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12/10/11 19:54
LubaM. 
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Re: Dupuytrens in North Carolina
Those are great results. My PIP, small finger contracture came back within 6-9 months (two NA's on same finger, 4 years apart). That's why this disease is so "weird"... so different from one person to the next !
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12/10/11 21:25
callie
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Re: Dupuytrens in North Carolina
At what time do you consider surgery?
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12/10/11 21:39
tigerplay 
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Re: Dupuytrens in North Carolina
Hi Callie,
First off I am no expert, just an old man with Dupretrens. Personally I would let Dr. Eaton in Jupiter,Fl tell me that he could not help me before I would even consider surgery.
tigerplay
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12/10/11 23:41
callie
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Re: Dupuytrens in North Carolina
Yes, everyone is different. Dr. Eaton still does surgery, doesn't he? Immediately following my surgery I thought I might try NA on my other hand if the Dupuytren's progressed. The Dupuytren's on my other hand has stayed absolutely dormant for the last 12-13 years so I haven't had to make that decision. The longer (it has been 10 years) my hand (that I had surgery on) goes without showing any signs of Dupuytren's the easier it will be for me to decide on surgery again rather than NA or Xiaflex.
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12/11/11 00:38
tigerplay
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Re: Dupuytrens in North Carolina
I have no idea if Dr. Eaton does hand surgery. There is no doubt he is capable, but I just assumed he only did NA.
You could send email and ask.
tigerplay
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12/11/11 01:12
LubaM.
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Re: Dupuytrens in North Carolina
callie:
Yes, everyone is different. Dr. Eaton still does surgery, doesn't he? Immediately following my surgery I thought I might try NA on my other hand if the Dupuytren's progressed. The Dupuytren's on my other hand has stayed absolutely dormant for the last 12-13 years so I haven't had to make that decision. The longer (it has been 10 years) my hand (that I had surgery on) goes without showing any signs of Dupuytren's the easier it will be for me to decide on surgery again rather than NA or Xiaflex.
Callie,
Good for you that your surgery has lasted 10 yrs. without a recurrence, that is wonderful results, which would make it easy for you to decide on surgery should you need treatment again. Others who have posted here, have also been lucky with surgery, but many have had a difficult time with it and recurrences as well. You are one of the lucky ones.
I have read all kinds of stories on this Forum and have personally met people who had terrible results and problems after surgery, that has put me "on guard" about surgery. For me, its about trying the less invasive procedures first and leaving surgery as a last resort.
In my case, my only contracted finger is the small finger of right hand (2 NA's on it without long term success)... and the very beginning of a problem with the small finger of my left hand. I am an artist and I paint, and as long as I can use my other four fingers without a problem to hold my brushes, I am leaving it alone... for now.
I personally believe that whatever you do, whether it's surgery, NA or Xiaflex... it all comes down to how prone you are to have a recurrence and how aggressive your disease is. There is no right or wrong decision, its was you are comfortable with and luck.
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