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Problems with pain moving into ankle
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07/10/17 20:57
jeanierides 
07/10/17 20:57
jeanierides 

Problems with pain moving into ankle

Hello

Been aware of Ledderhose for around a year now. Started with large nodule on bottom of left foot centered under arch, podiatrist recommended custom insoles and instructed to wear good supportive shoes. I jokingly asked does this mean no more hot high heels? He had no sense of humor and said no more high heels at all. Geez. So off I went thinking that was that. Wrong. I also have dupuytens in palm of left hand which causes left middle finger to close. At that time I thought it was God's way of making me stop using the left middle finger to set other drivers right on the road. I thought that was funny. It was not funny as I found out I have a hereditary disease. I solved that by a doctor in Mexico who used needling and cortisone injection. Finger relaxed and I open it and stretch myself. I taught Yoga for several years before this all started I am 65 years now. I will not take pain medication just ibuprofen. All of this was bearable and I just dealt with it. Now my right foot is causing me to limp and I have 5 nodules under it. I have tingling, burning and pain most of the time. Thank you for this forum I have been reading many of your members threads. Lots of wonderful information. Now it's a question of where do I go from here if anyone has some good advice I'm open to any and all suggestions. I am an active motorcycle rider, horseback rider, avid gardener, manage my own business, and been very physically active my entire life and I refuse to give up.

Jeanie A determined Soul

07/10/17 23:05
spanishbuddha 

Administrator

07/10/17 23:05
spanishbuddha 

Administrator

Re: Problems with pain moving into ankle

Hi Jeanie

I like your attitude, keep on doing all the things you like and do your best to not let it get you down. I too avoid oral painkillers most of the time, relying instead on things like icing, TENS, pain patches, rubbing creams of various sorts. Try them, one may work for you.

Possibly your ankle problem is related to gait changes due to the fibromas? Searching for the right footwear for you with adjustments, even if home made changes to orthotics, may bring some relief.

The forum has all sorts of anecdotal suggestions, for example maybe a hot foot soak in epsom salts, and others; I always think nothing ventured nothing gained as long as you set a modest spending target in advance. You've seen Gary's blog? http://ledderhose.blogspot.co.uk

Is RT available to you as with the recent growth the time might be right, and helpful.

Best wishes SB

07/10/17 23:45
jeanierides 
07/10/17 23:45
jeanierides 

Re: Problems with pain moving into ankle

Hello SB,

Thank you for the optimistic suggestions. I will try the soaking recently had foot detox with a massage they say it releases toxins from the body. Not sure if that was helpful or not. Taking vitamin E , plus many other supplements. I am going to look into RT as there is documented results if caught early. I live in CA and so far the Doctors I have been to do not know about it. I am asking for a referral to UCSF for consultation for another opinion.
Again so many thanks for your advice it is very much appreciated.

Jeanie A determined Soul

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