Hi Mark

Hopefully someone else will post based on actual experience, but I don't think there is a one answer for all. You do need a confirmed diagnosis and most people with LD spend a lot of time finding the right shoe or trainer/sneaker that provides support and cushioning plus orthotic with holes cut out in order to continue their activities including walking. Whether this makes the fibromas grow more than they would anyway is unclear, but the goal for most people is to control the effects of pain during and whilst doing the activity, walking, sport, just working on feet all day, etc. Softer shoe or insole is not necessarily better but support plus some cushioning seems key. Someone else on here, I forget who, just continues to walk or do sport until the fibromas develop a callus, but this may not be general advice relevant to all.

If your diagnosis is confirmed as LD there are a couple of options for treatment, usually avoiding surgery, that offer some hope.

Edit to add, found the post by Seph https://www.dupuytren-online.info/Forum_...se-1_290.html#4

Best wishes SB

Edited 09/16/22 09:45

Thanks for the responses, which I guess are positive. I was worried people would say that they found resting their feet slowed the progression, and as soon as they started walking, it sped up. Then I would have the terrible dilemma of putting life on hold in order to prolong an active life.
I'm glad to hear that my instinct to just get on with life and deal with the pain is shared by others, so that's what I'll do.
Walking is very important to me for good sleep and sanity.
Meanwhile waiting weeks to see a general practitioner who will probably shrug, then months to see a specialist who will say "yep, that's LD, not much we can do yet", which is how it went with the DD.

Edited 09/16/22 14:37

Hi Bigal,

if you are suffering from Dupuytren's, you might start reading https://www.dupuytren-online.info/ and https://www.dupuytren-online.info/dupuyt...ontracture.html and take it from there. The text is easy to read and points to further pages on this website. If you have any questions, don't hestitate to ask them in this forum.

If you are suffering from Ledderhose (that's similar to Dupuytren's but affecting the feet), you mgiht start with https://www.dupuytren-online.info/ledderhose_disease.html and https://www.dupuytren-online.info/ledderhose_therapies.html .

Wolfgang

Edited 11/26/2023 08:18

Hi Chobe, and thanks for the interest.
I'm really happy to hear that the radiation helped you, but that's not something
that's offered here in Sweden. I could of course go to Germany as you did though.
For LD no treatment at all is offered, however bad, and they just
suggested I look into insoles. For DD, enzymes are not available,
but needles or scalpels, depending on the complexity of the case.

I've had my LD lump for 6 months now, and it has grown a little but no change in character.
Just as with my DD, I have the additonal problem that the nearby
joints are painful and inflamed. In the feet, that's metatarsalgia, and sesamoidititis.
These conditions arrived with and get worse at the same time as my DD/LD symptoms,
but all the doctors say it's not connected with the fibromatosis, which I find hard to understand or believe.

I found that 2 layers of memory foam insoles, and then silicone
metatarsal pads in shoes with solid soles lets me walk 6 miles on flat
surfaces, especially grass, so that keeps me sane. Uneven surfaces are a problem.

My DD however is progressing quite fast, with new nodes and chords appearing,
often after I have made the mistake of lifting something with a sharp edge, or otherwise overstressing my hands.

My left index finger has a growth between the MCP and PIP joints, which is starting to
contract, currently at 20 degrees. I seem to have a quite aggressive version that responds to trauma,
and I know that finger involvement doesn't respond as well to surgery as that in the palm.
So although I know 30 degrees is the normal measure of when to have surgery, I'm a bit reluctant to risk
destroying a semifunctional finger too early. But I know too late makes it even more risky.
Dilemma ! And the decision is complicated by knowing that it will take a month to see a GP to refer
me to a hand surgeon that will have a queue of several more months, so I need to do some prediction too.

So the summarise all that into an answer to your question, I'm afraid I don't have any useful information about treatment options for you.

Mark

AlfonsoMijas:

---

Hi, everyone,
I started noticing that my faccia got contracted in certain postures, for example when I was practicing karate at the end we always salute. Few months later I realized I had a lump by the time I had my foot checked with an ultrasound I had 5 lumps, this was in July. I did a lot of walking and cycling until September when I broke my ankle, not in the one with ledderhose, so I had to be for a moth without moving, since then my leg with ledderhose had to do a lot of effort to move myself around. There wasn't any other chance. I started dancing hip hop again, zumba, lifting some weight. In all this time I haven't notice any changes in my lumps, no matter if I was completly resting or overusing the leg.
From my point of view this desease hasn't been studied enough. I had been taking glucosamine and chondroitin a ( which I don't take anymore) and I am also prediabetic. I don't know if this has made me generate the desease.

when my leg feels stiff muy Ledderhose lumps hurt a little bit, if I stretch and massage the pain relieves. I am worried about my future because I am 60 and sport is very important for me. I live in Spain and would like to know a doctor specialised in this desease.