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Forum » Dupuytren » Lady Knuckle pads 1
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05/31/08 13:24
dido

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Lady Knuckle pads

Hi there! I´m wondering if anybody also have symptoms like pain in other joints than the hands and feet or stiffness in for example ancles or muscles? Neither I nor my twin sister have arthritis, but both have lots of symptoms that seem to go beyond Dupuytren. We both have knuckle pads and lumps under our feet and the desease started about 3,5 years ago. We are now 31. By the way, does anybody know if mycoplasma infection can have a connection to Dupuytren? Greetings from Finland :)

05/31/08 15:01
pixi

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Re: Lady Knuckle pads

Hi, Dido. Your title made me laugh, quite an accomplishment given I've been quite self-conscious about my knuckle pad. I'm 33 and started with the feet four years ago; I was only diagnosed with DC when I showed my knuckle to a hand surgeon earlier this year. I have no idea about a mycoplasma connection. Other symptoms I've had which may or may not be related:

-numbness in the hand when it's really cold
-an episode about 8 years ago that the doctors labeled "reactive arthritis" when i experienced bilateral joint pain and stiffness
-plantar fasciatis when i was doing a lot of running (clearly early ledderhose)

Have you considered radiation? Surgery for the pads? And did you, by any chance, take Accutane/Roaccutane for acne? I did and have found several others in our age group who took it and now have DC.

Anyway, nice to meet another thirty-something woman on here.

06/01/08 10:49
dido

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Re: Lady Knuckle pads

Same same, after 3 years of running from one doctor to another, finally a hand surgeon diagnosed me (earlier this year)! He gave me 2 options: surgery or cortizon treatment. I can only bend the 2 fingers to 90 degrees and it hurts when I´m gripping things, so I chose surgery. He actually didn´t believe that cortizon helps anymore at this stage, but he was obliged to tell the guidelines that have been given . He didn´t say anything about radiation, however he called one of his colleagues that are performing research with a new drug that acts like cancer treatment, in other words eats away the knuckle pad. It will take several years though, before this drug comes out on the market; at this point there is still a big risk that it eats away a lot more than just the bad stuff, so it might leave the fingers uselessly hanging down from the hand. Good to know that there is an option with radiation and it seems to have gotten quite positive feedback from the people on this site!
Nope, haven´t needed to use anything for acne, but I must say that my (and my twin´s) skin have never been in such bad shape as it has been now for 2 years :( I thought you only needed to deal with pimples as a teenager :D You know what? My twin was suspected to have suffered from reactive arthritis for 2 years until now. I too have weired symptoms in my joints. My sick leave from the operation starts on tuesday and my twin is taking half a years vacation from dive instructing. This gives us ample time to try to find out what the underlying factors to Dupuytren could be. Not too many people though here with the lovely knuckle pads..

06/01/08 14:04
pixi

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Re: Lady Knuckle pads

Thanks, Dido. You're in a unique position to compare the manifestation of DC with your sister.

I hadn't heard about this new drug that eats away at the knuckle pads. Sounds scary! Are you having both pads removed this week? Best of luck and please keep me posted -- I'm thinking of having the surgery later this year but am looking into radiation first so will let you know about that as well.

06/08/08 01:24
moondanc

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Re: Lady Knuckle pads

Quote:




-plantar fasciatis when i was doing a lot of running (clearly early ledderhose)




I've had DC for years and recently developed plantar fasciatis. I'm quite curious as to why you say --"(clearly early ledderhouse)"-- why do you think this?

06/08/08 17:22
pixi

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Re: Lady Knuckle pads

hi moondanc. well, if DC and ledderhose are proliferations of scar tissue resulting from the body overhealing itself, i think the strain my feet endured from marathon training led to the plantar fasciitis which in turn resulted in the nodules we call ledderhose. i still think you need to have the "gene" though; many people with PF never go on to have the nodules. my mother has both ledderhose and DC, but she only began showing symptoms in her 50s and she wasn't as active in sports as me. i believe my running brought on the early onset of ledderhose; but , as i have mentioned in other posts, i believe taking accutane in my 20s was the clincher.

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