Hi everyone back in OZ for a while in the Sun. I'll just give my take. In 2007 I had RT by Prof . Seegenschmiedt in Germany on both feet. The nodule in the arch of the left foot has gone and the tendon has stretched giving me no further problem. I dispensed with the orthodics in 07 after having worn them for the previous 7 years. I do wear shoes with good soft inner soles. At the recent meeting of the Dupuytren Society in Munich Prof. Seegenschmiedt addressed the meeting which was made up of Surgeons and a few patients. I asked the question in relation to how young would he treat with RT. He told us of a young 10yr old male who had had surgery and the Ledderhose had regrown. He treated the youth who is now 19yrs of age with the Ledderhose in remission. The young man is now carrying out full sporting activity. Hope this helps.

Edited 12/15/13 00:11

How long ago since the procedure?.....

Thanks

Gazza

Edited 01/29/14 06:58

I received an injection of Xiaflex in the nodule on my foot in November of 2012. It is considered off label usage but the doctor, thankfully, was willing to try.

FLNative:

---

fjellver:

---

Dear FLNative,

How are you responding to your treatments?

I was wondering if you could tell me the name and location of the Doctor who injected Xiaflex into your LD nodule.?
It would be nice to know his/her formula.

Thanks,
Fjellver

Dear Fjellver and Amy D and anyone else interested,

I am through with all radiation treatments--I did two rounds are on my hands and feet (each separated by 6 weeks) and I have not noticed any improvement yet.

I think the nodule in my foot that the Xiaflex was injected into has shrunk and flattened a bit. It also seems a little harder and less painful. The doctor who injected is a hand doc and it was his first time trying it after I told him I would be willing to try it. I do not feel comfortable at this point sharing his name as I am not sure he wants it out there. And, I am sure he has not done it since.

Best to all!