i am wondering about this too since i may be embarking on the xiaflex journey soon. i do know its something i have to get preapproval for. I also need to find out if they separate the drug and the physician since my hand doctor, Dr. Denkler, is out of network for Anthem. I am hoping the drug is considered separately. Otherwise, its all out of pocket. rakuku

I too had NA with Dr. D nearly 4 years ago on pinky and it has stayed pretty straight - holding up at about 20 degrees and the best it ever was was 17. but now i am getting nodules in various places and some are tender. got him to do some cortisone recently which helps. he thinks he can give me some xiaflex in both the pinky and the nodules even though the recommended use is for contracted cords and not nodules. he thinks it can help with the nodules too. you know dr. D, always looking for better ways. And yeah, Anthem reimbursed me for part way back then but my policy is different now and has a high deductable so they probably won't pay much, if anything. guess i will just call them up and start dealing with it. no rush as the contracture is pretty stable but the nodules seem to be multiplying. still wondering if radiation is the better option here. rakuku