I have had this disease since February of 2009, probably sooner but that is when I found the funny little lump on the arch of my left foot. I opted for surgery in September unfortunately. I just couldnt take the pain anymore. I worked on my feet 6-7 days a week 12-14 hours a day I needed relief. Here is what I got. Surgery went well. The only pain was from the surgery. But then I have been wrong before.... It grew back in a different spot, I guess it was mad that the doctor and I evicted it from its home lol !
So then as I was healing I noticed several little lumps trying to stake claim to the arch on my right foot. I tried all the conventional methods and even vitamin e oil and peanut oil and different diets and stretching movements to no avail. So here is my update....
I have not worked since August 30 of 2009. Thank Goodness I have disability insurance. I am now trying pain patches 12 on 12 off to soon to tell if they really are working or I just think they are because I want them to. Either way it doesnt take away all the pain. But makes it numb. My regular doctor not my foot doc put me on a pill that helps with my foot getting ice cold or hotter that hades. My regular doctor also got me a handicap thing for my car so if I go to the store I dont walk forever getting in there and then walk a bunch to grocery shop. I try to do things in stages. Laundry to dishes as to not get to the point of pain. Because all of you know once you reach that threshold its a long journey back from the pain to normalcy. I have limitations and I was stubborn in the beginning but now I am slowly regaining life again. One day One step One chore at a time, Im not in a hurry and even though I still have pain (which I wish someone would tell me why the doctors wont give us pain pills to relieve our pain that only we know how bad it is) I do things slow and precise so I can have good days in a row. I also have figured out that extreme tempuratures make the nodules naughty and unhappy !! So I try to keep the house at a nice 69 degrees. Thought I would share some of my Ledderhose experience. Please feel free to correspond with me.

I am just trying to keep as active and as pain free as I can. I am scared to do much else to the left foot as it hasnt healed properly after surgery and has regrowth in the arch as well. My Doctor is very skeptical about RT . And my insurance wont cover it. So for now I just try to keep comfortable till there is a real cure. And there have been people on here reporting things that they have tried seemed like it worked only for the nodules to grow elsewhere or more in the same area. This is a very unknown and weird disease, I wish they knew more on why and how. Like I dont drink or smoke never have and I dont take medication for anything till now anyway. I am a female and I am 44 years of age. If you read the statistics I dont fit the why and who and hows. Oh and none of my relatives have it or had this or know of other members that have either. Just trying to help others as well. Would like to know though why some days even doing nothing can make the nodules angry?? Or is it just something that goes with this unknown and uncommon disease. I tell people what I have and they look at me like Im out of my mind. I am in my area at least trying to raise awareness of this terrible naughty Nodule Nightmare. I guess baby steps till they find a permanent cure not a temporary fix !!! Thanks for reading and responding.

Thanks! Since I have DD in my hands, your posts have given me a heads up to check my feet for possible Ledderhose\'s, just in case. It just makes sense to check before any painful symptoms show up. I certainly don\'t want it, but it won\'t hurt to keep a check on my feet. I\'m trying to be as much ahead of this/these diseases as I can.