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Newby from Down Under
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10/08/17 20:41
Breakaway65 
10/08/17 20:41
Breakaway65 
Re: Newby from Down Under

Week 3 after 2nd round of RT.
Feet are still sore / sensitive, but much better, pain level left foot 3/10, right foot 3/10.
Today I will try doing my boot laces up while at work.
Staying on the pain killers at this stage as well.
Still using vitamin e cream twice a day.

10/11/17 09:20
newman 
10/11/17 09:20
newman 

Re: Newby from Down Under

Hi may I suggest you try to bath your feet in the evening in warm water and Epson Salts for 15 minutes. Maybe you should try to harden up the soles after soaking your feet by rubbing in an alcohol base liquid even methylated spirits for a week. In my case I reduced the application of the crème after 14 days. A trip to the beach walking on the sand does wonders.

10/13/17 09:57
Breakaway65 
10/13/17 09:57
Breakaway65 
Re: Newby from Down Under

Week 4 after 2nd round of RT.
Feet are are much better, tender to walk on and sensitive if I step on something while walking bear foot. Limping a little still.
Still not doing boot laces up while at work, if I do the left foot nodes hurt too much.
Off the pain killers now.
Still using vitamin e cream twice a day.
I am coy about using alcohol on my feet as I do not want them to dry out too much.
Going to the podiatrist on Monday to see what he thinks, hoping he will be a bit more helpful then last time, looking at inner soles to shed the load until seeing some results of the RT (hopefully).
I reckon I will cut back the cream next week to 1 application per day, after a shower each night.

Cheers, John

10/22/17 08:38
Breakaway65 
10/22/17 08:38
Breakaway65 
Re: Newby from Down Under

Week 5 after 2nd round of RT.
Feet are are much better, tender to walk on and sensitive if I step on something while walking bear foot. Limping a little less.
Managed to do my work boots up.
Still using vitamin e cream once a day.
Podiatrist, what a joke, wanted $600.00 for custom inner soles to shed the load were the nodes are!! Expect a year or 2 out of them.
A strange thing happen last Sunday, both feet shed large amounts old dead skin from the balls of both feet.

11/06/17 09:08
Breakaway65 
11/06/17 09:08
Breakaway65 
Re: Newby from Down Under

Been a couple of weeks since last update.
The rest of the soles of both my feet shed lots of skin.
Whilst my feet are sore to get started in the morning they are generally OK.
The nodes are still there and sore to touch, get a bit sore at the end of the day, but, I think there is a little improvement, which is promising.
Lets see in a couple more weeks.
Cheers, John

11/09/17 16:26
juanps2 
11/09/17 16:26
juanps2 
Re: Newby from Down Under

My name is Juan, I have just been diagnosed last week with LD and I am following your case to see evolution. I'm glad it goes better after the RT

Hug from Spain

11/24/17 21:12
Breakaway65 
11/24/17 21:12
Breakaway65 
Re: Newby from Down Under

Been a few more weeks since last update.
As of last week the skin shedding has stopped.
Feet are sore to get started in the morning or if I have been sitting for some time, however, they are generally OK.
The nodes are still there and sore to touch, get a bit sore / ache at the end of the day, probably a little worse from the last update.
What I have noticed is my feet are still very sensitive, crack / cut and damage easily.
I have been trying to increase the amount of walking I do, used to walk 2 kms plus each afternoon after work. This stopped when the treatment started. Started this up again this week and now my shins and ankles are painful, obviously stretching everything again.
Meeting with the Professor on 5th Dec.
It is amazing that during this recent events on my feet, how much weight you put on due the limited exercise, need to loose weight for Xmas

Cheers, John

03/07/18 03:53
numpty 
03/07/18 03:53
numpty 
Re: Newby from Down Under

Hi John,

I'd love to know how you're going. I'm another Aussie from western sydney looking for treatment options.

03/07/18 09:30
Breakaway65 
03/07/18 09:30
Breakaway65 
Re: Newby from Down Under

Hi Numpty

I has been about 6 months now, and the result, the nodes seemed to have stopped going and actually flattening out (no new ones that I can see).

Still sore it you stand on them, like walking on lucky stones or ladder runs, but, in general less painful.

The feet them selves are still dry and very tender, I very rarely walk around bare foot outside anymore, at least a pair of thongs on, where before I hardly worn anything outside. Hopefully this will improve.

The net result; positive, hoping for continual improvement.

In hindsight, I would try and take a month off after the treatment rather than work 11 hrs a day in work boots, or wait till retirement.

Would I do it again, yes with better planning.

My feet and ankles are very sore to start in the morning or after sitting some time, I reckon it may be due to my gate changing, with the reduced pain in the lumps I am walking differently and it taking time for my ankles and feet to re-align, (hopefully this is the answer).

Feet are still cold at night, actually cut back to 3 pairs of socks (summer) and sort of burning and cold during the day.
If you want to have a yarn, send me you number and I will give you a call, easier than typing.

Cheers, John

06/20/18 10:14
JonWalter 
06/20/18 10:14
JonWalter 
Re: Newby from Down Under

Is it okay for me to walk barefoot boots or with just socks ?
How about on an unclean, unsanitary environment?

The feet are very vulnerable for diabetics, I am told (not a diabetic) not to be without shoes, even in my own home by medical professionals, I would be surprised to hear different for people with specific, known vulnerabilities

Edited 06/20/18 21:36

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