Personal experiences of Dupuytren's contracture and Ledderhose disease
While we describe on our web site several medical treatments and some of the background for Dupuytren's contracture and of Ledderhose disease, we believe it is equally important and helpful for patients to see how their fellow patients get along and to share their experience with treatments for Dupuytren's contracture or Ledderhose disease. Some of this can be found in our forum, but seperated over many topics in a manner that makes it hard to see the whole picture.
Here are some real-life stories, not systematically collected but added as they have come in. If you yourself have a story to tell, please send it to us and it might be included on this page as well.
Experiences with Dupuytren's contracture and its therapie
How Dupuytren's developed and is possibly linked to frozen shoulder and trauma from surgery: Anna's story
Living with Dupuytren's, how it affects piano playing, successful surgery but followed by rapid extension, not so successful NA, and some lessons learned: Daniel's story Enjoy watching Daniel playing piano (irrespective of Dupuytren's) on Youtube. Raytones is the band. No video but better sound and more songs on soundcloud.
NA, RT, and Collagenase:
Jonn's story : Experience of a Canadian with NA and RT in the USA and Germany (a really global story)
Mike's_story : Travelling to Germany, first for RT and later for NA
(2004; including travelling experience, hotel info, pictures)
Roger: Return to Hamburg (2013; including more pics, restaurants and shops)
Roger: Another trip to Hamburg my wife develops DD/LD, together we have (2015; additional hotels and locations)
Alastair, from the UK, gives a detailed account of his RT and his trip arrangements on
Nigel: Radiation therapy in Essen, Germany (last update: August 2008, now covering about 3 years)
Mike's experience with radiotherapy in Toronto, Canada http://www.dupuytrends.ca/
Needle fasciotomy (NA):
A video from a patient (Severt) searching for treatment of his contracted little finger and his results with NA video_fromWI
Jim's experience with Dupuytren's in Las Vegas.
Ron's experience with NA in Florida:
"From what I'd read, Charlie Eaton (that's how he introduces himself) is the go-to guy. So my wife and I took a mini-vacation in Jupiter--arriving two days before the procedure. Among other things, like kayaking down the Loxahatchee River, we found an amazing funky seafood restaurant called Little Moir's Food Shack.
As for the procedure itself, here's my hand about one hour after Dr. Eaton finished. You can see three little band-aids." - Comment from the Administrator: Unfortunately Dr. Eaton is not practicing anymore. He is now heading the Dupuytren Foundation.
In response to a NY Times article Ron comments on his experience with NA on YouTube , also showing his hands prior and after treatment.
(experience at UCLA, including pictures of the treated little finger)
This web page includes pictures to describe the treatment's effect.
Robert's story tells how he is managing to avoid contracture by daily massaging.
Experiences with Ledderhose disease and its treatments
An Australian experience in Hamburg (radiotherapy):
Ledderhose surgery & Garrod's Pads:
Page last modified: 01/14/2017