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Forum for Dupuytren's and Ledderhose 
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  • Dupuytrens and Raynaud's
    • Dupuytrens and Raynaud's
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    01/07/2012 15:19
    txmike 
    01/07/2012 15:19
    txmike      		Dupuytrens and Raynaud's

    I am just curious if anyone else out there has Raynaud's phenomenon to go along with their Dupuytrens Disease. I have had Raynaud's for about ten years and the DD just poped up about three years ago. Prof. S indicated to me that there is some correlation between the two.
    01/07/2012 15:54
    callie 
    01/07/2012 15:54
    callie      		Re: Dupuytrens and Raynaud's

    Just curious, does your Raynaud's create a problem for you? Do you use Procardia as a remedy? If so, how does it work for you? I ask because my daughter has Raynaud's and since she used Procardia starting 20 years ago, she has had no problems at all.
    01/07/2012 16:35
    txmike 
    01/07/2012 16:35
    txmike      		Re: Dupuytrens and Raynaud's

    Oh yes, it creates problems for me. I can't be out in the cold for any length of time or my fingers turn ghostly white & go numb. Gloves are no help at all, I have a pair of the best ski gloves I could find, they do not help. Even in the summer, if I am in front of an air conditioner vent for very long it will happen. I have never heard of Procardia, but I will definitely research it. I take a low dose Cialias in the winter and it helps a little, cuts down the episodes about 30% but my fingers still "go dead" several times a day. Is Procardia a perscription med? I can ask my Dr about it, but he is the one that told me to wait until my fingers curled and have surgery!! LOL!!
    01/07/2012 20:06
    callie 
    01/07/2012 20:06
    callie      		Re: Dupuytrens and Raynaud's

    txmike,

    Yes, Procardia is a prescription med, but there is a generic form that is pretty cheap. I was just talking to my daughter as I read your post. It (procardia) changed her life as far as cold weather. She only takes a pill or two during a day when she will be exposed to the cold. She only takes it when she will be in a cold setting. It works almost immediately to open up the valves in the fingers. Our family doctor told her about it 20 years ago when she was a child. It has been fantastic and she no longer worries about the Raynaud's at all.
    01/07/2012 20:42
    callie 
    01/07/2012 20:42
    callie      		Re: Dupuytrens and Raynaud's

    I think there is some validity to the phrase you mention "I can ask my Dr about it, but he is the one that told me to wait until my fingers curled and have surgery!!"

    It is similar to the advice that has just recently come out about prostate procedures for men. Often it is better to wait and see if the disease becomes a problem because the preventative procedures can cause more problems than a disease that might not develop. I think that many realize that Dupuytren's for a large number of people never reaches a problematic stage. And, to do procedures early can produce a bigger problem than trying to prevent something that might not be significant.

    For me, I have had Dupuytren's dermal pits and small nodules in a hand for over 15 years and nothing has developed since 15 years ago. Absolutely no change.

    Edited 01/08/12 00:37
    01/07/2012 22:23
    Larry 
    01/07/2012 22:23
    Larry      		Re: Dupuytrens and Raynaud's

    Yes , RAYNAUD is an early sign of Hypoxia (low Oxygen for the hand tissue) which can trigger Onset of DUPUYTREN or LEDDERHOSE Disease ! Larry
    01/07/2012 22:54
    callie 
    01/07/2012 22:54
    callie      		Re: Dupuytrens and Raynaud's

    Larry,

    Could you direct me to the evidence that there is a connection between Raynaud's and Dupuytren's? I have been trying to find a study or other medical evidence of the connection for about five years, without luck. So if you have something, I would be interested.
    01/09/2012 14:30
    txmike 
    01/09/2012 14:30
    txmike      		Re: Dupuytrens and Raynaud's

    Thank you Callie, I will ask my Dr about a Procardia percription.

    I do find it interesting that nobody has said "yes, I have both", maybe I am the only one. It is a little strange though that I would have two fairly uncommon diseases of the hands.
    01/09/2012 15:46
    BRIANB 
    01/09/2012 15:46
    BRIANB      		Re: Dupuytrens and Raynaud's

    I HAVE BOTH OF THOSE CURSES ! THERE MUST BE A CONNECTION...
    01/09/2012 16:05
    callie 
    01/09/2012 16:05
    callie      		Re: Dupuytrens and Raynaud's

    txmike,

    Ask about the generic form of procardia (Nifedipine). There is information on the internet about the usage. The nice thing is that it only seldom needs to be used and acts rapidly when needed. I agree that there most likely is a connection. I would like to find a study that has been done that shows the connection.
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