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If you have this, ......
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07/19/2019 14:29
SunflowerSue 
07/19/2019 14:29
SunflowerSue 
If you have this, ......

Is there anything I can do that makes it better or worse?

If you have it & you use your hands frequently at your optional job, would less use of your hands extend the lifetime use of your hands?

Thank you.

07/19/2019 15:01
wach 

Administrator

07/19/2019 15:01
wach 

Administrator

Re: If you have this, ......

Who knows ... I would think that the individual progression of Dupuytrens is not predictable. Heavy use of the hand might aggravate the disease but it depends on the type of usuage and on your personal condition. If you like your work and don't feel you are damaging your hand with it, I would continue with it.

Wolfgang

07/19/2019 15:54
spanishbuddha 

Administrator

07/19/2019 15:54
spanishbuddha 

Administrator

Re: If you have this, ......

Can you tell us more? I play piano, play tennis but with a glove, have some special tools in the kitchen for tins and jars, use the correct tools for DIY or get someone else to do it, wear gloves for some gardening, don’t clap, avoid handshakes, don’t use my hands as a hammer type tool, etc. It helps me, .... in my head.

There are associated risk factors see here on smoking and some drugs https://www.dupuytren-online.info/dupuyt...ontracture.html and here for a more general list http://dupuytrens-society.org.uk/information/risk-factors/

07/19/2019 20:40
SunflowerSue 
07/19/2019 20:40
SunflowerSue 
Re: If you have this, ......

Hi! Thank you very much for taking the time to reply. I noticed a nodule on one hand in the past year. My other hand cramps sometimes.

My job is using my hands. I will give it up in an instant if I learn that would conserve my hand ability in the future. But so far, it sounds like it doesn’t matter.

I have never been a big drinker & have not done any real drinking for a long time. I have never smoked but was raised in a two parent smoker home.

I don’t think either parent had this that I know of.

So far, no one has noticed I probably have this except me. I am most Swedish & French with some Scotch Irish / English. I was born in USA & therefore am an American.

Thanks!

07/20/2019 06:56
spanishbuddha 

Administrator

07/20/2019 06:56
spanishbuddha 

Administrator

Re: If you have this, ......

If you do have further progression, consider the signs of candidacy for early treatment https://www.dupuytren-online.info/Forum_...1559373063.html and look up Stephen D Coon, Topeka, KS. But with a little care just carry on.

07/21/2019 20:11
BRIANB 
07/21/2019 20:11
BRIANB 
Re: If you have this, ......

Perhaps a steroid injection or a series of three injections may be helpful

07/22/2019 15:28
perico1127 
07/22/2019 15:28
perico1127 
PUSH UPS

Pedro (of Basque origin): Forgot to mention, as part of my exercise routine, to maintain upper body muscle mass and strength, I do 150 push ups every couple days with swivel handles, 4 repetitions of 40 each. I guess it might be years before I find out how much DD acceleration this accounts for. I'll be 76 by then, maybe.

07/22/2019 20:11
rockinroller 
07/22/2019 20:11
rockinroller 
Re: If you have this, ......

I think you'll find most studies into the root cause of this disease conclude that heredity is the most dominant factor. And I believe that DD is quickly being put on the front burner in terms of research and possible treatment options due to the increasing number of patients who are reporting this condition. I recall my grandfather back in the 1950s and 60s having some curled fingers, but I never thought much about it. My father informed me in the 1990s that his curled fingers were going to be surgically straightened, probably told me the disease name, etc, but it wasn't much of an impact to me I guess. Then, in my early 60s, I developed "bumps" which I thought were callouses at the base of my ring and little finger. Soon cords formed upward from those "bumps" and migrated up the finger (especially the pinky). Within a year my finger contracted about 40% at which time I started on the path to (1) identifying what this was. and (2) researching treatment options. By the time I decided on Xiaflex my little finger was almost touching the palm area--90% contracted. I suddenly became aware of the fact that both my father and his father had this disease (we are eastern European origin), and I also found out my brother has symptoms (my other brother does not, for some reason).

As more and more victims of this horrible disease come forward and get it diagnosed by a hand specialist, I believe we will see an acceleration in treatment options and possibly even some sort of atopical, non-invasive treatment. Right now there's no options that either are extremely effective and/or permanent to any extent.

07/22/2019 20:38
Stefan_K. 
07/22/2019 20:38
Stefan_K. 

Re: If you have this, ......

Every case is different and it may be too early to judge how long the effect will last, but in my case, after five years, with the combination of minimal invasive NA, radiotherapy and a splint glove my fingers have been straight and the youngest nodules have shrunk or gone away.. In that way I consider that my treatment has been highly effective, and this probably also because I got it early enough for all three approaches to be effective.


Stef

[57, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]

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