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Radiotherapy at Parkside Hospital, London
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06/30/10 11:42
Adrian

not registered

06/30/10 11:42
Adrian

not registered

Radiotherapy at Parkside Hospital, London

I have an appointment to see Dr John Glees at Parkside Hospital in Wimbledon for possible radiotherapy for my early Dupuytrens (growing nodules only in one hand). Does anyone have any experience of RT at this hospital or of Dr Glees?

06/30/10 13:59
watson

not registered

06/30/10 13:59
watson

not registered

Re: Radiotherapy at Parkside Hospital, London

No but I have recently been diagnosed, sounds like a similar stage to yours.
I am thinking about radiotherapy and Dr Glees at Parkside looks like only UK option.
I would be very interested to know how you get on.
Did you need a referral to get an appointment?

06/30/10 14:23
Adrian

not registered

06/30/10 14:23
Adrian

not registered

Re: Radiotherapy at Parkside Hospital, London

No, not for initial consultation but will probably need one if I decide to go ahead with treatment.

06/30/10 16:39
TrevB 
06/30/10 16:39
TrevB 

Re: Radiotherapy at Parkside Hospital, London

Be interesting to see a quoted price if they are happy to go ahead http://www.parkside-hospital.co.uk/conte...to_Parkside.asp

Wouldn't imagine that they'd do it through the NHS


Cambidgeshire, UK.

Edited 06/30/10 16:41

06/30/10 22:59
viking 
06/30/10 22:59
viking 
Re: Radiotherapy at Parkside Hospital, London

I am a bit new to forums but am really interested to hear how the radio therapy went. Looking at this website I realise I am at stage N so think I need to see the doctor to see if I can have the radio therapy as if it is good in the early stages then best to start now. I would like to know how old the others are who are having RT . I am 45 and my alm has that unmistakable lumpand tightness , it sometimes is even sore. My Dad has Dupuytrens so I know what to look for and expect. The injection looks promising although the bending back sounds a bit grim ( I don't do pain that well.... ) Interested to hear form others who are in early stages etc

Many thanks

07/01/10 16:20
lori 
07/01/10 16:20
lori 
Re: Radiotherapy at Parkside Hospital, London

MY Rt went well and I am in the US. I was 53 when Dup started, had RT at age 54 and will be turning 55 soon, (way too soon). My last RT was in August of 2009 and all is well. No new nodules or cords have developed. I regained most of the use of my hand back, tightening is all gone, and have great flexability. Not as good as before Dup's, but I am really pleased with the results. I would do RT again and again, if Dup's returns. Even if I only get a few years before it returns I will be so ever grateful that all the pain and discomfort are gone.

Lori

07/01/10 18:08
LubaM. 
07/01/10 18:08
LubaM. 
Re: Radiotherapy at Parkside Hospital, London

I am 67 yrs. old and I have Dupuytrens for about ten years in both hands and Ledderhose (LD) in my left foot. My right hand DD had a contracture in pinky that was too advanced, but I was able to have RT in left hand and left foot in Nov. 09.

Great results, so far, in left hand. The tightness is gone, I can open my hand much wider, the nodules that remain are much softer and many of them are gone. I had a very small cord running from the base of the index finger to the middle joint...the cord is gone. The constant itching and burning dissapeared.

In left foot I had two marble size hard nodules, they are much softer and much smaller.

I would repeat RT if necessary and for sure before any contracture occurs. I have had NA on right hand pinky twice. But its a stubborn contracture and its coming back slowly for the second time. PIP joint correction in the pinky finger are the hardest to correct. I'm glad RT was an option for my early stage Dupuytrens in left hand and left foot.

07/01/10 21:13
TrevB 
07/01/10 21:13
TrevB 

Re: Radiotherapy at Parkside Hospital, London

viking:
I am a bit new to forums but am really interested to hear how the radio therapy went. Looking at this website I realise I am at stage N so think I need to see the doctor to see if I can have the radio therapy as if it is good in the early stages then best to start now. I would like to know how old the others are who are having RT . I am 45 and my alm has that unmistakable lumpand tightness , it sometimes is even sore. My Dad has Dupuytrens so I know what to look for and expect. The injection looks promising although the bending back sounds a bit grim ( I don't do pain that well.... ) Interested to hear form others who are in early stages etc

Many thanks

If you're in the UK then I doubt that your GP will know anything about RT, you might have to educate him or her. Then finding an NHS supplier to carry out RT (not sure what the situation is with Poole these days?) might be a different matter.

I had my RT last year at 48 and things seem good at the moment. I was at a similar stage to yourself. I don't think that they are keen on doing RT to under 40s and if you've had it once then they'll not do it again in the same area!

Cambidgeshire, UK.

07/02/10 04:35
flojo 
07/02/10 04:35
flojo 
Re: Radiotherapy at Parkside Hospital, London

Viking, I was almost 70 when I noticed the nodules and other symptoms. Nodules increased a lot over the next year. I had NA to release mild contracture in my thumb and across my hand to my pinkie. I had RT a year later and it has helped a lot - stopped or at least significantly slowed progression, nodules reduced or disappeared, no itchiness, much better grip in my hand, much better span across my palm. Not that anyone is fortunate to have DD, but I am fortunate that I did/do not have significant contracture.
I am very glad I had RT. So far, it has worked for me. My hand isn't exactly the way it was pre-Dups, but it helped a lot and the results continue to be better than before RT.

07/03/10 14:38
viking 
07/03/10 14:38
viking 
Re: Radiotherapy at Parkside Hospital, London

Many thanks to all that replied . I am in the UK so sounds like I will have to tell the GP what needs doing . I hope that the NHS will give my hand a blast. I would like to get a few more years use before operations. My father has had operations on both hands and it lasted all of a year so I guess that is just the way it is:

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