Thats tough,

First question: is there DD or LD in the family? Secondly, I would find an expert on Pediatric Podiatry, I know that in Adults, large plantar fibromas can be radiated or injected with Steroids. Maybe you should contact Dr S. in Germany or Dr Wiess at VCU, see the RT clinics listed. To bad there is not a genetic test to test for DD.
I would be careful about more surgery, get several opinions.

Best,
Fjellver

Hi thank you to both of you for your replies.

http://www.dupuytren-online.info/Forum_E...tosis-1_24.html

Here is the link to my former post which explains's Ellen's full story. Unfortunately there is ledderhose and dupuytrens in both sides of our family - which obviously is not good news.

We are in the Uk and Ellens consultant has been really good so far but has said that to operate now on her feet is not within his skill which is why he has reccommended us to a plastic surgeon. Interestingly he hasn't reffered us to his immediate plastic surgeon he has decided that another guy he uses occasionally for my tricky things is where we need to go.

Do either of you know how i would go about contacting any of the Dr's mentioned?

Thank you again in advance

Zoe

Am going to stop off on the way home from work today to buy a tennis ball and start her rolling her feet on it can't see it will do any harm, i do massage it from time to time and she says it helps

Thank you Spanishbuddha i will look into that
Zoe x

Hi Larry
i completely understand where you are coming from - and as a parent i feel i have an impossible situation to deal with - she has today had to stop doing gym as her foot is hurting and spent most of her lunch time sitting with her foot up because it is hurting as a mum i just want it all to stop and for her to get on with being a normal child again.

| am also finding it so frustrating that there is so little information out there - and from my research so far it seems Ellen is the only child with this as trauma related.

The more i read though a consultant is going to have to go a very long way to persuade my husband and i that it is the right thing to do to operate

Zoe,

Have they done an MRI or CT to determine the exact cause of the pain. Maybe you stated that and I missed it. I have done a great deal of work with post-operative scarring, as a therapist. Scar tissue can often be the culprit in causing nerve and/or soft tissue pain. You need to be sure that isn't the case here. If it is, you certainly want to avoid any further surgey.
There are painless therapies that can reduce scar tissue, but would be of no benefit in reducing LD. For instance, pulsed ultrasound; phonophoresis; iontophoresis; massage all reduce scar tissue.
Be sure your MD is certain of what he is dealing with, rather than assuming the pain is from the LD.
Praying for your Ellen to be pain free.

Beth