Personal experiences of Dupuytren's contracture and Ledderhose disease

 

While we describe on our web site several medical treatments and some of the background for Dupuytren's contracture and of Ledderhose disease, we believe it is equally important and helpful for patients to see how their fellow patients get along and  to share their experience with treatments for Dupuytren's contracture or Ledderhose disease. Some of this can be found in our forum, but seperated over many topics in a manner that makes it hard to see the whole picture.

Here are some real-life stories, not systematically collected but added as they have come in. If you yourself have a story to tell, please send it to us and it might be included on this page as well.

 

Experiences with Dupuytren's contracture and its therapies

 

How Dupuytren's developed and is possibly linked to frozen shoulder and trauma from surgery:

Anna's story

 

Living with Dupuytren's, how it affects piano playing, successful surgery but followed by rapid extension, not so successful NA, and some lessons learned:

Daniel's story

Enjoy watching Daniel playing piano (irrespective of Dupuytren's) on Youtube. No pics but better sound and more songs on soundcloud.

 

Experience with NA, RT, and Collagenase:

Bruce' story

 

Experience of a Canadian with NA and RT in the USA and Germany (a really global story):

Jonn's story

Travelling to Germany, first for RT and later for NA

Mike's_story

 

Radiotherapy:

Joe: how he learned about Dupuytren's and RT

Roger: a Canadian travels to Hamburg and gets radiotherapy

(including travelling experience, hotel info, pictures)

Roger: Return to Hamburg (including more pics, restaurants and shops)

Alastair, from the UK, gives a detailed account of his RT and his trip arrangements on

http://www.pushpullsigns.com/dupuytrensradiotherapy.html

Judith: Radiation therapy for Dupuytren’s Contracture in the UK
 

Nigel: Radiation therapy in Essen, Germany (last update: August 2008, now covering about 3 years)

Philip: long term experience (>9 years) with radiotherapy

 

Needle fasciotomy (NA):

Jim's experience with Dupuytren's in Las Vegas.

Ron's experience with NA in Florida:

"From what I'd read, Charlie Eaton (that's how he introduces himself) is the go-to guy. So my wife and I took a mini-vacation in Jupiter--arriving two days before the procedure. Among other things, like kayaking down the Loxahatchee River, we found an amazing funky seafood restaurant called Little Moir's Food Shack.

As for the procedure itself, here's my hand about one hour after Dr. Eaton finished.  You can see three little band-aids."

Ron at the beach, 1 hour after he had NA on this right hand.

In response to a NY Times article Ron also comments on his experience with NA on YouTube , also showing his hands prior and after treatment.

 

Richard's search for the right doctor

 

Collagenase injection:

Barry's story

 

Steroid injection:

This web page includes pictures to describe the treatment's effect.

 

Experiences with Ledderhose disease and its treatments

 

An Australian experience in Hamburg (radiotherapy):

Di's ("cyclist") story

 

Cryo therapy:

Bashkar's story

 

Pain drugs:

Paul's story

 

Ledderhose surgery & Garrod's Pads:

Rodney's story

 


Page last modified: 02/20/2014



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