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FIXXGLOVE
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12/09/17 03:13
Emdoller 
12/09/17 03:13
Emdoller 
Re: FIXXGLOVE

Very happy to hear that. I too was told the same thing hence my regular updates.

I HIGHLY recommend you try it. I know there have been medical debates about whether it works or not but I’m telling you that for me it works!!!

Ed

01/15/18 05:45
Shoney 
01/15/18 05:45
Shoney 
Re: FIXXGLOVE

This may be a silly question and I am new to the disease, but would a person who has no contracture benefit wearing this glove while sleeping or even during the day if they don't work? Hubby thinks it will keep my fingers straight since sometimes I curl them while sleeping.

Thanks.

Shoney

01/15/18 07:21
wach 

Administrator

01/15/18 07:21
wach 

Administrator

Re: FIXXGLOVE

Hi Shoney,

this is not a silly but a very good question on which, unfortunately, only very few research is available. In 2002 Ball and Nanchahal investigated whether wearing a splint could avoid or reduce contracture http://journals.sagepub.com/doi/abs/10.1...899830200700302 . This was a small study with just 6 patients but it indicated that splinting can help. So it might be worth a try but you need to be consistent in wearing the splint, therefore the splint must be comfortable to wear.

But you might never get a contracture, even without splinting. This is still impossible to predict therefore you might as well wait a little and when you feel that cords are getting stronger and your finger starts contracting you can try wearing a night splint.

Wolfgang

01/15/18 14:20
Shoney 
01/15/18 14:20
Shoney 
Re: FIXXGLOVE

Thank you so much Wolfgang. Hubby is a rocket scientist and he is trying to understand the mechanics of the cords. We are still trying to digest this disease. I know on the Fixxglove website I believe it said not to wear it more than three to six months. I agree with you to let it progress, if it does, to determine whether to get one. I noticed Amazon has individual finger splints too. I just wish someone could determine if I will contract. RT may not be an option since where I live they don't have many ROs that are familiar with DD and my insurance won't let me go out of state. And I am finding out surgeons won't operate on you if you have had RT or Xiaflex.

Do you know how I can find out from individuals how RT worked for them? I just read on another forum it progressed her nodules.

Thank you for responding. I was happy when I saw your post this morning. I don't fit any of the criteria as far as genetic or diabetes and I am a health and fitness nut. This disease does not care. I did have a frozen shoulder in 2013 for two years and had a nodule removed in my left hand in 2014. I read the other day stress can trigger it. Your thoughts? In 2014 when I got the nodule my husband had a cardiac arrest in the beginning stage of building our retirement home out of state. I was told by four doctors he would not make it. My point is I have gone through a lot of stress. He did make it and the docs said he is nothing short of a miracle.

Sorry so long.

SHONEY

01/15/18 14:54
Stefan_K. 
01/15/18 14:54
Stefan_K. 

Re: FIXXGLOVE

On the question if a splint glove can prevent contracture I have a definite opinion based on my own experience. Yes it can if the growth of the cord is not too aggressive.

I had NA/PNF on my right hand pinky when it had contracted by about 20 degrees. I didn't know about radiotherapy or about splints then. Less than half a year later the same pinky started bending again, and that's when I looked into RT and started to wear a self-made splint glove at night. This has kept the contracture tendency in check for 2 1/2 years now. I am convinced that without the glove it would bend again, because the tension is still there. I conclude from this that it does make sense to start wearing a glove (and to look into RT) as soon as finger looses flexibility (finger lifting test) or at the latest it starts bending (cannot put hand flat on a surface anymore). As long as the fingers are straight and there is no tension, I can't see how the mechanical action of the glove could work. I am not wearing the glove on the left hand, although a nodule and cord has developed there, too, which unlike the first time around in the right hand I stopped with RT in the early stage.

I would recommend wearing a splint glove to anyone noticing the start of a contracture (while figuring out if radiotherapy is an option and instead of just waiting for the finger(s) to bend enough to become a candidate for NA/PNF) and to anyone who has undergone NA/PNF in order to prevent or delay recurrence of a contracture.

01/15/18 15:10
Emdoller 
01/15/18 15:10
Emdoller 
Re: FIXXGLOVE

Regarding the 6 month limit, I’ve been wearing mine for two years and it’s working well. I have no plans to stop.

Ed

01/15/18 15:15
wach 

Administrator

01/15/18 15:15
wach 

Administrator

Re: FIXXGLOVE

"Do you know how I can find out from individuals how RT worked for them? I just read on another forum it progressed her nodules."

You can e.g. search this forum ("Search forum") on the little menu or read "Personal experiences" on https://www.dupuytren-online.info/dupuyt...xperiences.html .

Wolfgang

01/15/18 15:22
Shoney 
01/15/18 15:22
Shoney 
Re: FIXXGLOVE

Thank you. Before the hubby even knew there was a glove out, he was thinking how he could construct one. We are calling today to order two. We saw some in Arkansas but they only had medium. The German site is in German. Do you know anywhere else to order them?

This forum has made me feel better. I love my other Facebook forum but I have to admit it scares me a little. I don't mind the cords or the one nodule (when it does not hurt) but it is the Unknown. We retired to Utah where we bought lots of water toys and are getting very active and then this DD comes up and it has halted my fitness routine but trying to have a better attitude. I am NOT a body builder but want to continue to work out and some posters on other sites tell me not to work out but this forum has told me to live my life and don't let DD dictate my life. For that I thank everyone here.

Shoney

01/15/18 15:23
Shoney 
01/15/18 15:23
Shoney 
Re: FIXXGLOVE

Thank you Ed. This is good to know.

Shoney

01/15/18 15:53
Emdoller 
01/15/18 15:53
Emdoller 
Re: FIXXGLOVE

Believe it or not, Check eBay.

DanMic Global FixxGlove Palmar Orthosis https://rover.ebay.com/rover/0/0/0?mpre=...%2F173039860281

Ed

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