Leaving the dislocation aside, which I assume has been relocated, although maybe the joint is now loose (?), it's not clear why surgery is advocated. Is there a cord or cords in the palm responsible for the remaining finger misalignment? If so then maybe NA or collagenase could help. But really I do think the unusual nature of your condition requires an experienced hand surgeon to determine what is going on and what the options are.

Sorry for your situation oddjob....
I would consider looking at a treatment offered in Brisbane by Dr. David Chin. He is a plastic surgeon who has developed a Treatment for dups and related diseases.....he has treated approximately 100 hands with a claimed success of 95% for patient satisfaction. However, it has to be said that there is no independent clinical evidence to back it up....he has a patent on the treatment.....search Dr.David Chin patent and you will find the details.....but basically the treatment is supposed to "remodel" diseased tissue through injections of TPA...
I have followed the progress of one LD patient who posted on this forum over 2 years ago.....he is delighted with the outcome.....due to significant progression in my own LD I decided to have the treatment 3 weeks ago.....I will post my findings on the forum after 2 months....but in the short term I am delighted with the results.....the ballpark cost of the injections is 1200Aus
Wishing you the best of luck
Gazza

Edited 07/07/15 11:19

Thanks Gary for that information about Dr David Chin in Brisbane.

I searched and have read some patent documentation on his procedure, not pretending to understand the technicalities, I appreciate that this may be very positive.

I should be seeing my specialist in a couple of months time and will discuss the procedure with him. In the meantime I will continue to do more research.

This treatent could be quite beneficial to my condition because fortunately not suffering from curling of the fingers and very little loss of dexterity to date, I would certainly benefit from softening of the cords thus reducing the concaving of my palms.

Would you think Dr Chin would be open to me emailing him with details and photos of my condition with a view to being treated by him? I would be more than happy to travel to Brisbane to get both hands treated if this turns out to be as positive as it looks.

I await with interest the results of your treatment too.

Very best regards

Geoff.

Oddjob:

---

Thanks Gary for that information about Dr David Chin in Brisbane.

I searched and have read some patent documentation on his procedure, not pretending to understand the technicalities, I appreciate that this may be very positive.

I should be seeing my specialist in a couple of months time and will discuss the procedure with him. In the meantime I will continue to do more research.

This treatent could be quite beneficial to my condition because fortunately not suffering from curling of the fingers and very little loss of dexterity to date, I would certainly benefit from softening of the cords thus reducing the concaving of my palms.

Would you think Dr Chin would be open to me emailing him with details and photos of my condition with a view to being treated by him? I would be more than happy to travel to Brisbane to get both hands treated if this turns out to be as positive as it looks.

I await with interest the results of your treatment too.

Very best regards

Geoff.

terrys:

---

Hi Geoff,

I am the patient Gazza has referred to, I had my LD injected on my left foot some 18 months ago and so successful I am having my right foot done in August. Haven't spoken to Gazza since the days after his injections but sounds as if its as positive as mine was.

Dr Chin has agreed to discuss his treatment with Dr Eaton (Charlie) from the Dups foundation, I am acting as a "messanger" but will provide Dr Eaton with Dr Chins details.

Good Luck for the future, Terry

Edited 07/08/15 22:52