've continued to walk and run extensively. From time to time I've gone through a period where it began hurt a bit, and that scared me, but I continued running and over days or weeks the pain went away. I'm not a doctor and this isn't a scientific experiment but I like to point out that one need not simply surrender to this condition.

Very carefully ... sometimes I try to avoid them.

Quote:

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... Wolfgang: ... How do you handle handshakes? It seems everyone wants to shake ones hand and I find it very unwanted.

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No pain at all at present. There were periods when it would hurt a bit when I ran - but after a couple of miles the pain would be gone.

Of course every case will be different, and who knows what the future holds in my case. But I've quit worrying about it.


I agree that whether Xiaflex will be effective for Ledderhose is an open question. So far it's been used to sever Dupuytren' cords by injecting a minimal amount, just enough to weaken the cord to the point that it can be snapped. A large Ledderhose lump is quite a different story. Maybe a series of injections over time could reduce and soften it to the point that it's not a problem.

PLEASE tell us more about this!! How bad is your Ledderhose? How did you know it was torn?

@jamesboris:

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My ledderhose cause a tear in my plantar fascia resulting in a year of healing