| Lost password
187 users onlineYou are not loggend in.  Login
New to this Site
 1 2
 1 2
04/30/09 04:28
nriedell 
04/30/09 04:28
nriedell 
New to this Site

Hello,

I was diagnosed about 2 weeks ago with Dupuytren's Contracture in both hands. My little finger on my right hand is 60% curved and my little finger on my left hand is 40% curved. My doctor wants me to have surgery immediately (within the next couple of months). He has also found nodules beginning under my ring and middle fingers as well as my thumbs. The pictures here scare me and I'm afraid to have the surgery. I am an artist and I'm terrified of losing my ability to paint.

Also, a friend of mine sent me this link:

http://www.fiercebiotech.com/press-relea...mmercialize-xia

I really need some advice. I'm the only person in my family who has this disease. I am a 59 year old female and I feel like I got gypped.

Nancy

04/30/09 06:05
flojo 
04/30/09 06:05
flojo 
Re: New to this Site

Where do you live? Even if you do not live in the USA, I'd suggest that you email pictures of your hand to Dr. Denkler and inquire about possible Needle Aponevrotomy. He'll email you back with his opinion. His contact info is under NA on the left column or here is it:

Dr. Keith Denkler (CHS)
275 Magnolia Avenue
Larkspur, CA (California) 94939
Phone: (415) 924-6010

email address: kdenklermd@hotmail.com

Web Site: http://www.plasticsurgerysf.com/dupuytrens/

I HIGHLY recommend that you consider NA first. It is likely to work and certainly is a first treatment option to try. Surgery can always be done later, but if you have surgery first, it limits the other treatment options later.
I had Dr. Denkler to do NA on mine and it was very effective. Mine was/is at an earlier stage, but NA is effective for what you describe. Dr. Denkler will be honest and describe what he thinks NA would do for you.
They are saying that XIAFLEXTM (clostridial collagenase for injection) is expected to be available next year. NA is available now and you are in and out in a single 1 or 1 1/2 hour appointment and likely no need for a follow-up appointment.

04/30/09 14:15
nriedell 
04/30/09 14:15
nriedell 
Re: New to this Site

Thank you so much for your answer. I happen to live in Santa Cruz so Larkspur is not that far. I will contact Dr. Denkler. Thank you again.

04/30/09 17:53
Mike S

not registered

04/30/09 17:53
Mike S

not registered

Re: New to this Site

Just thought I'd add my two cents. I had NA done by Dr.Denkler for a 95 degree contracture about 2 1/2 years ago. That has turned out to be one of the best decisions I ever made - period. I HIGHLY recommend considering NA with Dr. Denkler, especially considering that you are so close to Larkspur. (I flew up from LA).

04/30/09 20:17
peterm 
04/30/09 20:17
peterm 
Re: New to this Site

Xiaflex will receive FDA decision by August 28 of this year and if approved company says it will be set for US distribution 60 days later.

I have used Denkler twice and highly recommend him. First procedure in July of "07 was on both hands. One hand is still doing very will but second hand was redone in "08 and is again growing.

In both instances the recovery from NA was minimal. I could have played golf a few days after the procedure.

05/01/09 07:59
diane s

not registered

05/01/09 07:59
diane s

not registered

Re: New to this Site

yep, go see dr. denkler. its been three years since he did the mini surgery on my already beat up pinky and its still within a degree or two of what he straightened it to be. also had a couple of "tune ups" on a nodule and on web between fingers. he fixed that too and its great. all results better than i had hoped. much better long term than prior surgery.

06/07/09 20:58
Dell 
06/07/09 20:58
Dell 
Re: New to this Site

Interesting! I'm also a 59 year old female artist with Dupuytren's.

My father has extensive DC and has had both surgery on multiple fingers, then NA on one finger with Dr. Denkler. The NA finger has curved again but is not as bad as it was. As Dad is almost 87 he's decided not to bother having it done again. My sister has DC in both hands plus Ledderhose's disease.

I switched from watercolor to oil several years ago because of the problems with my hands. I did all my own framing and found that the matt cutter, wall cutter, etc. really aggravated the cords. Framing an oil is so much easier - wish I'd made the switch earlier. Do you also use framing tools? I wonder if this aggravates the DC.

I have cords on both hands/multiple fingers, but the only one curving and causing a problem is my left ring finger. It's curving at the PIP joint - which Dr. Denkler has told me can't be helped by NA. It's my understanding that the new enzyme treatment doesn't help the PIP joint either. I think I'd suffer through the surgery just to get rid of the ache in my palm. It's particularly bad at night.

I broke my right wrist three years ago - and managed to paint in spite of a splint to my elbow. Where there's a will there's a way!

06/07/09 23:59
donlewismd 
06/07/09 23:59
donlewismd 
Re: New to this Site

You sound like a perfect candidate for the needle procedure, as well documented in this forum it is done in the office and has a much quicker recovery than open surgery. I have been doing this for over a year now and trained with Drs. Denkler, Eaton, Kline and have had many happy patients.
see my website www.dupuytrens.biz for more info among many others available. I am located in Walnut Creek CA.
Don Lewis, MD

06/08/09 07:30
flojo 
06/08/09 07:30
flojo 
Re: New to this Site

Glad to hear there's another doc in California willing to step out and do what's best for patients. I love Dr. Denkler. He did NA for me in March, however you're more convenient since my son lives in Alamo.
I have a planning appointment for RA on Thursday with Dr. T at Scripps/La Jolla. I hope that stops the progression of my Dups. If not, I'm glad to have your contact information because it'll be NA again for me if/when contracture begins again.

06/08/09 14:54
brian123

not registered

06/08/09 14:54
brian123

not registered

Re: New to this Site

Dell...
I do not understand why you cannot have N.A. because your problem is in the PIP joint,
Dr. Eaton did N.A on my PIP little finger 95 degree contracture in January.
I wear a splint at night and the finger is STILL just about perfect.

 1 2
 1 2
involvement   contractures   successfully   surgery   procedure   dupuytrens   Denkler   Aponevrotomy   distribution   treatment   collagenase   mmercialize-xia   understanding   fiercebiotech   particularly   plasticsurgerysf   Contracture   appointment   considering   straightened