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dupuytrens and autoimmune arthritis
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09/25/2017 16:43
Sooki 
09/25/2017 16:43
Sooki 
dupuytrens and autoimmune arthritis

I'm new to the forum and thought I'd tell my story. About 5 years ago, I noticed the thick cord developing on the outside surface of my little finger. Both my father and sister had contractors at different times. It only took about a year and a half to bend to 40 degrees. I had surgery on it to scrape off the scar tissue.

The surgery was a success but immobilization afterwards was pretty hard on my finger. I also have arthritis from autoimmune diseases (lupus and Sjogrens). Every time I worked with the joint, the middle knuckle (PIP) would swell up in protest. Over time, I was able to both bend and straighten my little finger. But it didn't stay straight. Even wearing a loose brace, the knuckle would swell and start to hurt in the brace.

Over time, the thickened cord came back. This time, when the contracture was big enough, I had the Xiaflex injections. They worked great. I wish I had done them the first time. Mostly, because it didn't require immobilization of the finger. My knuckle was still a problem though.

It's been two years now since my last treatment. The finger is now bent at about 45 degrees. The cord didn't thicken at first - this appears to have been a knuckle contracture. But the lumps on my palm have been growing. And now I can feel a slight thickening along the edge.

I'm almost ready to contact the hand specialist again and see what my options are. Its pretty discouraging. My overall autoimmune inflammation complicates the situation. I'm open to any ideas or experiences people have had which could be applicable to my experience.

Thx

09/25/2017 17:10
wach 

Administrator

09/25/2017 17:10
wach 

Administrator

Re: dupuytrens and autoimmune arthritis

Hi sooki,

welcome to the forum!

I would think that you could easily have Xiaflex injected again and get your finger at least straighter. Splinting might help to maintain the result but you mentioned that your knuckle gets inflamed by the splint. How about a soft splint that just keeps the finger from contracting? I am having a similar problem with the middle (PIP) joint of my little finger. It tends to re-contract fairly quickly because it's joint contracture, too. For me most splints result in an inflamed joint but I am having less problems with the Fixxglove, specifically with the version where the support is on the palm side and the hand just rests on it. A picture of that splint is at the bottom of http://www.dupuytren-online.info/dupuytr...techniques.html.

Edited 09/26/17 07:59

09/26/2017 04:24
Sooki 
09/26/2017 04:24
Sooki 
Re: dupuytrens and autoimmune arthritis

Thanks for that suggestion. I haven't seen the glove before. No, I don't think that would hurt my knuckle. It reminds me that wearing the elastic tubes (like Ace bandage tubes) over my finger helped as well, but tended to cut off the circulation. The glove might be a good compromise.

10/07/2017 17:15
sandykel 
10/07/2017 17:15
sandykel 
Re: dupuytrens and autoimmune arthritis

Hi I hope you don’t mind me joining your thread this is my first time on this forum I have had Dupuytren for about 2years now it was your text about gloves that interested me because I need some help to support my palm when I am using my right hand I have being using cycling gloves because it as gel in the palm but it’s also my little finger on the right hand that needs some support as I am right handed would the glove you both mention would it be beneficial for me thank you

Edited 10/07/17 20:19

10/11/2017 23:54
Sooki 
10/11/2017 23:54
Sooki 
Re: dupuytrens and autoimmune arthritis

The glove I was looking at was more of a splint to keep the fingers from curling up after surgery. Probably not what you're looking for. Cycling gloves sound great for the palmar bumps. Have you googled (or checked amazon) for gloves with padded fingers? There must be some industrial use for such gloves. There were some that said anti-vibration gloves.

Edited 10/12/17 02:55

10/17/2017 18:29
bstenman 
10/17/2017 18:29
bstenman 
Re: dupuytrens and autoimmune arthritis

In your place I would be going on an elimination diet and trying to determine which foods affect my body's autoimmune system. Foods place stresses on our bodies by affecting the gut flora and we have a lot of chemicals being ingested that did not exist when our parents were growing up (including glyphosate which is in all the wheat and soy and most corn based foods sold in the USA).

Stress is another factor and learning to recognize triggers or initial symptoms of impending arthritis flare-ups and then altering ones behavior has been very effective. The medical establishment wants to treat arthritis by attacking the symptoms with drugs while ignoring the side effects and costs of those drugs and not exploring the root causes of the symptoms.

10/17/2017 23:57
Sooki 
10/17/2017 23:57
Sooki 
Re: dupuytrens and autoimmune arthritis

In this thread, I was more interested in ways to stabilize my knuckle contracture which came about after Dupuytrens treatments and presumably as a result of my overall inflammation. Yes, I've been on a modified autoimmune protocol (AIP) for about 4 years now. It makes a big difference. I've tried many diets throughout the years and this one seems right for me, although I'm always tweaking it. Diet doesn't do everything. I still take lots of meds. My knuckles still get inflamed.

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