Went for my intial appt today at OU Medical center. I live here so I will have RT each morning for seven days. They are doing both hands and my left foot. My right foot has already had the tendon removed so not much they can do for it. DO NOT let them take your tendon out..talk to someone else first. Try this first. I have had nothing but trouble with my foot since they did the surgery. I cannot stand or walk for long periods of time until the pain is unbearable. Everyone if right...everyone at OU was wonderful today..actually looking forward to this. Never said that before about this disease.

Soonerfan:

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Had my first treatment today. Appt was at 7:10 got there about 6:50. I was at work by 7:50 that includes a 10 mile drive in morning traffic. I am so excited! any inconvenience or discomfort (nothing so far) this might cause is minor in comparision to the discomfort caused by the disease itself and surgerys. They are doing both my hands, I've already had 2 surgerys on my right hand, and my left foot. It's to late for my right foot, 2 surgerys on it and they took the tendon out. I asked Dr. Herman why my dr didn't recommend this 2 years ago instead of messing my foot up. He is as puzzeled about this as I am. I told him, I am a layperson, not in the medical field and I found you, why doesn't my doctor in the same city know about this. No answer.

Australia Calling. Hi Don't expect the cords in your hands to deminish. Radiotherapy is best on the nodules on the hands.
In my case the nodules disappeared the cord did not, but there has been no progression. RT on 2007 . Keep up the use of cream containing Urea to retain moisture and the removal of the old skin tissue. It seems to be different in the feet. The cords in the arches certainly softened and the nodules dimished. I no longer have to wear orthodics. Regards.

Edited 01/28/11 11:42

Hi LubaM. I have no new nodules. I previously mentioned that I had a repeat surgery in 07 and I believe the surgery triggerred the numerous nodules adjacent to the surgery which was on the index and thumb of the right hand . A larger nodule and the formation of a cord appeared on the index finger of the other hand which had also had previous surgery. My RT. was complex as I have 4 skin grafts which had to be protected. My right hand only received a single protocol 5 day treatment of 3Gy, Total of 15 Gy. All but one nodule in the target areas have gone. The secret is not to wait too long .At the time of the RT the nodule on the left hand was growing quickly , was quite red on the surface and I seemed to rub my thumb on the raised nodule. This area had 2X5X3Gy treatments. There has been no progression although I have slight contraction. Regards

Edited 01/29/11 15:38

It has been a couple of weeks since my treatments, have already noticed a change in the ones on my hands and in the arch of my foot...YEA!!!! I have had a couple of days of tenderness in my feet in a couple of different places, nothing too bad. lookinfg forward to more inprovement.