Personal experiences of Dupuytren's contracture and Ledderhose disease
While we describe on our web site several medical treatments and some of the background for Dupuytren's contracture and of Ledderhose disease, we believe it is equally important and helpful for patients to see how their fellow patients get along and to share their experience with treatments for Dupuytren's contracture or Ledderhose disease. Some of this can be found in our forum, but seperated over many topics in a manner that makes it hard to see the whole picture.
Here are some real-life stories, not systematically collected but added as they have come in. If you yourself have a story to tell, please send it to us and it might be included on this page as well.
Experiences with Dupuytren's contracture and its therapies
Radiotherapy:
Judith :
Radiation therapy for Dupuytren’s Contracture in the UK
Nigel: Radiation therapy in Essen, Germany (last update: August 2008, now covering about 3 years)
Philip: long term experience (>9 years) with radiotherapy
Needle fasciotomy (NA):
Ron's experience with NA:
"From what I'd read, Charlie Eaton (that's how he introduces himself) is the go-to guy. So my wife and I took a mini-vacation in Jupiter--arriving two days before the procedure. Among other things, like kayaking down the Loxahatchee River, we found an amazing funky seafood restaurant called Little Moir's Food Shack.
As for the procedure itself, here's my hand about one hour after Dr. Eaton finished. You can see three little band-aids."
In response to a NY Times article Ron also comments on his experience with NA on YouTube , also showing his hands prior and after treatment.
Richard's search for the right doctor
Steroid injection:
This web page includes pictures to describe the treatment's effect.
Experiences with Ledderhose disease and its treatments
Cryo therapy:
Pain drugs:
Ledderhose surgery & Garrod's Pads:
Page last modified:
05/05/2010