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NA experience by Australian Users
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05/29/11 04:11
brianl 
05/29/11 04:11
brianl 
Re: NA experience by Australian Users

Hi Andy, I consulted with Dr Dilley last year but haven't head the NA treatment with him ( I did have a very successful NA with Dt Lermusiaux over 2.5 years ago ). Please let us know how you go with your procedure. When you say that your brother had most of his fingers removed by a surgeon, do you mean because of a DC condition or something else?

Kind regards,



Brian

06/21/11 16:00
Andy

not registered

06/21/11 16:00
Andy

not registered

Re: NA experience by Australian Users

Hi Brian

Sorry I have not replied earlier
I have forgotten my password again and the site is having difficulty allowing me to reset a new one.
Yes my younger brother had most of his fingers removed as supposed treatment for Dupytrens.
Does not seem to me that his doctor has my brothers well being at heart.
I saw a doc in Newcastle and he told me surgery was the only option, so i searched the net for alternatives.

Andy

06/22/11 02:39
bcarey 
06/22/11 02:39
bcarey 
Re: NA experience by Australian Users

Hi Andy,

I am another Brian in North QLD and have had a very successful NA on my left hand by Dr Green in the Gold Coast several years ago. It has not reoccurred in that finger. I am going to have NA on my little finger on the right hand by Dr. Ramaekers in Brussels Belgium when I visit Europe on holidays in August. Dr Dilley and Dr Green in Australia were reluctant to do NA on the finger because of the chance of nerve damage. I believe the risk is worth it as the alternative is open hand surgery.

I am fortunate in that my DC is very slowly progressing and it has not been a real problem.

I guess NA is not for everybody but to cut the fingers off without trying NA which is a very simple procedure seems to me to be a bit drastic. Did the doctor in Newcastle discuss NA with you as an alternative?

Brian C

@Andy:
Hi Brian

Sorry I have not replied earlier
I have forgotten my password again and the site is having difficulty allowing me to reset a new one.
Yes my younger brother had most of his fingers removed as supposed treatment for Dupytrens.
Does not seem to me that his doctor has my brothers well being at heart.
I saw a doc in Newcastle and he told me surgery was the only option, so i searched the net for alternatives.

Andy

06/22/11 04:45
brianl 
06/22/11 04:45
brianl 
Re: NA experience by Australian Users

Dear Andy,

That's an absolutely terrible story! How could that happen in Australia?

I had a perfect result with conventional hand surgery in Sydney in 1994 with Prof Bruce Conelly! Prior to the surgerymy little finger was bent 180 degrees - the tip of the finger was touching the palm of the hand! However, full recovery was several months with lots of hand therapy.

I discovered NA through this forum a few years ago and had a wonderful result with Dr Lermusiaux 3 years ago. He corrected a badly bent little finger of my other hand and other fingers with his amazing treatment. I'd seen Dr Green when she was still in Sydney and she was not prepared to use NA because, "The finger is far too bent for NA to be suitable"! Dr L said he uses NA on fingers much more bent than mine. It seems to me that the few doctors in Australia that use NA are simply not very experienced in the technique and are therefore overly cautious.

If you can't get the result you need with NA in Australia, either visit one of the doctors listed on the website in Europe or the US, or see a proper hand surgeon in Sydney or Melbourne. As far as I'm aware there is rarely a need for finger amputation because of DC.

All the very best to you, Brian and the others reading this thread.

Cheers,



Brian

06/22/11 15:48
Andy

not registered

06/22/11 15:48
Andy

not registered

Re: NA experience by Australian Users

Hi Brian and Brian,

My brother had surgery several times and nerve damage was so bad as to leave fingers totally useless. was a gradual progression ( or regression !!), to eventually removing fingers.
I believe there is a considerable risk that surgery may induce DC progression.
The doctor I saw, I did mention NA but he insisted that surgery was the only viable option.

It is good to hear that there is a competent surgeon available, thanks for that info.
But even still, I would be very reluctant to have surgery due to my fear of aggravating the condition, as I am sure that an injury is what set my DC into action.

