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30yo male, just been diagnosed, questions on my diet and next steps.
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01/26/2015 19:02
Mr_C 
01/26/2015 19:02
Mr_C 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

Hi Wolfgang,

Thanks for the advice on the massage. I will look into the method a little more and perhaps try a similar approach. I guess there is no harm in trying.

Sadly I haven't found many convincing reports on the products they push outside their own website, which is certainly a little suspicious.

01/27/2015 02:19
Molloy 
01/27/2015 02:19
Molloy 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

Mr_C:

Has anyone had any experience with 'natural' treatments mentioned over at http://dupuytrens-contracture.com? They claim to be an Institute for natural healing but it seems like a big marketing ploy to me, everything always seems to lead to some kind of sales page which hardly fills me with confidence.


I found that 'natural treatments for Dupuytren's' site too within a few days of suspecting that I had Dupuytren's. I think your suspicion of their claims is almost certainly quite well-founded.

best,
Molloy

01/31/2015 08:26
John1960 
01/31/2015 08:26
John1960 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

Mr C,

It was interesting to read that when you eat wheat, sugar and highly processed meals you seem to have more pain in the hand at night. That's similar to my experience. The more refined and sugary a food is (e.g. white bread, cake), the more it seems to affect me, and I'm aware of similar anecdotal reports from others as well. Minimising those foods and keeping to an essentially wholefood diet is beneficial for general health and could help with the DD. Stress might play a role, as could other variables that may interact with our genetic predisposition to this disease. Of course what works for some people may not work for all, but I think it's worth experimenting, as you've been doing, to see what helps.

Best wishes.

Edited 01/31/15 10:31

01/31/2015 21:50
Tusk 
01/31/2015 21:50
Tusk 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

This is the best thing I've seen on diet, from Dr. Eaton. Strangely enough, I've never seen anyone else advance this, found it buried in a power point presentation for hand surgeons. Slide 41

http://www.eatonhand.com/tlk/Dupuytrens_...y_treatment.swf

02/03/2015 01:40
Molloy 
02/03/2015 01:40
Molloy 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

Tusk:
This is the best thing I've seen on diet, from Dr. Eaton. Strangely enough, I've never seen anyone else advance this, found it buried in a power point presentation for hand surgeons. Slide 41

http://www.eatonhand.com/tlk/Dupuytrens_...y_treatment.swf

Tusk,
Thanks for posting that, very informative.
best,
Molloy

02/05/2015 17:48
saverett 
02/05/2015 17:48
saverett 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

Mr_C:
Hi Molloy,

Thanks for the advice. I can't disagree with your points, a great deal of time can be wasted worrying about what caused it and going down the 'why me' road. The bottom line is it will get me nowhere.

As you point out, any improvements seen through diet are anecdotal at best. In terms of my diet, I have noticed that if i eat inflammatory foods like wheat, sugar or highly processed meals, I seem to experience more pain in my hand at night. Not sure what to make of that at this stage as I have only noticed this twice, which is not really enough time to make any personal conclusions.

I am considering the massage therapy already mentioned by SpanishBuddha. I have tried massaging the nodue myself recently and it does seem to provide some relief, albeit seemingly temporary.

RT seems to be a promising option at this early stage and I am going to mention it to my consultant when I can get an appointment. Although I am expecting to be told they won't support it. The support I have had so far from the NHS has only confused the situation.

Has anyone had any experience with 'natural' treatments mentioned over at http://dupuytrens-contracture.com? They claim to be an Institute for natural healing but it seems like a big marketing ploy to me, everything always seems to lead to some kind of sales page which hardly fills me with confidence.

Thanks for all the support on this thread. It's great to know I can bounce my ideas about with people who have real experience in managing this condition. I've learnt more here than in all my google searches, and believe me there have been many!

Hi Mr. C,
I can understand what you mean when you said that "I have noticed that if i eat inflammatory foods like wheat, sugar or highly processed meals, I seem to experience more pain in my hand at night". Maybe once every two weeks I'll allow myself a bit of something sweet, maybe to remind myself that it hurts my hands (haha), or just to cut the craving. Especially since being diagnosed with DD I very rarely eat processed foods, gluten, and sugar. Your absolutely right, they hurt my hands. Sugar reacts almost immediately, but I make a turmeric tonic to drink everyday just in case I come in contact with sugar in any food. Seriously its that bad. Turmeric is an anti-inflammatory. Let me know if you'd like the recipe to try out. I think it works amazing!

02/06/2015 02:39
Tusk 
02/06/2015 02:39
Tusk 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

I've take turmeric daily (pill form) and have tried homemade turmeric tea on occasion. Not bad at all. Have not noticed any difference or improvement with my DD though.

