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Atypical S/S of Dupuytren's??
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05/10/2009 17:46
redridernewbie 
05/10/2009 17:46
redridernewbie 
Atypical S/S of Dupuytren's??

I'm a 27yr male from eastern U.S, for over a year now I've been dealing with pain, tingling burning sensation, stiffness, and weakness bilateral in both hands. Most of my pain and weakness occurs when I am gripping something small (e.g tools, pop bottles, pens). I have some pain and stiffness when I extend my hands, but most of my problems occurr when I am flexing(gripping) my hand. After using my hands for a period sometimes I get the tingling burning senstation especially at night. I having sever stiffness in the morning, but with some passive ROM the stiffness and sometimes tingling goes away and I'm left with just the pain when gripping. I have some involvement in the wrist the feeling of my tendons pulling tight. I've been seeing an RA specialist who is calling what I have as atypical dupuytren's. From what I've read my s/s are the opposite of Dupuytrens. My question is has anybody had or heard of these s/s and still be diagnosed with dupuytrens? If so was sugery or any other treatments successful? I'm having a hard time finding an anwser to my problem. I've looked in tensosynovitis, dupuytrens, and palmer fasciitis none of which explain my s/s. Any insight, help, or comments is much appreciated. Thank You.

05/11/2009 03:48
flojo 
05/11/2009 03:48
flojo 
Re: Atypical S/S of Dupuytren's??

Your symptoms are not totally unlike mine. I only have it in one hand. I do have weakness especially when gripping. I do have tingling/itching at times. At times there is pain that I would describe as a mild ache. I had stiffness or feeling of stretching across my palm and felt the stretching up into my wrist several times. There was definite tingling and aching at night and stiffness in the mornings until I had needle aponevrotomy done.

The stiffness was relieved by the NA except some in the thumb and where the nodules are in the palm of my hand. I still feel the itching/tingling in my palm. I am now pursuing RA and expect to have that done as soon as I have the 2 weeks in a row for the treatment - July.

Maybe you have been tuned into your symptoms and are catching it at a very early stage before nodules or cords are visible. Or maybe yours are developing deeper and they don't show yet (my speculation.) You didn't say that you have nodules/bumps. Without nodules, I'm not sure how they would know where the active areas are, but if it is Dups and they can locate the active areas, you may be getting it early when RA is supposed to be most effective.

It is weird and everybody's is a little different. Are symptoms in each of your hands exactly the same, or is each hand different?

05/13/2009 14:20
redridernewbie 
05/13/2009 14:20
redridernewbie 
Re: Atypical S/S of Dupuytren's??

Thanks for your input!
Sounds pretty much like me. I do have the same thing going on in both hands it started in my left then the right and now the right is worse than the left. From my own examination I feel what I would call nodules at the bases of my pinky finger. The bases of my other fingers are very tender I can feel what I would call lumps at the more tender parts or my knuckles. I've also found a nodule on a tendon in my forearm just below the wrist on my left hand and a little bit farther down on my right. Also on my right hand radial side at the base of my thumb I have a large knot that is very pain and interferes with the movement of my wrist and thumb. I think im going to look into another doctor. The last visit with my doctor wasn't very productive I get the feeling he really doesn't want to deal with this problem of mine. Thanks again for your input!

05/13/2009 15:22
flojo 
05/13/2009 15:22
flojo 
Re: Atypical S/S of Dupuytren's??

I think a second opinion would be a very good idea. Look at the clinics/practitioners who do needle aponevrotomy/NA. Are there any in your area? No matter where you live in the US, you are likely to have to travel, but there are some scattered up and down the East Coast.
You didn't describe any contracture, so NA wouldn't be a procedure that would address only nodules and lumps. However, the docs who do NA are knowledgeable about Dups and could surely give you a clear diagnosis. I am educating my GP, dermatologist, physical therapist, friends and even strangers in my town, because even those trained in the medical field know what it is but to wait until you hand is deformed and then have full surgery. My GP and dermatologist know differently now and were very pleased to know about what NA had done for me. If I get any contracture again, I'll be back getting NA. I won't even wait as long as I did before. Contracture only gets worse. It won't get better on its own.
Radiation therapy/RT is currently the only thing that will stop the progression. If you don't have contracture yet, it would be good because RT is most effective with early stages of Dups. Seems like I have seen young age as a factor they consider. so they might not want to do radiation. It's worth researching or asking about though.
Keep us posted on what you find out. We have a consortium of information gatherers on this website. Your input will help us all. None of us wants to be in this "elite" club, but we all are in it together anyway.
Good luck!

05/14/2009 01:17
beamer1 
05/14/2009 01:17
beamer1 
Re: Atypical S/S of Dupuytren's??

I am having pretty much the same symtoms as you are having. I had NA about two years ago but did not have these symtoms then so cannot comment on whether or not NA would help this situation. About two months ago, I started having almost constant pain in both hands, much stiffness in the morning, and tightness in the cords to the point that I have trouble doing things around the house. It gets worse when I have to grip something and when cutting the grass yesterday, the vibration of the mower made my hands much worse by the next morning. I now have mild contraction in both hands and will have NA done again but not till probably fall. I have developed a nodule on the middle knuckle of my pinkie and have to be careful not to bump it as it is also very painful. I also am looking for some relief so will follow your search and hope you can find something to help.

05/16/2009 16:19
redridernewbie 
05/16/2009 16:19
redridernewbie 
Re: Atypical S/S of Dupuytren's??

I have a feeling this is dups its just manifesting in a different way. I work in the health care field as a nurse so I have an unlimited supply of doctors and medical professionals. I've been told that the hospital I work for has a very good hand surgeon so I'm going to talk with him and see what he knows. Until then I'm going to continue to search the internet for more info. Thanks for your input I really appreciate it!

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