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Newbie from Western Australia
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01/14/2013 07:48
Oddjob 
01/14/2013 07:48
Oddjob 
Newbie from Western Australia

Hi all,

I have had DC for approx 15 years, I'm now 60 years old. I have the typical hardening of the cords and nodules in both palms, fortunately I only have about 5 degrees of contracture on the left ring finger and 3 degrees on the right. I cannot press my left palm flat on a table and I can pass a pencil through, the right hand is reasonably flat. I don't experience any pain, discomfort, loss of dexterity or grip strength.

I have also found lately that when I am falling asleep in bed I have been unconciously clenching both my fists and deliberately have to relax them, not sure that it is symptomatic of the condition though.

I guess my major concern is what the progression will be as I get older. I plan to see my doctor again soon and ask for a specialist opinion. My doctor has seen my condition some time back but because it hasn't been a problem and the symptons are glacially slow he adopted a watching brief. I feel that the condition has ever so slightly changed over the last couple of years.

Are there any forum members in Western Australia who have any local knowlege, experience or recommendations regarding specialists in this field.

There are many and varied experiences expressed on this site, some clearly worse than me. The treatments and results also appear to be challenging in many cases.

I look forward to any feedback and participating in the discussions as best I can.

Best regards to all,

Geoff.

Perth, Western Australia.

01/14/2013 11:20
wach 

Administrator

01/14/2013 11:20
wach 

Administrator

Re: Newbie from Western Australia

"I guess my major concern is what the progression will be as I get older."
With increasing age progression typically slows down. Although there is no guarantee for slower progression, everyone is different, there is no need to be concerned either.

"Are there any forum members in Western Australia who have any local knowlege, experience or recommendations regarding specialists in this field."
You might have a look at http://www.dupuytren-online.info/NA_list..._countries.html. Although you are likely not yet a candidate for NA/needle fasciotomy (requires 20-30 degrees contracture) Dr. Flemming in the Perth area might be able to advise.

Wolfgang

01/15/2013 21:12
Oddjob 
01/15/2013 21:12
Oddjob 
Re: Newbie from Western Australia

Thankyou Wolfgang,

I have seen the list of specialists and I may consult Dr Flemming, it's interesting that the symptoms may slow down with age. This really is an interesting learning curve.

Best regards
Geoff.

07/04/2015 12:32
econn 
07/04/2015 12:32
econn 
Re: Newbie from Western Australia

I can't tell you much about DD procedures in Australia, but your experience with DD sounds similar to mine. My DC started when I was in my mid 30s. At first I didn't know what it was. A visit to a hand specialist 20 years later revealed that I had advanced arthritis in my thumbs and needed surgery, but no mention was made of the nodules and cords that were growing in my left hand and curling it, I guess the doc thought it was part of the arthritis. I finally diagnosed the DC myself, went to see another hand specialist and was told I needed to schedule surgery for a fasciectomy. Since I couldn't take the time off from work for rehab (I work with my hands), I postponed the surgery. After I retired I decided to go ahead with the surgery. Then I heard about Xiaflex (Xiapex) and decided that it sounded like a procedure worth trying. Last year, at age 70, I had the injection done and I am quite pleased with the results. After 1 year I am still able to hyperextend my left hand by 30 degrees and the cord remnants are barely noticeable. I will have the same procedure done by the same dr if the nodules develop into cords in my right hand. I think success of any procedure, especially injection, depends upon the skill and knowledge of the practitioner.

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