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Radius/Area of treatment for RT - your experience needed
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04/06/17 16:43
allisun 
04/06/17 16:43
allisun 
Radius/Area of treatment for RT - your experience needed

Hello,

I am looking at getting RT on my left foot. Since Dr. S is ill, I am going to an American doctor who mostly has experience with hands and not feet. I am concerned about the treatment radius being too small. Here's a photo of the area that was drawn (smaller circle is nodule, larger circle is treatment region):

https://goo.gl/photos/3NvR3jU2Jq31nckL8

If you've had RT for Ledderhose, please share your experience or any documentation you have on the region that was treated. Does mine look comparable, or smaller to the area you had done?

Thanks,
Allisun

Edited 04/06/17 16:50

07/12/17 23:59
Spradders 
07/12/17 23:59
Spradders 
Re: Radius/Area of treatment for RT - your experience needed

Hi, that looks similar to the extra area my son had treated by Prof S although I don't have photos of it. I can't find it now but I read about the additional radius that should be treated - it is a balance between treating the smallest area possible (to minisie risk) and successfully zapping all of the ledderhose.
Edit: there is a pic from the clinic half way down this page, showing a border of approx 1cm around a lump: http://www.dupuytren-online.info/radiation_therapy.html

Edited 07/13/17 00:58

07/13/17 11:07
Breakaway65 
07/13/17 11:07
Breakaway65 
Re: Radius/Area of treatment for RT - your experience needed

Allisun

I wish my lumps were that small, mine are the size of your outer circle in both feet

Cheers, John

07/13/17 11:11
Spradders 
07/13/17 11:11
Spradders 
Re: Radius/Area of treatment for RT - your experience needed

My 7 year old son's lump is even bigger (4.5 x 3.5cm as measured by Prof S).
Last night I found a tiny lump on my daughter's foot :-( Need to work out what RT options there are if Prof S is not currently treating patients.

08/22/17 19:16
LauraD 
08/22/17 19:16
LauraD 
Re: Radius/Area of treatment for RT - your experience needed

Hello.
I was diagnosed with Ledderhose in June. I was told I was going to have to have surgery by the VA and an outside ortho specialist. Thanks to the Ledderhose Blog, I researched radiation therapy and I am on my second round. So far, so good. Just a little tingling and dryness. According to the radiation specialist, my areas have decreased! I let you know more as time passes.
Good luck!

04/01/19 09:44
Maria123 
04/01/19 09:44
Maria123 
Re: Radius/Area of treatment for RT - your experience needed

Hola
Soy María123 me gustaría saber de tu experiencia resultados de la radioterapia estoy pronto a solicitar RT y probar antes de volver a operar ....diagnósticada y operada de ledderhose gracias un saludo...

04/01/19 10:25
Spradders 
04/01/19 10:25
Spradders 
Re: Radius/Area of treatment for RT - your experience needed

Hi - the RT on my son's lump seems to have stopped it developing. It has definitely slowed it down massively if it isn't completed stopped. Before RT the lump was developing rapidly. It doesn't work for everyone, but it generally seems to have very positive results for a condition that has few other treatment options. I think it is worth trying before having the lump removed.

04/01/19 11:09
spanishbuddha 

Administrator

04/01/19 11:09
spanishbuddha 

Administrator

Re: Radius/Area of treatment for RT - your experience needed

Maria123:
Hola
Soy María123 me gustaría saber de tu experiencia resultados de la radioterapia estoy pronto a solicitar RT y probar antes de volver a operar ....diagnósticada y operada de ledderhose gracias un saludo...
Hola
http://ledderhose.blogspot.com/2012/03/r...erhose-and.html is the most comprehensive resource for LD. The person who writes the blog went from walking with a stick to running marathons after RT for LD. Most people have a good outcome.

Did you see there is a Spanish forum https://www.dupuytren-online.info/forum_es/

04/01/19 16:49
Maria123 
04/01/19 16:49
Maria123 
Re: Radius/Area of treatment for RT - your experience needed

Gracias por el testimonio y pronta respuesta
Saludos

04/11/19 21:19
Maria123 
04/11/19 21:19
Maria123 
Re: Radius/Area of treatment for RT - your experience needed

Necesito información sobre algún posible médico en España para hacerme la radioterapia por favor ..

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