I was going through a recent account of my family history for one side of my family. I thought I was the only one in my family to have DD. I found that my great grandfather and a second cousin had it too. They sufferred with DD for most of their lives. Repeated surgery was the only alternative to them in the 1930s and 1940s. Eventually they gave up and lived with bent fingers. We can rejoice that we have alternatives.

My Father has it. He has had open surgery on both hands with recurrences on both. I'm very much afraid my younger daughter is getting it. at 27 that's awfully young. I have e-mailed both of my younger brothers and warned them that they are at risk and not to ignor nodules in their palms or go directly to OS. I think we need to have these discussions with family members. I mentioned my dups to a dear friend who is a nurse . Her Father and both brothers have it. She was under the impression that women didn't get it. The fact that as a woman I had it and that she was at risk really suprised her. We need to keep our family members in the loop