| Radiotherpy in Exeter |
|
|
1 2
|
| 1 2
|
|
07/13/2010 16:21
fos 
|
07/13/2010 16:21
fos
|
Radiotherpy in Exeter
I am having 5 days of RT on my hands in Exeter.... followed by another 5 six weeks later its worth pressing your GP for this treatment, I have seen the mess surgery can make of your hand, 2 friends have had this done. If RT can help in the developing stages of dups it should be available. I will post on here my progress !
Dave
|
|
|
|
|
07/13/2010 20:20
TrevB 
|
07/13/2010 20:20
TrevB
|
Re: Radiotherpy in Exeter
fos:
I am having 5 days of RT on my hands in Exeter.... followed by another 5 six weeks later its worth pressing your GP for this treatment, I have seen the mess surgery can make of your hand, 2 friends have had this done. If RT can help in the developing stages of dups it should be available. I will post on here my progress !
Dave
Sounds good, the message is spreading 
Trevor
Cambidgeshire, UK.
|
|
|
|
|
07/14/2010 03:25
wach  Administrator
|
07/14/2010 03:25
wach Administrator
|
Re: Radiotherpy in Exeter
Who is doing your RT? Maybe an addition to our (very short) list for the UK?
Wolfgang
fos:
I am having 5 days of RT on my hands in Exeter.... followed by another 5 six weeks later its worth pressing your GP for this treatment, I have seen the mess surgery can make of your hand, 2 friends have had this done. If RT can help in the developing stages of dups it should be available. I will post on here my progress !
Dave
|
|
|
|
|
08/01/2010 18:35
fos
|
08/01/2010 18:35
fos
|
Re: Radiotherpy in Exeter
Its Dr Andrew Goodman (AGG): Lead Clinician Clinical Oncologist, Exeter RD&E. I don't think he has much experience of the treatment but at least was prepared to give it a go for me.
|
|
|
|
|
08/01/2010 18:38
fos
|
08/01/2010 18:38
fos
|
Re: Radiotherpy in Exeter
TrevB:
fos:
I am having 5 days of RT on my hands in Exeter.... followed by another 5 six weeks later its worth pressing your GP for this treatment, I have seen the mess surgery can make of your hand, 2 friends have had this done. If RT can help in the developing stages of dups it should be available. I will post on here my progress !
Dave
Sounds good, the message is spreading
Trevor
Cambidgeshire, UK.
Ta Trevor.... have had one 5 day treatment next 5 days at end of August, will report if any good after then
|
|
|
|
|
08/22/2010 06:50
Adriannot registered
|
08/22/2010 06:50
Adriannot registered
|
Re: Radiotherpy in Exeter
How is the treatment going so far?
|
|
|
|
|
08/22/2010 10:07
fos
|
08/22/2010 10:07
fos
|
Re: Radiotherpy in Exeter
I am back in for my second 5 day batch end of this week. Have noticed the skin is peeling off my fingers, I think this is a reaction to the radiotherpy to be expected. Not painful or anything like that, bit of e45 cream sorts it.
I don't know at this stage if the treatment is going to help... the progression feels less but this could just be in my head, will report back after the second 5 day batch.
|
|
|
|
|
09/20/2010 08:01
Adriannot registered
|
09/20/2010 08:01
Adriannot registered
|
Re: Radiotherpy in Exeter
Any updates yet on your treatment? I have just finished my second 5 day course in London. Nodules seem a bit smaller and softer and having fewer sensory symptoms in the palm. Skin sl pink and itchy and a bit dry So no dramatic reversal of the disease so far but as long as it stops progression I will be happy.
|
|
|
|
|
09/20/2010 10:00
fos
|
09/20/2010 10:00
fos
|
Re: Radiotherpy in Exeter
Yes my experience is the same, I have no idea if this treatment will make a blind bit of difference but in the absence of anything else I felt it was worth a go. Its 2 weeks or so since I finished my 2nd 5 day dose, have felt a bit tired since but this could be cause I akm a lazy bastard looking for an excuse ! The consultant wants to see me Feb 2011 to evaluate the treatment.
I can still play the guitar and that is my aim with this. My mobile phone number is 07720 345996 I am happy to talk to anyone about this.... Dave
|
|
|
|
|
09/20/2010 16:32
Larry
|
09/20/2010 16:32
Larry
|
Being the "Guinea Pig" ?!
I would not like to be the "guinea pig" for an unexperienced doctor and his first treatment !
What could go wrong:
- The field of radiation does not match the disease: does your doctor detect all disease in your hand ??
Does he has experuience in palpation, observation and appropriate documentation for long-
term observation ?
- The radiation dose is wrong or may be to weak or strong ??
Does the doctor have someone who checks his machine ? HOw about shielding or protection
of uninvolved areas ??? with which energy is the treatment done.
Where is the radiation dose calculated to be 100% ? Surface ? 3mm or 5mm beneeth skin surface ??
- The follow-up examination is inappropriate or lacking sufficient expertise ?
Decisions are made under wrong base-line examinations ?
I would always rely on the expertise of an experience doctor; he may give advice to lesser experienced
doctors ! I think, there is a huge difference in skills and knowledge about Dupuytren's Disease.
I am opting for the expert !
|
|
|
|
|
|
1 2
|
| 1 2
|
140 users online
Login
