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Looking for a bright spot.....
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11/11/2011 07:42
Russ 
11/11/2011 07:42
Russ 
Re: Looking for a bright spot.....

I am 51 and have had duputreyns since my early 20's. I live with nodules in both feet and knuckle pads on 7 of 8 fingers. I have had surgery once and NA twice with temporary improvement that has left me with binding scar tissue buildup. This year I tried Xiaflex with Dr. Denkler and I am very impressed. The enzyme actually dissolves tissue. Dr. Denkler was able to straighten my pinky joint that was frozen for years, he is very competent and has a great feel for the enzyme and NA treatments. He thinks that between these two treatments we can manage my condition ongoing so I can continue to play music and work with my hands, I am ever so grateful for Xiaflex and my Doctor.

11/16/2011 02:14
tiger77 
11/16/2011 02:14
tiger77 
Re: Looking for a bright spot.....

Thanks to everyone for your replies. Today, I had my appt. with Dr. and he really expressed xiaflex as his main strategy. that is unless my insurance doesn't pay for it. i'm waiting on word for that.....the alternative is surgery with the graft. i'll let you know how things turn out.

11/16/2011 16:39
flojo 
11/16/2011 16:39
flojo 
Re: Looking for a bright spot.....

Russ,
It's good to hear that The enzyme with Dr. Denkler was successful! With all that you've gone through before, you could be the "poster boy" for Xiaflex.

When I had NA for the 2nd time in July with Dr. Denkler, he described how he uses the enzyme. I seriously thought about it but my schedule did not allow me to go back for the breaking of the cords. Unfortunately, there will probably will be a next time and I will probably have Dr. Denkler inject the enzyme. His way of doing it makes sense and i have the utmost confidence in him. He does it all and knows which treatment will best work for particular conditions.

11/16/2011 16:45
wach 

Administrator

11/16/2011 16:45
wach 

Administrator

Re: Looking for a bright spot.....

Flora, NA can hold for quite a while. We just added a "5 years after" picture to our web site http://www.dupuytren-online.info/needle_aponeurotomy.html. The guy had worn a night splint for the first 3 months or so, maybe that helped.

Wolfgang

11/17/2011 05:10
flojo 
11/17/2011 05:10
flojo 
Re: Looking for a bright spot.....

Not sure that I posted, but Dr. Denkler prescribed a night splint and I had it made. Went back twice for minor adjustments, but it does keep tension on my fingers. Maybe it will help. Certainly won't hurt.

My disease is predominately in my palm, much more than my fingers. I'm not complaining about that at all, but it is different from most others. The contracture that is in the fingers works up from the palm. Now this new nodule is in the finger, but still low, barely above the CMC joint. Maybe it doesn't mean anything. I hope the time between the NA I had in July and the next one will be 5 years.

My left hand has nodules in the palm just below my index finger and just above the CMC joint in the same finger. Nothing in the little finger. Nothing in the ring finger. I may go back to Loma Linda UMC radiation for another consultation about RT, but it's only "active", as far as I can tell, in that finger and the web. However, there are cords that are tightening a little more. What to do! What to do!

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radiation   predominately   fingers   Seegenschmiedt   Looking   Strahlenzentrum   self-referral   dupuytren-online   Denkler   nodules   recommendation   dermofasciectomy   well-practiced   aponeurotomy   contracture   surgery   consultation   conversation   xiaflex   Unfortunately