I was supposed to drive up to OK today for a meeting tomorrow w/ Dr. Herman. My foot is recovering from surgery and they told me the wound had to close up before I could have RT. It did, about 2 weeks ago, but I stopped wearing my special shoe and starting wearing my Uggs and a big line appeared in the middle of my wound and when I looked at this morning it had opened up and was bleeding a bit at the corner.

Sinking feeling as I pretty much knew RT would have to be postponed. I called up there and spoke w/ Dr. Matthiesen (sp?). He was very nice and helpful and told me if there was any doubt to reschedule. As well, there is supposed to be a big weather event (ice/snow/freezing temps on Tuesday so the clinic may shut down anyway). So, I will wait and reschedule when the foot heals up a bit.

Disappointing as I just want to put this behind me... Guess I just wait a bit longer. Impressed with the kindness and professionalism of the OU staff.

Hi Sooner,

How are you holding up? We haven't had school for the 3rd day in a row (Dallas area). Streets are still icy. I am so glad we did not come up! They said the clinic would probably shut down anyway.

I have not been to OK City. Driven by it on the way to KS (husband's family there). I have rescheduled for the week of Feb. 14th.

Any recommendations on fun things to do and see while I am there?

Hang in there! Warmer weather coming soon :)

Bleu:

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Hi Sooner,

How are you holding up? We haven't had school for the 3rd day in a row (Dallas area). Streets are still icy. I am so glad we did not come up! They said the clinic would probably shut down anyway.

I have not been to OK City. Driven by it on the way to KS (husband's family there). I have rescheduled for the week of Feb. 14th.

Any recommendations on fun things to do and see while I am there?

Hang in there! Warmer weather coming soon :)

Chobe2:

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Larry:

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I would be interested to learn which treatment schedule they use, since the issue of SINGLE and TOTAL DOSE for radiotherapy is discussed in other threads of this forum ... Larry

I would be interested in this also. I'm trying to decide between Germany and Oklahoma. La Jolla seems to be treating with a lower dose in 10 treatments and I've read that some have had reoccurrence within a year. Does anybody know how similar Oklahoma's treatment is to Hamburg's (which seems to be the most experienced and has excellent results)?

Thanks...Diane

For all those interested in RT SCHEDULES:

The OU-Concept : 7 x 3GY within 7 days is a big shot and its not the German protocol !

The La Jolla Concept : 10 x 2Gy within 12 days is a relatively lower shot but not the German protocol !

What I really dislike with these US protocols is that there have no published outcome data at all !

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The German Protocol proposed by the "PROF" was performed and evaluated for long-term outcome;
it uses two RT series of 5 x 3 Gy = 15 Gy within one week (5 - 7 days) separated by a break of 3 months !

The 7 x 3 Gy concept was applied within 2 weeks (14 days), but was used only for Dupuytren Disease ...

With these radiotherapy concepts good and long-term outcome have been documented and published!


Another German Protocol was similarly performed by Heyd et al. used an even higher single dose of 4Gy
applied up to a total dose of 24 - 32 Gy


I think after all these years of experience the German radiation therapists know quite well what is effective amd what is not ...

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Literature : Studies from Essen, Hamburg, Offenbach / Frankfurt and Erlangen all with higher single doses of 3Gy

1.
[Radiation therapy for Morbus Ledderhose -- indication and clinical results]. Seegenschmiedt MH, Attassi M.
Strahlenther Onkol. 2003 Dec;179(12):847-53. German. PMID: 14652674

2.
Radiation therapy for early stages of Morbus Ledderhose. Heyd R, Dorn AP, Herkströter M, Rödel C, Müller-Schimpfle M, Fraunholz I.Strahlenther Onkol. 2010 Jan;186(1):24-9. Epub 2009 Dec 28.PMID: 200821

3.
[Optimization of radiotherapy in Dupuytren's disease. Initial results of a controlled trial]. Seegenschmiedt MH, Olschewski T, Guntrum F. Strahlenther Onkol. 2001 Feb;177(2):74-81. German. PMID: 11233838

4.
Radiotherapy optimization in early-stage Dupuytren's contracture: first results of a randomized clinical study.
Seegenschmiedt MH, Olschewski T, Guntrum F. Int J Radiat Oncol Biol Phys. 2001 Mar 1;49(3):785-98.PMID: 11172962

5.
Radiotherapy in early-stage Dupuytren's contracture. Long-term results after 13 years. Betz N, Ott OJ, Adamietz B, Sauer R, Fietkau R, Keilholz L. Strahlenther Onkol. 2010 Feb;186(2):82-90. Epub 2010 Jan 28.PMID: 20127225

Edited 02/09/11 20:32