As I was reading the forum today I noticed how many folks talked about their hope for a "cure." All of us benefit so much from this forum and all the work that Wolfgang and the Intl' Dupuytren Society do and one way to say thank you would be to make a year-end-- or any other time!--donation:

http://www.dupuytren-online.info/donations.html


or to their Partners for a Cure, the US Dupuytren Foundation which has just launched a new research project

http://dupuytrenfoundation.blogspot.com/


http://dupuytrenfoundation.org/
http://dupuytrenfoundation.org/Donate.html

As I was doing my year-end review of financials and my will today I noticed that although I have bequests to several non-profits in it, I have neglected to include the Dupuytren Foundation. Although I plan to live long and prosper, I need to fix this. Perhaps some of you might consider making a bequest to one or both of these very worthy organizations.

Some organizations use the motto, "Give 'til it hurts"-- perhaps DD patients should , "Give because it hurts!"

Thanks much, Wach, and all the other contributors that make living with this disease a little bit easier.

Diane

Edited 12/13/11 22:15

Flo-- the links were in my first email to which you responded:


http://www.dupuytren-online.info/donations.html

for International and

http://dupuytrenfoundation.org/Donate.html

for US

Diane

You are absolutely right: we can use any $, €, whatever currency for supporting patients and research. Although we are all working for the Society unpaid, we still incure expenses for this web site, for borchures, for supporting new country organizations, for press releases, for attending conferences, for the Dupuytren Award and and and ...

This is a great thread! Thank you for posting it!

Wolfgang

Same with me, Lori!

Diane,

By the time I found out that Scripps wasn't doing an appeal, found out that I had to do the appeal myself with no help from Scripps, and I got stuff together to send in, it was past the deadline for appeal to Medicare. I was then in the position to ask for a late appeal for good cause. Medicare denied that, and i could go no farther. So, I still do not know if they would have approved my appeal based on my case and documentation. At this point I'd be inclined to think they would not, but I really don't know for sure.


If anybody does get Medicare to pay for radiologist's planning and monitoring RT as well as the radiation itself, we need to know how it was accomplished. Then we would have precedence to use subsequently.