My daughter has plantar Fibromatosis (2 | Ledderhose |

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My daughter has plantar Fibromatosis
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MHUNTER 

MHUNTER 
Re: My daughter has plantar Fibromatosis

i am 52 years old and have had these lumps on my feet since i can remember, my mother had them and my grandfather (his were in his hands). my mother had probably 13-15 surgeries done by a plastic surgeon in ny, because they keep coming back and she liked the attention. my mother had the same doctor try my foot out, and that was when i was 15 on crutches etc....i havent had anyone touch my feet since, but they have grown quite a bit in the last few years, my only problem is getting shoes, i now have small ones on the other foot and hand. i run 25 to 30miles a week and have been for a long time, i was really hoping i could do something more natural (anything non-surgical) i am in florida and would love to wear sandals, but my feet are really ugly!!! anyone have any suggestions?

newman 

newman 

Re: MHUNTER-LEDDERHOSE .

Hi, Australia Calling.
Firstly I would seriously look at the option of Radiotherapy for the long haul. In late 07 I was treated by Prof Seegenschmiedt in Essen Germany for Ledderhose in both feet. During my discussion with the Prof. who is also a runner ,he advised me to use a cream on the feet regularly, even Vasoline. ( He applies a liberal amount before a run ) I use a cream containing a high potency 10% of Urea which is not as messy, and retains the moisture in the skin. The Prof. recommended the Urea cream ,applying it at night and wear light cotton socks.
I now look for shoes ,that have a good soft shock proof base ,which reduces the impact. When I was diagnosed, I went and saw a Podiatrist who recommended that I wear authordics and only wear lace up shoes. I was told I have high arches ,which can also place a large amount of extra stress ,when you suffer with Ledderhose.
Do you have knuckle pads on your hands, as about 40% of suffers of Ledderhose have knuckle pads , which I discovered when reading "Radiotherapy for Non-Malignant Disorders" by Seegenschmiedt.
Hope this helps. Regards.

Edited at 24.02.08 05:52

Issleib 

Issleib 
Re: My daughter has plantar Fibromatosis

I use a replacement insole called superfeet. I get them at a store that fits boots for serious hikers. They fit the insole to your arch and then trim it to match your original insole which are removed.

Colleen

Carrie103us

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Carrie103us

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Re: My daughter has plantar Fibromatosis

I have a comment on the school's response to your daughter's needs. If you have a physician's diagnosis, your daughter qualifies for a legal documentation of disability called a "504." The school must accommodate her needs under the disability act. I have more information about this, but it is at my office. I am wondering if it is a state law that may not apply to you (I'm in Michigan), but I'm almost certain it is a federal law. Anyway, I think it is well worth looking into. There might be a similar law in your state. If you decide to go this route, get a statement from her physician, take it to the school, and request a 504 plan.

At the school where I am counselor we accommodate children with special needs and mild disabilities such as your daughter's. This includes children with back problems who need special seating, asthma conditions, rare conditions, even prolonged cases of mono. We are a very small district with very limited resources, and we manage to accommodate many individual needs. They are in my opinion, being ridiculous.

Lisa

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