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Queston for those who have had RT in LaJolla
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01/11/2011 00:59
debrr 
01/11/2011 00:59
debrr 
Queston for those who have had RT in LaJolla

I know you have LubaM!! Anyone else out there? I am curious, how many GYs they used per treatment? How many treatments? I know LubaM. stayed he stayed in Del Mar, anyone else have experiences on where to stay? Any side effects to be be prepared for?
TIA

01/11/2011 06:43
wach 

Administrator

01/11/2011 06:43
wach 

Administrator

Re: Queston for those who have had RT in LaJolla

You can find information on this web site, e.g. on http://www.dupuytren-online.info/radioth...literature.html. The maximum dose applied for Dupuytren's or Ledderhose Disease is 30 Gy. According to research by Seegenschmiedt's team 20 Gy seem to still give good results http://www.dupuytren-online.info/radioth...literature.html . A few clinics experiment with 15 Gy which would allow a later second round of treatment if required.

The fractioning of treatment, i.e. the splitting into several days and maybe with a longer break in between, is meant to give the skin time to recover and thus minimize immediate side effects.

Wolfgang

01/11/2011 20:55
Larry 
01/11/2011 20:55
Larry 
Re: RT concept in LaJolla - and best available data

wach:
You can find information on this web site, e.g. on http://www.dupuytren-online.info/radioth...literature.html. The maximum dose applied for Dupuytren's or Ledderhose Disease is 30 Gy. According to research by Seegenschmiedt's team 20 Gy seem to still give good results http://www.dupuytren-online.info/radioth...literature.html . A few clinics experiment with 15 Gy which would allow a later second round of treatment if required.

The fractioning of treatment, i.e. the splitting into several days and maybe with a longer break in between, is meant to give the skin time to recover and thus minimize immediate side effects.

Wolfgang

Only few groups have actually published their long-term results ! That seem s to me the best quality and clinical experience which a group can show to their potential patients . The longest experiene best data to my knowlege com from Germany

http://www.dupuytrensymposium.com/Abstra...nschmeidt_2.pdf

No other group has yet published larger numbers and better outcome ! LaJolla and others still have to make their proof !

Larry

01/12/2011 04:20
debrr 
01/12/2011 04:20
debrr 
Re: Queston for those who have had RT in LaJolla

Thank you Wolfgang and Larry for taking time to respond! It is much appreciated..

I read the article "Radiotherapy for Non-Malignant Disorders" Dupuytren's" and found it very difficult reading. I wish I could say I understood it all!

I also read RADIOTHERAPY FOR PRIMARY OR RECURRENT MORBUS LEDDERHOSE: 12 YEAR LONG-TERM OUTCOME OF A PROSPECTIVE PHASE 2 TRIAL. Yes, the Germans seem to have outstanding research and results!!

I really wish I could afford to go to Germany!! I am very lucky I can afford to stay in La Jolla for 2 weeks. I will be in financial trouble if I have to go back for another round of RT!

I really hope/pray we can all get the best possible treatment someday! For now, I have to settle for the best I can get.... and hope/pray for the best possible results!

Thanks for your input!

Debbie

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PROSPECTIVE   published   Ledderhose   appreciated   dupuytren-online   Non-Malignant   dupuytrensymposium   experiment   LaJolla   splitting   literature   information   experiences   fractioning   outstanding   treatment   Dupuytren   Seegenschmiedt   Radiotherapy   results