Edited 02/06/15 06:07

02/13/2015 14:49
Mr_C 
02/13/2015 14:49
Mr_C 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

Hi All,

Thanks for all the helpful info and comments.

I brought myself 2 massage balls from amazon and have been using them daily for about 1-2 hours a day (split into up 3 sessions) for about 2 weeks.

I have noticed that on evening where I massage close to sleep it has less pain during the night. The growth seems to have slowed but it is too early to say for sure. I am going to continue with the massage and keep people updated. I do use a fair bit of pressure which may or may not be the best approach, seems to help though.

These are the massage balls I have

http://www.amazon.co.uk/dp/B001G9IN6C/re...PRWM1F8X0YCFG9K

Tusk - Thanks for sharing the presentation. Really thought provoking and some interesting points made there.

John1960 and Saverett - The food thing definitely seems to be a factor to me. Literally any substantial dose of sugar or wheat leaves my hand aching with an inflamed 'throbbing' feeling. I expect you will agree when I say I personally wouldn't directly correlate the cause DD with my diet but eating inflammatory food definitely aggravates it for me. I've tested it enough time to be sure now (mainly when out for a meal and I see the dessert menu - just can't resist!). I would be keen to learn of your turmeric tonic recipe too Saverett!

I asked my NHS consultant bout RT recently and was advised against it as 'it will cause healing issues on your skin if you need the op at a later date'. I was also told that the original consultant I saw was a junior and gave me incorrect advice on suggested treatment (ie fasciectomy for a nodule with no contracture), which is always a pleasure to hear. The current advice is to wear a splint at night (sounds like a waste of time?) and play the 'wait and see' game. However, I pushed for the RT and have got a consultation with a radiotherapist booked through the NHS.

Seems odd that they would suggest RT may cause healing issues making surgery hard, and therefore advise against it (although i know it burns the skin somewhat), personally from what I have read it seems to be worth a try when I weight up the risks and benefits. I'd welcome any opinion on this. Sadly I know the NHS likely put money and other factors over my personal health and wellbeing, which makes it hard for me to trust them.

When I told the consultant I was seeking opinion from the IDS and BDS on RT and alternative treatment he said 'its always best to listen to one or very few reliable sources of information, and I've been in treating DD for 35 years blah blah blah, you need to cool it for for your own good' (i.e - listen to me and no one else). What a stupid thing to say.

Fact is, if I just 'listened' to the original consultant I'd be now going in for an operation I don't yet need.

One thing I remain hugely fascinated by is the fact this is a 'white persons disease'. There's lots of conclusions to draw from that in my view but I will stop here as I am in danger of posting a terribly long post and it's huge enough already.

All the best.

02/13/2015 18:12
spanishbuddha 

Administrator

02/13/2015 18:12
spanishbuddha 

Administrator

Re: 30yo male, just been diagnosed, questions on my diet and next steps.

Mr C

An RT referral on the NHS is something these days. Can you let me know where you are and the hospital or clinic? PM if you prefer. It is helpful for other UK patients though to know that it is possible. Someone from the UK posting on the DC FB group had similar success recently too afair.

02/28/2015 15:12
barb444 
02/28/2015 15:12
barb444 
Re: 30yo male, just been diagnosed, questions on my diet and next steps.

i have had dupuytrens in my pinky finger for about four years curling and stiff. i also have had the beginnings of it in my index finger like you Mr C just the beginnings, hardening and tendon shrinking a little.
i am female and no family history, dont smoke or drink alcohol , i have had immune problems for approx 9 years. i try and avoid Dr's meds until absolutely essential so have done lots of research over the years on the internet. i believe diet and lifestyle are a big part in our health. so after spending a long time researching dupuytrens i tried just looking at other solutions for tendon problems.
Whoo Hoo, i found a page owned by a couple interested in tendon help for sports people, and the wife had had immune problems. from this page i decided to try a couple of their suggestions. 1; Magnesium. I took 125mg x 2 daily 2; bone broth used as base for soups and stews.

IN 5 DAYS I HAVE HAD A MIRACLE. my pinky finger has no pain and is 75% straight. i cant believe it after all this time. unbelievable yes. but have you got anything to loose for giving it a try????? i want to shout it from the rooftops i am so excited.
my bone broth was just chicken carcasses and lamb neck chops in crock pot for 24 hours. (web page said 48 hours but i was impatient to get onto it.) added to veges, barley and lentils to make a soup. i ate that for the 5 days along with fruit.

i take a few other vitamins for other immune symptoms which may of influenced my result. Multi, VIT C,E, CoQ10, and a drop of iodine a day.

if you wanted to give this a go, which i really really recommend remember to ask you dr if its ok to take vitamins with whatever you already on, and dont worry if he says the vitamin wont work. its worth a try i saw a difference in pain in two days and the finger straightening out more each day after three days.

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