So yes I suppose if Dr's are reluctant to do NA on mine then I will be saving for a trip overseas.

Thanks Guys

Andy

08/12/11 15:06
Andy

not registered

08/12/11 15:06
Andy

not registered

Re: NA experience by Australian Users

Well Im Off to Dr David Dilley's for a consultation, hopefully a successful NA procedure as well.
Pretty nervous

Andy

08/31/11 05:40
bcarey 
08/31/11 05:40
bcarey 
Re: NA experience by Australian Users

bcarey:
Hi Andy,

I am another Brian in North QLD and have had a very successful NA on my left hand by Dr Green in the Gold Coast several years ago. It has not reoccurred in that finger. I am going to have NA on my little finger on the right hand by Dr. Ramaekers in Brussels Belgium when I visit Europe on holidays in August. Dr Dilley and Dr Green in Australia were reluctant to do NA on the finger because of the chance of nerve damage. I believe the risk is worth it as the alternative is open hand surgery.

I am fortunate in that my DC is very slowly progressing and it has not been a real problem.

I guess NA is not for everybody but to cut the fingers off without trying NA which is a very simple procedure seems to me to be a bit drastic. Did the doctor in Newcastle discuss NA with you as an alternative?

Brian C

@Andy:
Hi Brian

Sorry I have not replied earlier
I have forgotten my password again and the site is having difficulty allowing me to reset a new one.
Yes my younger brother had most of his fingers removed as supposed treatment for Dupytrens.
Does not seem to me that his doctor has my brothers well being at heart.
I saw a doc in Newcastle and he told me surgery was the only option, so i searched the net for alternatives.

Andy



Hi Andy,

How did you go with Dr Dilly?
I have just returned from Brussels with Dr. Ramaekers doing NA on my little finger. I can report 100% satisfaction. My finger is now straight with no pain and as if it had never been contracted.
The procedure hurt a lot as she uses only small amounts of anaesthetic so as to prevent nerve damage. However once it was over, there was no pain and i could remove the small compression bandage within 3 days.

Regards,
Brian C in N Qld

10/19/11 23:50
brianl 
10/19/11 23:50
brianl 
Re: NA experience by Australian Users

Hi Andy,

Did you have your NA treatment with Dr Dilley?

If so, please could provide a report on same.

I need to decide whether to try Dr Dilley or go back to Paris where I know that the NA practitioners are extremely experienced.

Cheers,


Brian

01/15/12 08:19
brianl 
01/15/12 08:19
brianl 
Re: NA experience by Australian Users

Hi Andy,

If you're still logging on to this thread, please could you reply to my message to you of Oct of last year.

If anyone knows Andy, could they get him to contact me.

Cheers,


Brian

01/16/12 01:59
FOGG 
01/16/12 01:59
FOGG 
Re: NA experience by Australian Users

Hi all,

I have not posted here for some years - but I do visit the forum from time to time. I live in NSW.

I went to Florida 7 years ago and had 'Highly Successful NA performed by Dr Eaton... as at that time nobody was performing NA in Australia.
At the time I needed Ring and Middle fingers of both hands corrected at the knuckle joint, and some release work on my left thumb (web?)
The treatment was done over two days... and the duration was about 45 minutes each hand.
Dr Eaton is proved charming man and very expert at what he does.

Please excuse my lack of medical terns here

The 'Eaton' Treatment lasted about Three Years before the aggressive disease returned, but luckily by this time I found that David Hunter-Smith was now offering this service at his surgery in Mornington, Vic.
So I jumped on a plane with the wife, and both hands were sorted out in one two hour session at his surgery. The treatment was pain free (apart from the anaesthetic injections) and David was a charming man with an amazing reassuring bedside manner who treated me expertly while chatting away... My wife was also present to watch. (I had to look the other way) hahaha

Three and a half years on and this bastard condition has returned again - I am planning to see Dr. David Dilley this time as he is only an hours drive from me. I do not know too much about him other than he has connections with Dr Eaton and is obviously an advocate of NA.

So I will post here after my treatment is done and let you all know how i fared.

Best Regards to all sufferers

Steve Maher
NSW Australia

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